Treatment FAQ

when you see improvement after treatment for lyme disease

by Darby Strosin V Published 2 years ago Updated 2 years ago
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Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment. This condition is called Post-Treatment Lyme Disease Syndrome (PTLDS).

Medication

Throughout treatment you will be deceived by your own body. There will be days where you will feel as if you've never even had Lyme Disease. You'll be symptom free, full of energy and ready to carry on with life but this is biggest deception you could fall for because soon enough you'll be hit with a bad day.

Nutrition

If you're just starting treatment, you're probably feeling ambivalent, uncertain and curious as to how your body is going to respond. At the moment, you're probably just experiencing your normal Lyme symptoms, as crippling as they are. After starting an antibiotic regiment, you are either going to experience 1 of 2 things.

What happens during treatment for Lyme disease?

You’ll need to take this medicine for 10 to 21 days. The earlier Lyme disease is found, the better. Most people who start treatment in this stage improve quickly.

How do you feel after starting treatment for Lyme disease?

Long-term antibiotic treatment for Lyme disease has been associated with serious, sometimes deadly complications, as described in the links below. Patients with PTLDS usually get better over time, but it can take many months to feel completely well.

How long does it take for Lyme disease medicine to work?

What is the prognosis of long-term antibiotic treatment for Lyme disease?

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How do you know when Lyme disease is gone?

As with many infectious diseases, there is no test that can “prove” cure. Tests for Lyme disease detect antibodies produced by the human immune system to fight off the bacteria (Borrelia burgdorferi) that cause Lyme disease. These antibodies can persist long after the infection is gone.

How do you know if antibiotics are working for Lyme disease?

Lab tests to identify antibodies to the bacteria can help confirm or rule out the diagnosis. These tests are most reliable a few weeks after an infection, after your body has had time to develop antibodies.

Do Lyme symptoms get worse during treatment?

Patients who've gone through treatment will often say “your symptoms get worse before they get better.” One of the reasons for this is something called a Jarisch-Herxheimer reaction.

How many Lyme disease patients have symptoms after treatment?

The condition is also referred to as post Lyme disease syndrome or post-treatment Lyme disease syndrome. According to the New England Journal of Medicine, approximately 10 to 20 percent of people who are treated with the recommended antibiotics will have disease symptoms that persist after they complete treatment.

What happens if antibiotics don't work for Lyme disease?

Delayed diagnosis, prolonged symptoms Or they may not develop the characteristic bullseye-shaped rash that would lead them to seek medical care sooner. So, weeks or months may have passed by the time people show up at the doctor's office with more severe symptoms, such as heart problems, headaches, pain, or weakness.

What antibiotics treat late stage Lyme disease?

Neurologic conditions associated with late Lyme disease are treated with intravenous antibiotics, usually ceftriaxone or cefotaxime, given daily for two to four weeks.

How do you feel better with Lyme disease?

Living with Lyme diseaseEat a healthy diet and limit your sugar intake.Get plenty of rest.Exercise at least three times a week for at least 30 minutes each day.Reduce stress.Use anti-inflammatory medication when necessary.

Is Lyme worse before better?

2 said, “you'll feel much worse before you feel better. When the bacteria die, they release a toxic gas. It's called a Herxheimer reaction. Your symptoms will intensify, and you'll likely have some new ones.

Can late stage Lyme disease be cured?

When treated early, Lyme disease can be cured and most patients will recover completely. Even when treated in later stages, most patients will respond well to antibiotics, though there may be some chronic damage to the nervous system or joints.

How long does it take to feel better after starting antibiotics for Lyme disease?

Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment. This condition is called Post-Treatment Lyme Disease Syndrome (PTLDS).

Can nerve damage from Lyme disease be reversed?

Steere and two colleagues who studied the disease cautioned that only a few Lyme patients suffer this lingering nerve disorder, and most can be cured with antibiotics given early in their infections.

What makes Lyme disease worse?

Triggers for Lyme disease vary by person, but they can include: emotional stress (such as a divorce, death in the family, or accidents) physical stress to the body (i.e., surgery, physical harm, concussion) life stress or stressful events.

How high is the risk of Lyme disease after treatment?

The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher. Other risk factors being investigated are genetic predispositions and immunologic variables.

How common is PTLD after lyme disease?

The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher.

What are the risk factors for lyme disease?

Risk factors for Post Treatment Lyme Disease include: 1 Delay in diagnosis 2 Increased severity of initial illness 3 Presence of neurologic symptoms

What is lyme disease?

Lyme disease encompasses a range of biologic processes and disease manifestations. Patients are often referred to the Lyme Disease Research Center for evaluation of chronic Lyme disease, an umbrella term that encompasses many heterogeneous subsets of illness. Examples of defined Lyme disease subsets include Post Treatment Lyme Disease (PTLD), ...

What is the reaction of antibiotics to a virus?

This is called a Herxheimer reaction and occurs when the antibiotics start to kill the bacteria. In the first 24 to 48 hours, dead bacterial products stimulate the immune system to release inflammatory cytokines and chemokines that can cause increased fever and achiness.

What antibiotics are used for borrelia?

Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the second generation cep halosporin, Ceftin. The mainstay of treatment is with oral (pill) antibiotics, but intravenous antibiotics are sometimes indicated for more difficult to treat cases of neurologic-Lyme disease, such as meningitis, ...

Why is rigorous diagnostic evaluation necessary?

Therefore, rigorous diagnostic evaluation is necessary to determine if Lyme disease could be the trigger for ongoing disease processes or if some other disease processes are involved. Gaps in knowledge can lead to problems in clinical care.

How long does it take to recover from lyme disease?

Lyme arthritis. The National Institutes of Health (NIH) has funded several studies on the treatment of Lyme disease that show most people recover within a few weeks of completing a course of oral antibiotics when treated soon after symptom onset.

What is the treatment for lyme disease?

People with other forms of disseminated Lyme disease may require longer courses of antibiotics or intravenous treatment with antibiotics such as ceftriaxone. For more information about treating other forms of Lyme disease, see: Neurologic Lyme disease. Lyme carditis.

How long does a lyme disease last?

In a small percentage of cases, symptoms such as fatigue (being tired) and myalgia (muscle aches) can last for more than 6 months. This condition is known as post-treatment Lyme disease syndrome (PTLDS), although it is also sometimes called chronic Lyme disease.

Can you treat lyme disease with antibiotics?

People treated with appropriate antibiotics in the early stages of Lyme disease usually recover rapidly and completely. Early diagnosis and proper antibiotic treatment of Lyme disease can help prevent late Lyme disease. Treatment regimens listed in the following table are for the erythema migrans rash, the most common manifestation ...

How long does it take for a lyme disease to go away?

Sometimes, people go through treatment for Lyme disease but their symptoms (feeling run-down and achy) don’t go away. If this lasts over 6 months , it’s known as chronic Lyme disease or “post-treatment Lyme disease syndrome” (PTLDS). Doctors still aren’t sure why some people get PTLDS.

How long do you have to take amoxicillin for lyme disease?

Which drug you’re prescribed will depend on your age. Your doctor will also take into account if you’re pregnant or nursing. You’ll need to take this medicine for 10 to 21 days. The earlier Lyme disease is found, the better. Most people who start treatment in this stage improve quickly.

What antibiotics are used for lyme disease?

If your Lyme disease is found soon after you’ve been infected, your doctor will start you on antibiotics: 1 Doxycycline 2 Amoxicillin 3 Cefuroxime

How long does it take for a syringe to work?

This allows it to go right into your bloodstream and start working. Most people receive medicine by IV for 2 to 3 weeks. During this time, your doctor will also try to ease some of your symptoms and any pain you’re in.

Is Lyme disease better treated with antibiotics?

The earlier Lyme disease is found, the better. Most people who start treatment in this stage improve quickly. If not, your doctor may need to pre scribe another course of antibiotics.

Can IV antibiotics make you sick?

It’s likely this treatment will get rid of the bacteria that’s making you sick. Still, it could take some time for your symptoms to go away. IV antibiotics also come with side effects. These can include diarrhea and a low white blood cell count, which makes it hard for your body to fight off other infections.

Can Lyme disease cause damage to the immune system?

Some believe that getting Lyme disease may cause damage to your tissues or immune system. Others believe it’s because the bacteria that causes Lyme hasn’t completely gone away. There is little evidence that taking more antibiotics at this stage will help. They may actually be harmful.

What happens when you start Lyme disease treatment?

If you're just starting treatment, you're probably feeling ambivalent, uncertain and curious as to how your body is going to respond. At the moment, you're probably just experiencing your normal Lyme symptoms, as crippling as they are. After starting an antibiotic regiment, you are either going to experience 1 of 2 things.

What happens after you start taking antibiotics?

You are either going to immediately start feeling good with a dissipation of symptoms and then feeling the wrath of die off or you're just going to experience die off right off the bat. Now everyone is going to experience die off at a different time.

How long does it take to get rid of a herx?

So most people usually reduce their dosage of antibiotics or just back off completely for about 2 - 3 days.

How long do bad days last?

Bad days can linger for a few days or all the way up to a couple weeks. During this state, your mental stamina is going to be challenged to the max. It will be a complete state of debilitation and self loathing and in all honesty, you may even reach a point where you feel you must end your life. Hold it!

Is it necessary to lose your expectation of antibiotics?

It is an imperative! Lose any expectation of ingesting antibiotics as your only duty. Your body is going to require the right foods, detoxing, and most importantly, patience and persistence. It is going to be a long haul and will truly test your patience to the limit but you must remain persistent.

Can you feel like you have never had Lyme disease?

There will be days where you will feel as if you've never even had Lyme Disease. You'll be symptom free, full of energy and ready to carry on with life but this is biggest deception you could fall for because soon enough you'll be hit with a bad day.

Remission

Personally, I don’t like the term Remission. Webster describes it as “a temporary and incomplete subsidence of the force or violence of a disease or of pain, as distinguished from intermission, in which the disease completely leaves the patient for a time; the act of remitting, surrendering, resigning, or giving up.”

Relapse

Relapse is a touchy subject. Many of us almost expect it, as if we are waiting for it to happen. This is mainly because we learn to be “cautiously optimistic,” as a friend of mine says, because of all of the ups and downs of treatment.

Taking Care of Ourselves

Anyone who has actually had successful treatment with this disease will probably agree that the most important thing we learn during this process is how to take care of ourselves. We don’t really have a choice, do we? We either learn to do this, and to listen to our bodies, or we perish. It’s’ really that simple.

Reinfection

At some point either during treatment or shortly after, we all ask the question, “Will I ever be able to enjoy the outdoors again?” Many people whose lives are affected by Lyme disease develop a fear of the outdoors. We don’t want to go hiking, camping, or even go for walks in the park anymore.

What is the test called for a lyme disease?

This is one type of immune reactivity test. The other type of immune reactivity test is called a western blot and the newer immunoblot. These tests see if your immune system is making antibodies against Lyme or one of the coinfections.

What labs do elispots test for lyme disease?

There is a current trend among some Lyme Literate Medical Doctors (LLMDs) to retest patients. The elispot tests through Armin Labs, Infectolab, and even IGenex measure if a type of white blood cell called a T Cell has reacted to Lyme or one of the coinfections. This is one type of immune reactivity test. The other type of immune reactivity test is ...

Can lyme disease hide in blood?

Additionally, Lyme can hide in tissues with poor blood flow. So these germs can hide from immune cells, creating a falsely low immune response test. Also, the elispot test offered by Armin and others will not find Lyme or other germs when present up to fifteen percent of the time.

Can you tell if you have recovered from lyme disease?

The truth is, there are no biologic markers or immune system tests that show if you have recovered or are recovering from Lyme and coinfections. Repeating elispot tests like those offered by Armin Labs, or western blot tests and immunoblot tests offered by IGenex (or other labs) do not have any scientific proof to show they can predict the end ...

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Treatment

Side effects

Prognosis

Roles

Medically reviewed by
Dr. Rakshith Bharadwaj
Your provider will work with you to develop a care plan that may include one or more of these treatment options.
Treatment includes antibiotics.
Medication

Oral antibiotics: Early stages of lyme disease are treated with oral antibiotics.

Doxycycline . Amoxicillin . Tetracycline


Intravenous antibiotics: Prescribed for people whose central nervous system is affected by lyme disease.

Ceftriaxone . Penicillin

Nutrition

Foods to eat:

  • Gluten-free eating
  • Low sugar/ carbohydrate diet
  • Consume food that is rich In vitamins to improve immunity

Foods to avoid:

  • Stop dairy intake
  • Avoid refined sugars

Specialist to consult

Primary care physician
Specializes in the acute and chronic illnesses and provides preventive care and health.

Research

  • The first-line standard of care treatment for adults with Lyme disease is doxycycline, a tetracycline antibiotic. Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the cephalosporin, Ceftin. In children under the age of 12, amoxicillin is used because of the possible side effects of doxycycline in small children. The mainstay of treat…
See more on hopkinslyme.org

Terminology

  • Antibiotics, like all medications, have the potential for side effects. Any antibiotic can cause skin rashes and if an itchy red rash develops while on antibiotics, a patient should see their physician. Sometimes symptoms worsen for the first few days on an antibiotic. This is called a Herxheimer reaction and occurs when the antibiotics start to kill the bacteria. In the first 24 to 48 hours, thes…
See more on hopkinslyme.org

Diagnosis

  • The prognosis after treatment of Lyme disease is generally very good. The majority of people are treated with antibiotics and return to their normal health. The prognosis is best when Lyme disease is diagnosed and treated early and worsens when diagnosis and treatment is delayed. Most patients with early Lyme disease infection recover with antibiot...
See more on hopkinslyme.org

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