Treatment FAQ

how do i know if lyme treatment is real

by Eryn Mante DVM Published 2 years ago Updated 2 years ago
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Medication

There is another test that can give us an idea whether the Lyme disease is actually gone out of our systems. This is an inflammatory marker, so it tells us whether there is continued inflammation (presumably caused by the Lyme bacterium) or whether that inflammation is no longer present.

Nutrition

The National Geographic website has a good description of the deer tick, and the history of Lyme disease . Standard Lyme testing includes the following: If that test is positive, then a Western Blot test is run If 5 out of the 10 possible Lyme bands are positive, you are diagnosed with Lyme disease

How do you know if lyme disease is gone from you?

Untruths told by Lyme pseudo-specialists (i.e., the Lyme doctors) and assertions made by people convinced to have chronic Lyme disease are indeed picked up by the media – too eager to disseminate fake news and happy to see the medical authorities flouted – and work to the disadvantage of patients.

How do you test for Lyme disease?

Symptoms of Post Treatment Lyme Disease 1 Include severe fatigue, musculoskeletal pain, & cognitive problems 2 Can significantly impact patients’ health and quality of life 3 Can be debilitating and prolonged More ...

Are Lyme doctors telling untruths to the media?

What are the symptoms of post treatment Lyme disease?

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Is Post-treatment Lyme disease Real?

“Post-treatment Lyme disease syndrome (PTLDS) is a real disorder that causes severe symptoms in the absence of clinically detectable infection,” says John N.

How do I know if my Lyme is cured?

As with many infectious diseases, there is no test that can “prove” cure. Tests for Lyme disease detect antibodies produced by the human immune system to fight off the bacteria (Borrelia burgdorferi) that cause Lyme disease. These antibodies can persist long after the infection is gone.

Can Lyme disease come back after treatment?

In rare cases, you may experience a continuation of Lyme disease symptoms after antibiotic treatment. This is called post-treatment Lyme disease syndrome (PTLDS).

Is Stage 3 Lyme disease curable?

Stage 3 (late disseminated) Lyme disease is also treated with various antibiotics: For Lyme disease that causes arthritis, 28 days of oral doxycycline, amoxicillin, or cefuroxime is prescribed. Additional courses of antibiotics may be necessary, depending on the severity and persistence of your symptoms.

How long after starting antibiotics for Lyme Do you feel better?

Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment. This condition is called Post-Treatment Lyme Disease Syndrome (PTLDS).

How long does it take doxycycline to work for Lyme disease?

For early Lyme disease, a short course of oral antibiotics, such as doxycycline or amoxicillin, cures the majority of cases. In more complicated cases, Lyme disease can usually be successfully treated with three to four weeks of antibiotic therapy.

Does Lyme disease stay in you forever?

If treated, Lyme disease does not last for years. However, for some people, the after-effects of the disease can linger for months and sometimes even years. Alternative medicine providers call this condition "Chronic Lyme disease," but this title is simply wrong.

What triggers Lyme disease flare ups?

Triggers for Lyme disease vary by person, but they can include: emotional stress (such as a divorce, death in the family, or accidents) physical stress to the body (i.e., surgery, physical harm, concussion) life stress or stressful events.

Can Lyme disease shorten your life?

Take away message: In the long run, Lyme does not affect your life as much as other health conditions. It is important to live a healthy lifestyle regardless of whether you are struggling with Lyme disease or not.

How do you know what stage of Lyme disease you have?

Lyme disease diagnosis Blood tests are most reliable a few weeks after the initial infection, when antibodies are present. A healthcare professional may order the following tests: Enzyme-linked immunosorbent assay (ELISA) is used to detect antibodies against B. burgdorferi.

What is the best treatment for late stage Lyme disease?

Neurologic conditions associated with late Lyme disease are treated with intravenous antibiotics, usually ceftriaxone or cefotaxime, given daily for two to four weeks.

What is the best antibiotic for chronic Lyme disease?

Doxycycline is considered the first-line drug of choice for Lyme disease by most physicians.

What is the most common manifestation of Lyme disease?

Treatment regimens listed in the following table are for the erythema migrans rash, the most common manifestation of early Lyme disease. These regimens may need to be adjusted depending on a person’s age, medical history, underlying health conditions, pregnancy status, or allergies. Consult an infectious disease specialist regarding individual patient treatment decisions.

How long does it take to recover from lyme disease?

Lyme arthritis. The National Institutes of Health (NIH) has funded several studies on the treatment of Lyme disease that show most people recover within a few weeks of completing a course of oral antibiotics when treated soon after symptom onset.

What is the treatment for lyme disease?

People with other forms of disseminated Lyme disease may require longer courses of antibiotics or intravenous treatment with antibiotics such as ceftriaxone. For more information about treating other forms of Lyme disease, see: Neurologic Lyme disease. Lyme carditis.

How long does a lyme disease last?

In a small percentage of cases, symptoms such as fatigue (being tired) and myalgia (muscle aches) can last for more than 6 months. This condition is known as post-treatment Lyme disease syndrome (PTLDS), although it is also sometimes called chronic Lyme disease.

Can you get Lyme disease with antibiotics?

People treated with appropriate antibiotics in the early stages of Lyme disease usually recover rapidly and completely. Early diagnosis and proper antibiotic treatment of Lyme disease can help prevent late Lyme disease.

What happens after Lyme disease treatment?

After treatment, a small number of people still have some symptoms, such as muscle aches and fatigue. The cause of these continuing symptoms, known as post-treatment Lyme disease syndrome, is unknown, and treating with more antibiotics doesn't help.

What is the test used to detect lyme disease?

Enzyme-linked immunosorbent assay (ELISA) test. The test used most often to detect Lyme disease, ELISA detects antibodies to B. burgdorferi. But because it can sometimes provide false-positive results, it's not used as the sole basis for diagnosis. This test might not be positive during the early stage of Lyme disease, ...

What is the test for B. burgdorferi?

If the ELISA test is positive, this test is usually done to confirm the diagnosis. In this two-step approach, the Western blot detects antibodies to several proteins of B. burgdorferi.

What to do if you don't have a lyme disease rash?

Lab tests to identify antibodies to the bacteria can help confirm or rule out the diagnosis. These tests are most reliable ...

How long does it take for a central nervous system infection to go away?

Intravenous antibiotics. If the disease involves the central nervous system, your doctor might recommend treatment with an intravenous antibiotic for 14 to 28 days. This is effective in eliminating infection, although it may take you some time to recover from your symptoms. Intravenous antibiotics can cause various side effects, ...

How long after an infection can you test for antibodies?

Lab tests to identify antibodies to the bacteria can help confirm or rule out the diagnosis. These tests are most reliable a few weeks after an infection, after your body has had time to develop antibodies. They include: Enzyme-linked immunosorbent assay (ELISA) test.

What to do if you have been bitten by a tick?

Make a list of: Your symptoms, and when they began. All medications, vitamins and other supplements you take, including doses. Questions to ask your doctor.

How high is the risk of Lyme disease after treatment?

The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher. Other risk factors being investigated are genetic predispositions and immunologic variables.

How common is PTLD after lyme disease?

The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher.

What is a PTLD?

Post Treatment Lyme Disease (PTLD) represents a research subset of patients who remain significantly ill 6 months or more following standard antibiotic therapy for Lyme disease. PTLD is characterized by a constellation of symptoms that includes severe fatigue, musculoskeletal pain, sleep disturbance, depression, and cognitive problems such as difficulty with short-term memory, speed of thinking, or multi-tasking. In the absence of a direct diagnostic biomarker blood test, PTLD has been difficult to define by physicians, and its existence has been controversial. However, our clinical research shows that meticulous patient evaluation when used alongside appropriate diagnostic testing can reliably identify patients with a history of previously treated Lyme disease who display the typical symptom patterns of PTLD.

How many signs and symptoms are there in PTLD?

In our study, participants with Post Treatment Lyme Disease (PTLD) & controls were asked about presence and severity of 36 signs/symptoms over the past 2 weeks. Displayed are the 25 signs/symptoms with a statistically significant difference in severity by group (P<0.05) ordered by frequency within the PTLD group. The nine signs/symptoms with a statistically significant difference at the p<0.001 level are indicated with an asterisk*.

What are the risk factors for lyme disease?

Risk factors for Post Treatment Lyme Disease include: 1 Delay in diagnosis 2 Increased severity of initial illness 3 Presence of neurologic symptoms

What is the cause of Lyme disease?

In addition to Borrelia burgdorferi, the bacteria that causes Lyme disease, there are several other tick-borne co-infections that may also contribute to more prolonged and complicated illness.

What antibiotics are used for borrelia?

Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the second generation cep halosporin, Ceftin. The mainstay of treatment is with oral (pill) antibiotics, but intravenous antibiotics are sometimes indicated for more difficult to treat cases of neurologic-Lyme disease, such as meningitis, ...

What is the test called for a lyme disease?

This is one type of immune reactivity test. The other type of immune reactivity test is called a western blot and the newer immunoblot. These tests see if your immune system is making antibodies against Lyme or one of the coinfections.

What labs do elispots test for lyme disease?

There is a current trend among some Lyme Literate Medical Doctors (LLMDs) to retest patients. The elispot tests through Armin Labs, Infectolab, and even IGenex measure if a type of white blood cell called a T Cell has reacted to Lyme or one of the coinfections. This is one type of immune reactivity test. The other type of immune reactivity test is ...

Why is a Western Blot negative?

So a negative or less reactive elispot, immunoblot, or western blot could be due to large numbers of germs suppressing the immune system. Another issue is that Lyme and Bartonella live in persister forms and biofilms where the immune system cannot see them. Additionally, Lyme can hide in tissues with poor blood flow.

What does it mean when your immune system is reactive?

Once treatment is over, without any immune suppression, the immune system could become super-charged and much more reactive to battle even the smallest amount of remaining germs or germ proteins . So increased reactivity could mean your immune system has it all under control.

Can lyme disease hide in blood?

Additionally, Lyme can hide in tissues with poor blood flow. So these germs can hide from immune cells, creating a falsely low immune response test. Also, the elispot test offered by Armin and others will not find Lyme or other germs when present up to fifteen percent of the time.

Can you tell if you have recovered from lyme disease?

The truth is, there are no biologic markers or immune system tests that show if you have recovered or are recovering from Lyme and coinfections. Repeating elispot tests like those offered by Armin Labs, or western blot tests and immunoblot tests offered by IGenex (or other labs) do not have any scientific proof to show they can predict the end ...

How long does it take for a lyme disease test to show positive?

That’s why the test can be negative if the disease is present for less than a month. It takes at least a couple of weeks to mount an immune response that would turn the test positive. It is easier to diagnose Lyme if you have the classic bull’s-eye rash that shows up a few days after the tick bite.

How long does lyme disease last?

However, doctors noticed a subset of patients who develop symptoms that can last for months and even years after treatment. PTLD symptoms are vague and other illnesses present in a similar way: fatigue, brain fog, numbness, tingling, palpitations, dizziness, aches, and pain. There are a few case studies in the medical literature describing people who continued to have evidence of infection despite adequate treatment, but in most cases there is no laboratory proof the bacteria is still present.

What organisms are tested positive for Lyme disease?

Many people with lyme disease test positively for Anaplasma, Ehrlichia, Tick borne Typhus, Rocky Mountain Spotted Fever and other spotted fevers, Babesia (duncani, microti, divergens and many more), Bartonella and Bartonella and Babesia like and Borrelia like organisms, BR 91 is in mosquitoes in Europe.

How long should you take antibiotics for lyme disease?

The evidence to recommend a specific length of antibiotics treatment is scarce. Most physicians follow the two- to-four-week treatment the CDC recommends.

How often do doctors see patients with lyme disease?

Physicians typically must see a patient every 15 to 20 minutes and find solutions that fit their goals, with little time to listen and address vague complaints. Lyme disease is the poster child for the disconnect we have in our current healthcare system.

What is the cause of lyme disease?

The disease is caused by bacteria called Borrelia, and it is spread by ticks. One of the biggest controversies surrounding Lyme is determining whether or not someone has the so-called persistent ...

How to treat PTLD?

If you are being treated for PTLD, there is no magic bullet to treat this problem, but here are some important steps to consider: 1 Choose a doctor you trust and who can work closely with you. 2 If your doctor agrees to start antibiotics for several months, make sure you talk about the risks and cost, as this can be dangerous and expensive. 3 Make sure not to rely solely on antibiotics. The evidence for a benefit from antibiotics is weak, and we rely mostly on physicians’ clinical experience and interest in the disease to design a personalized therapeutic plan. For some, a more holistic approach may be the way to go. 4 If you try supplements, ask about their source and purity, as they are not FDA-regulated. 5 Consider looking for services in medical school hospitals or clinics where they may have programs with ongoing research on how to diagnose and treat Lyme.

How is lyme disease reported?

In most states, Lyme disease cases are reported by licensed health care providers, diagnostic laboratories, or hospitals. States and the District of Columbia remove all personally identifiable information, then share their data with CDC, which compiles and publishes the information for the Nation. CDC has no way of linking this information back to the original patient.

How long does it take for a lyme test to be positive?

In this case, if the person is retested a few weeks later, they should have a positive test if they have Lyme disease. It is not until 4 to 6 weeks have passed that the test is likely to be positive. This does not mean that the test is bad, only that it needs to be used correctly.

What is a lyme corps?

Lyme Corps was a train-the trainer program for Lyme disease focused on prevention and early recognition of Lyme disease and other tickborne diseases. It ran from 2012 to 2016.

How long does it take for lyme disease to go away?

Lyme disease is caused by infection with the bacterium Borrelia burgdorferi. Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that last for more than 6 months after they finish treatment.

What is the goal of Lyme disease surveillance?

The goal of Lyme disease surveillance is not to capture every case, but to systematically gather and analyze public health data in a way that enables public health officials to look for trends and take actions to reduce disease and improve public health.

Can you get Lyme disease from a tick bite?

The chances that you might get Lyme disease from a single tick bite depend on the type of tick, where you acquired it, and how long it was attached to you. Many types of ticks bite people in the U.S., but only blacklegged ticks transmit the bacteria that cause Lyme disease. Furthermore, only blacklegged ticks in the highly endemic areas ...

Was the Lyme Corps a federal agency?

Lyme Corps members were not federal employees; their views and opinions did not necessarily represent the official position of the Centers for Disease Control and Prevention or the U.S. Government.

How long does it take for lyme disease to clear up?

Christina Kovacs. In most cases, when Lyme disease is readily diagnosed, a three to four-week dose of oral antibiotics like doxycycline or amoxicillin will clear it up, and you can go back to life as normal. But reports show that for 10 to 20 percent of those diagnosed with Lyme disease, mysterious symptoms—joint pain, unrelenting fatigue, ...

What does "late lyme" mean?

She herself doesn’t use the term “chronic Lyme,” rather she calls it “late Lyme,” which refers to Lyme disease that was missed or treated ineffectively. “ [These chronic symptoms are] causing a lot of illness and morbidity, loss of productive hours, and quality of life,” she says.

How many cases of lyme disease will there be in 2020?

A new study in the journal BMC Public Health estimates that there will be two million cases of PTLDS by 2020.

What is the tick rash?

By Jessica Migala. Aug 28, 2019. Sylvia Janicki doesn’t remember being bitten by a tick in 2014, but she did develop a bullseye rash—a hallmark sign of Lyme disease, the most common (and feared) infectious disease spread by ticks in the United States. Within 24 hours of the rash’s appearance, a doctor diagnosed the 29-year-old Seattle resident ...

What is the disease that a blacklegged tick transmits?

She was eventually told she was dealing with chronic Lyme. Transmitted through the bite of an infected blacklegged tick, Lyme disease stems from the Borrelia burgdorferi bacteria, per the Centers of Disease Control and Prevention (CDC).

Is PTLDS the same as chronic lyme?

But PTLDS is not interchangeable with chronic Lyme, which casts a wider net and can be used to describe cases where a B. burgdorferi infection was never officially diagnosed, according to the National Institute of Allergy and Infectious Disease (NIAID). That’s where things get dicey.

Does Lady of Lyme have a chronic disease?

The Ashland, KY resident, who now runs the blog Lady of Lyme, wouldn’t be told she has chronic Lyme disease until September 2011, more than five years after falling ill.

Why does lyme disease look the same?

Why? Both of these conditions trigger an immune system reaction the creates more inflammatory cytokines. These cytokines are designed to boost the immune system. But when they are made in excess they give most of the symptoms we find in Lyme and in yeast overgrowth in the intestines.

How long does it take to recover from a relapse?

Good News: Generally if you get back in to treatment quickly at the beginning of a relapse the treatment is relatively quick (compared to the average initial 2 year treatment) and takes around 4 months to recover.

How long does it take for a bartonella to heal?

A bartonella relapse can take 4 to 6 months to completely recover and babesia can take 4 to 5 months following the treatment approaches in our guides mentioned in the paragraph above.

Can Lyme disease relapse?

At some point after a Lyme treatment is complete, many with Lyme disease and the co-infections will relapse. But how do you know if the decline in your health is due to Lyme, a co-infection, or another problem? And if it is a relapse what do you do?

Can you test for Lyme disease again?

But if your symptoms remain, then it may be a Lyme relapse. Do not test for Lyme again with western blot testing or with a CD-57 test.

Is there a Lyme disease test?

Is There a Lyme Done Test? No, and

Can you have a relapse of Lyme disease if you have Bartonella?

In my experience using the treatment approaches in Kills Bartonella: A Brief Guide and in Kills Babesia: A Brief Guide 95% of people will never have a relapse of one of these germs.

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Diagnosis

Treatment

Alternative Medicine

Preparing For Your Appointment

Medically reviewed by
Dr. Rakshith Bharadwaj
Your provider will work with you to develop a care plan that may include one or more of these treatment options.
Treatment includes antibiotics.
Medication

Oral antibiotics: Early stages of lyme disease are treated with oral antibiotics.

Doxycycline . Amoxicillin . Tetracycline


Intravenous antibiotics: Prescribed for people whose central nervous system is affected by lyme disease.

Ceftriaxone . Penicillin

Nutrition

Foods to eat:

  • Gluten-free eating
  • Low sugar/ carbohydrate diet
  • Consume food that is rich In vitamins to improve immunity

Foods to avoid:

  • Stop dairy intake
  • Avoid refined sugars

Specialist to consult

Primary care physician
Specializes in the acute and chronic illnesses and provides preventive care and health.

Treatment

  • Many signs and symptoms of Lyme disease are often found in other conditions, so diagnosis can be difficult. What's more, ticks that transmit Lyme disease can also spread other diseases. If you don't have the characteristic Lyme disease rash, your doctor might ask about your medical history, including whether you've been outdoors in the summer where Lyme disease is common, and do …
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Side effects

  • Antibiotics are used to treat Lyme disease. In general, recovery will be quicker and more complete the sooner treatment begins.
See more on mayoclinic.org

Prognosis

  • Antibiotics are the only proven treatment for Lyme disease. Some people who have unexplained signs and symptoms or chronic disease might believe they have Lyme disease even if it's not been diagnosed. There are a variety of alternative treatments that people with Lyme disease or people who think they have Lyme disease turn to for relief. Unfortunat...
See more on mayoclinic.org

Roles

  • You're likely to start by seeing your family doctor or a general practitioner who might refer you to a rheumatologist, infectious disease specialist or other specialist. Here's some information to help you get ready for you appointment.
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Research

Terminology

  • Antibiotics, like all medications, have the potential for side effects. Any antibiotic can cause skin rashes and if an itchy red rash develops while on antibiotics, a patient should see their physician. Sometimes symptoms worsen for the first few days on an antibiotic. This is called a Herxheimer reaction and occurs when the antibiotics start to kill the bacteria. In the first 24 to 48 hours, thes…
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Diagnosis

  • The prognosis after treatment of Lyme disease is generally very good. The majority of people are treated with antibiotics and return to their normal health. The prognosis is best when Lyme disease is diagnosed and treated early and worsens when diagnosis and treatment is delayed. Most patients with early Lyme disease infection recover with antibiotics and return to their norm…
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