Symptoms
Causes
Complications
What kind of doctor manages Ehlers-Danlos Syndrome?
Successful treatment of this complex syndrome requires a team with extensive knowledge of genetics, orthopedics, pediatrics, neurology, neuroradiology, neuropsychology, and neuroendocrinology, in addition to skilled surgeons who specialize in neurosurgery and cerebrovascular surgery.
What is the best treatment for Ehlers-Danlos Syndrome?
Physical therapy Exercises to strengthen the muscles and stabilize joints are the primary treatment for Ehlers-Danlos syndrome. Your physical therapist might also recommend specific braces to help prevent joint dislocations.
Do Rheumatologists treat Ehlers-Danlos?
The rheumatologist can play an important role in the diagnosis of EDS and is central to the ongoing management of many EDS patients.
What supplements are good for Ehlers-Danlos Syndrome?
We therefore hypothesize that the symptoms associated with Ehlers-Danlos syndrome may be successfully alleviated using a specific (and potentially synergistic) combination of nutritional supplements, comprising calcium, carnitine, coenzyme Q(10), glucosamine, magnesium, methyl sulphonyl methane, pycnogenol, silica, ...
Does Ehlers-Danlos get worse with age?
Many of the problems associated with EDS are progressive, meaning that they get worse over time. Kyphoscoliosis EDS (kyphosis and scoliosis) is a form of Ehlers-Danlos Syndrome that is noted for severe, progressive curvature of the spine.
Do collagen supplements help Ehlers-Danlos?
Bottom Line: No established research or clinical experience has proven that collagen supplementation is helpful for persons with EDS! Theoretically, a diet adequate in glycine, proline, lysine, and vitamin C (or supplementation) would support collagen biosynthesis.
Is Ehlers-Danlos considered a disability?
Applying for Social Security Disability with Ehlers-Danlos Syndrome. Like many rare genetic conditions, there is no Blue Book listing for Ehlers-Danlos. However, you may still qualify for benefits if you can match a listing associated with your particular symptoms or impairments.
Is EDS an autoimmune disease?
A much rarer group of connective tissue disorders is called Ehlers-Danlos syndrome. Unlike the diseases noted above, Ehlers-Danlos syndrome is not an autoimmune condition, it's an inherited disorder.
Can diet help EDS?
Eating a “heart-healthy diet” can be important for people with Ehlers-Danlos syndrome (EDS), a rare disease that causes weakness in the connective tissue that gives structure to different organs and tissues in the body.
What medications should be avoided with EDS?
Official answer. With Ehlers-Danlos syndrome (EDS), experts recommend avoiding drugs that increase your risk of bleeding—such as anticoagulants and antiplatelet agents—because those affected with EDS are at higher risk for bruising and injury.
Is exercise good for Ehlers-Danlos?
Implications for rehabilitation Exercise is a cornerstone of treatment for Ehlers-Danlos syndrome/Ehlers-Danlos syndrome - hypermobility type. Pain, fatigue and fear of injury are frequently reported barriers to exercise. Advice from physiotherapists may significantly influence exercise behaviour.
Can Ehlers-Danlos cause vitamin D deficiency?
Vascular type Ehlers-Danlos syndrome is associated with platelet dysfunction and low vitamin D serum concentration.