It is also important to note that many patients still have unpleasant symptoms related to their treatment for months or even years after treatment ends. Unfortunately, it is common for patients to experience fatigue, difficulty sleeping, problems with memory, persistent pain or tingling from neuropathy, and emotional distress.
Full Answer
What happens when you stop treatment for cancer?
For instance, after you stop treatment, a new drug may come to the market, a clinical trial could open, or you may hear of a doctor who has a new way of treating the cancer you have. If so, you can always decide to start treatment again.
How long should I continue to get treatment for cancer?
If you want to continue to get treatment for as long as you can, it’s important to think about the odds of further treatment having some benefit (and what this benefit might be), compared to the possible risks and side effects. Your doctor can help estimate how likely it is the cancer will respond to treatment you might be considering.
How do cancer patients feel after treatment ends?
Some may even feel anxious about the possibility that the cancer could return and worry they may not be doing enough to catch any signs early enough. It is also important to note that many patients still have unpleasant symptoms related to their treatment for months or even years after treatment ends.
Is it normal to have concerns after completing treatment for cancer?
It is normal to have many concerns after completing treatment for cancer and important to feel supported and accompanied in this journey. Q: How does cancer affect a person’s family, friends, and caregivers?
What does end-of-life care mean for people who have cancer?
When a person’s health care team determines that the cancer can no longer be controlled, medical testing and cancer treatment often stop. But the p...
How do doctors know how long a person will continue to live?
Patients and their family members often want to know how long a person who has cancer will continue to live. It’s normal to want to be prepared for...
When should someone call for professional help if they’re caring for a person with cancer at home?
People caring for patients at home should ask them if they’re comfortable, if they feel any pain, and if they’re having any other physical problems...
When is the right time to use hospice care?
Many people believe that hospice care is only appropriate in the last days or weeks of life. Yet Medicare states that it can be used as much as...
What are some ways to provide emotional support to a person who is living with and dying of cancer?
Everyone has different needs, but some worries are common to most dying patients. Two of these concerns are fear of abandonment and fear of being a...
What other issues should caregivers be aware of?
It’s just as important for caregivers to take care of their own health at this time. Family and caregivers are affected by their loved one’s heal...
What are some topics patients and family members can talk about?
For many people, it’s hard to know what to say to someone at the end of life. It’s normal to want to be upbeat and positive, rather than talk about...
How should caregivers talk to children about a family member's advanced cancer?
Children deserve to be told the truth about a family member’s prognosis so they can be prepared if their loved one dies. It’s important to answer...
How does cancer cause death?
Every patient is different, and the way cancer causes death varies. The process can depend on the type of cancer, where it is in the body, and how...
What happens after cancer treatment?
A: We hear from many patients that the time after completing active cancer treatment is a time when they feel ‘unsettled’ and worry about an uncertain future. Some may even feel anxious about the possibility that the cancer could return and worry they may not be doing enough to catch any signs early enough. It is also important to note that many patients still have unpleasant symptoms related to their treatment for months or even years after treatment ends. Unfortunately, it is common for patients to experience fatigue, difficulty sleeping, problems with memory, persistent pain or tingling from neuropathy, and emotional distress.
How to deal with cancer fears?
Information and education are essential to regain some control. Sharing one’s fears and worries with loved ones, a support group, or seeking professional help can and will bring relief. It is normal to have many concerns after completing treatment for cancer and important to feel supported and accompanied in this journey.
What is the end of treatment summary?
A: Survivors can ask their oncologist for an end of treatment summary that outlines the original diagnosis, including the cancer type, stage, and the treatments received. These details will be important to future health care providers throughout their lifetime. This information should also clearly state the proposed schedule for follow-up visits and recommended scans and other testing to monitor the person's recovery, also called a "survivorship care plan."
Why do patients have follow up visits?
Patients can also use these visits to have deeper conversations about their future health, seek advice on how to manage side effects, or get referrals to supportive services. These visits may serve as a reminder to address the important issues of maintaining other areas of their general health. Overall, the goal of these discussions is to make sure that the patient has proper follow-up for their cancer-related and other health-related problems and that the patient knows how their primary care physician will be involved.
Do cancer survivors want to give back?
Many cancer survivors want to give back, and you will find them volunteering or acting as advocates at cancer clinics and philanthropic organizations. It's also important to recognize that many cancer survivors face an uncertain future and feel unsettled.
Does cancer affect the family?
A: Cancer affects not just the individual who received the diagnosis, but the entire family unit . Caregivers and well-wishers help support a patient during cancer treatment, and their love, support, and worry will continue after treatment as well. This means they may also need their own emotional support during this time.
How to treat cancer side effects?
Targeted therapy. Hormone therapy. Talk with your provider about your options and weigh the risks and benefits. Most cancer treatments have side effects that can affect the quality of your life. Some people decide that the side effects are not worth the small benefit from treatment. Other people choose to continue treatment for as long as possible.
What happens when you have advanced cancer?
When you have advanced cancer, you move into a different stage of life. It is a time when you start to think about the end of life. This is not easy, but it doesn't mean you don't have options. Some people live for years with advanced cancer. Learning about advanced cancer and knowing your options can help you make decisions that work best for you.
What is the best treatment for cancer?
Palliative care. This is treatment that helps prevent and treat symptoms and side effects from cancer. It can also help you with emotional and spiritual struggles while facing cancer. Palliative care can help improve your quality of life. You may receive this type of care at every stage of cancer treatment. Hospice care.
What is it called when cancer stops working?
But not all cancer can be cured. Sometimes, treatment stops working or the cancer reaches a stage where it cannot be treated. This is called advanced cancer.
What is clinical trial?
Clinical trials. These are research studies that look for new ways to treat cancer. There are benefits and risks to being in a clinical trial, and each one has rules about who can participate. If you're interested, ask your provider about clinical trials for your type of cancer.
Is it easy to face the end of your life?
It's not easy to face the end of your life. Yet living day-to-day and working to appreciate your life and the people around you can bring a sense of fulfillment and satisfaction. This can help you make the most of the time you have.
Is it normal to feel anger when you have cancer?
As a person with cancer, you may have felt anger, denial, sadness, anxiety, grief, fear, or regret. These feelings may be even more intense now. It's normal to feel a range of emotions. How you deal with your feelings is up to you. Here are things that may help.
What happens after you stop cancer treatment?
For instance, after you stop treatment, a new drug may come to the market, a clinical trial could open, or you may hear of a doctor who has a new way of treating the cancer you have. If so, you can always decide to start treatment again. No matter what you choose, your health care team can provide emotional and physical comfort and care along ...
What to do if you are depressed?
If you’re depressed, you may lose focus on your goals. Before you decide, speak to a counselor, ask your doctor about starting depression medication, or both. Look at other options. Some people like to exhaust all possible avenues for treatment before they make up their mind.
Does cancer make a difference in how long you live?
Your cancer is advanced, and further treatment won’t make a big difference in how long you live.
What happens when cancer is no longer controlled?
When a cancer patient’s health care team determines that the cancer can no longer be controlled, medical testing and cancer treatment often stop. But the person’s care continues, with an emphasis on improving their quality of life and that of their loved ones, and making them comfortable for the following weeks or months.
What happens when you have cancer?
Digestive system: If cancer is in the digestive system (e.g., stomach, pancreas, or colon), food or waste may not be able to pass through, causing bloating, nausea, or vomiting.
How does a caregiver help a cancer patient?
The patient may have good days and bad days, so they may need more help with daily personal care and getting around. Caregivers can help patients save energy for the things that are most important to them. Appetite changes: As the body naturally shuts down, the person with cancer will often need and want less food.
What is an advance directive for cancer?
Experts strongly encourage patients to complete advance directives, which are documents stating a person’s wishes for care. They also designate who the patient chooses as the decision-maker for their care when they are unable to decide. It’s important for people with cancer to have these decisions made before they become too sick to make them. However, if a person does become too sick before they have completed an advance directive, it’s helpful for family caregivers to know what type of care their loved one would want to receive. More information about advance directives can be found below in the Related Resources section of this fact sheet.
Why is it important to have advance directives for cancer patients?
It’s important for people with cancer to have these decisions made before they become too sick to make them. However, if a person does become too sick before they have completed an advance directive, it’s helpful for family caregivers to know what type of care their loved one would want to receive.
Why do people with cancer lose appetite?
The loss of appetite is caused by the body’s need to conserve energy and its decreasing ability to use food and fluids properly. Patients should be allowed to choose whether and when to eat or drink.
Why is communication important in end of life?
Research has shown that if a person who has advanced cancer discusses their options for care with a doctor early on, that person’s level of stress decreases and their ability to cope with illness increases. Studies also show that patients prefer an open and honest conversation with their doctor about choices for end-of-life care early in the course of their disease and are more satisfied when they have this talk.
What are the side effects of cancer treatment?
Childhood cancer survivors experience some of these late side effects: Heart problems, including an increased risk of heart attacks. Blood vessel problems, including an increased risk of stroke.
What to do if you have cancer and no longer seeing a doctor?
If you were treated for cancer many years ago or are no longer seeing a cancer specialist for checkups, talk to your primary care doctor about late effects . If you think you might be experiencing late effects or your doctor isn't sure what late effects to watch for, ask for a referral to a cancer specialist.
What happens if you have cancer years ago?
Increased risk of other types of cancers. Nerve damage. If you were treated for cancer many years ago, you may assume any health problems you have are related to aging, not past cancer treatments. Tell your doctor what you know about your childhood cancer treatments.
How to get rid of cancer?
Exercising and eating a healthy diet with lots of fruits and vegetables can help make you stronger and healthier. Avoiding tobacco, excessive alcohol use and prolonged sun exposure also are very helpful. Long-term side effects of cancer treatment.
Can cancer affect children?
If you underwent cancer treatment as a child, you may be at risk of many of the same late side effects of treatment as people who were adults during their cancer treatments. But you may also be at risk of additional late side effects. That's because children's bones, tissues and organs are growing rapidly during treatment, ...
Can chemotherapy cause infertility?
Different chemotherapy drugs cause different late effects. So if you didn't take the chemotherapy drugs that can cause infertility, then you aren't believed to be at risk of that particular late effect. Late effects of radiation and surgery will affect only the area of the body exposed to them.
Can radiation affect your body?
Late effects of radiation and surgery will affect only the area of the body exposed to them. So, for example, if you had radiation to a part of your body other than your head or neck, then you won't be at risk of cavities and tooth decay as a result of your radiation therapy.
How many people with cancer continue chemotherapy?
Decisions about whether to continue or stop chemotherapy are made by the patient and doctor together. About one-third of patients with advanced cancer continue to receive chemotherapy or other treatment near the end of life.
How does nutrition help cancer patients?
Nutrition support can improve health and boost healing during cancer treatment. The goals of nutrition therapy for patients during the last days of life are different from the goals for patients in active cancer treatment and recovery. In the final days of life, patients often lose the desire to eat or drink and may not want food or fluids that are offered to them. Also, procedures used to put in feeding tubes may be hard on a patient.
What is PDQ cancer?
This PDQ cancer information summary has current information about patient care during the last days to last hours of life. It is meant to inform and help patients, families, and caregivers. It does not give formal guidelines or recommendations for making decisions about health care.
What is a do not resuscitate order?
A do-not-resuscitate (DNR) order is written by a doctor to tell other health professionals not to perform CPR at the moment of death, so that the natural process of dying occurs. If the patient wishes, he or she can ask the doctor to write a DNR order. The patient can ask that the DNR order be changed or removed at any time.
How does cancer affect caregivers?
Since caregiver suffering can affect the patient's well-being and the caregiver's adjustment to loss , early and constant support of the caregiver is very important.
What are the goals of giving fluids at the end of life?
The goals of giving fluids at the end of life should be discussed by patient, family, and doctors. Nutrition Support. The goals of nutrition support for patients in the last days of life are different from the goals during cancer treatment. Making plans for nutrition support in the last days is helpful.
What happens when a child is terminally ill?
When a child is terminally ill, end-of-life discussions with the child's doctor may reduce the time the child spends in the hospital and help the parents feel more prepared. This summary is about end of life in adults with cancer and where noted, children with cancer.
What is post treatment life?
Barring any severe complications, the transition to post-treatment life means working on your own to rebuild your strength and stamina. The bonds you form with your health care team during treatment are unique. And it can be challenging for someone to adjust back to life like it was before cancer.
How long does it take for mucositis to heal?
Some side effects may linger or take longer to heal, like my mucositis that took 12 weeks to heal. The team will try to prepare you with what to expect, but every patient is different. A positive attitude and believing in yourself are instrumental in a good transition. Be aware of possible ongoing side effects.
Do side effects heal after treatment?
During treatment, one of the things that keeps you going is the thought that most of the worst side effects will heal soon after treatment ends. You mentally prepare for the best outcome, but reality can be significantly different. Your “new normal” may include managing many of your side effects long after treatment ends.
What is immunotherapy before making a decision?
Before making a decision, he encourages you to explore all your treatment options — and the likely outcome of each one — with your doctors. Cancer treatments are advancing all the time. For example, immunotherapy has radically changed the outcomes for some types of cancers.
Is it easy to talk about end of life?
These conversations are not easy. But thinking things through carefully — and being clear about what’s important to you and your family as you face end-of-life decisions — will make a challenging time easier for everyone.
Can cancer cause pain?
Cancer treatment is difficult and draining, and can cause a variety of unpleasant side effects. Patients with cancer sometimes get tired of feeling sick, feeling fatigued and/or living with pain.
What to expect when someone with cancer is nearing death?
This information has been written for the caregiver, but many patients want this same information for themselves. It gives some signs that death may be close and gives the caregivers some ideas about ways they may be able to help. The signs of death being near can be different ...
What to do after death?
After death it’s all right if you want to sit with the person for a while. There’s no rush to get anything done right away. Many families find this is an important time to pray or talk together and reaffirm their love for each other, as well as for the person who has passed away.
What to do if you call 911 after death?
An important note: If you call 911 or Emergency Medical Services (EMS), even after an expected death at home, the law often requires that EMS try to revive the patient or take them to a hospital. This can complicate the situation and delay funeral plans. Be sure that family and friends are ready and know exactly whom to call, so that they don’t dial 911 in confusion or panic.
What to do if a patient is not in hospice?
If the patient is not in hospice, talk with the doctor so that you will know exactly what to do at the time of death. Just like the timing of the dying process cannot be predicted, it's also hard to predict what exactly will happen in the final stage of life and especially near death.
How often should you change your position after pain medicine?
Help the patient turn and change positions every 1 to 2 hours. It's best to time any position changes to be about 30 minutes after pain medicine is given. Speak in a calm, quiet voice and avoid sudden noises or movements to reduce the chances of startling the patient.
What are the possible changes in body function?
Needs help with nearly everything. Less and less interest in food, often with very little food and fluid intake for days. Trouble swallowing pills and medicines.
How long can pain medication be used?
Continue pain medicines up to the end of life.
