Treatment FAQ

what to expect after nuclear treatment for graves disease

by Michaela Fritsch Published 2 years ago Updated 2 years ago
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A swollen or tender neck and feeling flushed
This is more common if you still had a large part of your thyroid gland when you have radioactive iodine treatment. Some people also feel flushed. Rarely, people can feel pain in their neck. Tell your doctor or nurse if any of these symptoms happen.
May 24, 2021

Medication

Symptoms of Graves' ophthalmopathy may even get worse for three to six months. After that, the signs and symptoms of Graves' ophthalmopathy usually become stable for a year or so and then begin to get better, often on their own. If you have Graves' disease, make your mental and physical well-being a priority:

Procedures

Radioiodine therapy may increase your risk of new or worsened symptoms of Graves' ophthalmopathy. This side effect is usually mild and temporary, but the therapy may not be recommended if you already have moderate to severe eye problems. Other side effects may include tenderness in the neck and a temporary increase in thyroid hormones.

Therapy

Thyroidectomy should be considered for anyone with Graves’ disease (GD) and moderate-to-severe eye disease, or smokers with GD due to increased risk of exacerbation of eye disease after radioactive iodine.

Nutrition

Graves' ophthalmopathy doesn't always improve with treatment of Graves' disease. Symptoms of Graves' ophthalmopathy may even get worse for three to six months. After that, the signs and symptoms of Graves' ophthalmopathy usually become stable for a year or so and then begin to get better, often on their own.

How long does it take for Graves'disease to go away?

What are the side effects of radioiodine therapy for Graves'disease?

When is thyroidectomy indicated for patients with Graves disease?

How long does it take for Graves'ophthalmopathy to improve?

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How long does it take to feel better after radioactive iodine?

In almost all cases, your thyroid hormone levels will return to normal or below normal after radioactive iodine treatment. This may take 8 to 12 weeks or longer.

What happens to the thyroid after radioactive iodine treatment?

Over two-thirds of those who have radioactive iodine treatment will develop hypothyroidism (an underactive thyroid). This can occur anytime from one month after the treatment and is most common within the first 12 months after treatment but can occur later.

What can you not do after radioactive iodine treatment?

Do not share cups, glasses, plates or eating utensils. Wash items promptly after using. Other people may use items after they are washed. Do not share towels or washcloths.

What are the long-term side effects of radioactive iodine for hyperthyroidism?

NCI study finds long-term increased risk of cancer death following common treatment for hyperthyroidism. New study findings show an association between the dose of a common treatment for hyperthyroidism and risk of death from solid cancers.

Do I still have Graves disease after radioactive iodine treatment?

The use of radioactive iodine (131I) in the treatment of Graves' disease results frequently in hypothyroidism requiring thyroid hormone supplementation. Relapse of Graves' disease months after inadequate treatment with 131I is well-recognized.

What is the most common complication of radioiodine therapy?

Risks and side effectsNeck tenderness and swelling.Nausea and vomiting.Swelling and tenderness of the salivary glands.Dry mouth.Taste changes.

Will I gain weight after radioactive iodine treatment?

Treatment of hyperthyroidism with RAI or anti-thyroid medications is associated with an increased risk of gaining weight and even developing obesity. This risk is slightly higher with RAI therapy compared to medications.

What are the side effects of radioactive iodine?

What are the side effects of radioactive iodine?Neck tenderness and swelling.Nausea.Swollen salivary glands.Loss of taste or taste change.Dry mouth/insufficient salivary production.Dry eyes.Excessive tearing from the eyes.

How long does it take for Nuclear Medicine to leave the body?

It depends on the isotope that is being used for your scan. The most commonly used radioisotopes will have left your body within 1 day. Others might take 3 days, and some might take few weeks.

How long am I radioactive after radioactive iodine treatment?

Your doctor will give you a wallet card with information about your treatment. The card states that you received treatment in Nuclear Medicine and that you may give off small amounts of radiation for up to 3 months after your treatment.

How successful is radioactive iodine treatment?

Conclusion: Radioactive iodine treatment is an effective modality for definitive treatment of hyperthyroidism with long-term cure approaching 80%.

How long do you have to quarantine after radioactive iodine treatment?

Avoid personal contact for about 3 to 7 days after treatment. In those first 3 days after therapy, you should stay a safe distance away from others (6 feet away, approximately). It's a good idea to avoid public places.

What happens if you destroy your thyroid gland?

And, if you destroy your thyroid gland, it turns out that that may have consequences on your metabolism. Anectodally, you've probably already heard stories about people gaining weight after their procedure.

How long can you live after iodine treatment?

You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. For most people, this means that you can expect to live at 80-90% of your 'normal'.

How long does radioactive iodine affect sperm count?

Important to men is the fact that radioactive iodine can cause short-term reductions in sperm count for up to 2 years after your procedure (8). This may or may not be important to you based on your age, your gender, and whether or not fertility is something you are interested in but, again, it's worth knowing about.

How to avoid weight gain after RAI?

Your best bet to AVOID weight gain after RAI is to go into your procedure with a normal weight and to maintain a healthy lifestyle both before and after. Just realize that you will always be in a 'sensitive' category and you will be more likely to gain weight compared to people with their thyroid intact. #3.

How long does it take for a RAI to fade?

The good news is that this radioactivity does fade over a short period of time (usually 5 to 7 days) but the bad news is that you need to stay under certain precautions during this time.

Can you survive after RAI?

You can obviously survive after RAI (otherwise they wouldn't do the procedure) but I want to teach you how to thrive afterward. And to key to getting there is to understand what happens to your body after this procedure and how it influences your thyroid function.

Can you gain weight after radioactive iodine treatment?

You may gain weight. This is probably not what you want to hear, especially if this is a procedure that is necessary for your health, but it's still important to know about it. You may gain weight after you undergo radioactive iodine treatment.

What happens after thyroid surgery?

Once the thyroid is removed, the surgeon closes up all the layers, and may or may not leave behind a small drain to remove any fluid that might build up in the space where the thyroid was previously . You will be observed for a period of time after surgery to ensure you are recovering well.

How long should I take beta blockers after thyroid surgery?

Beta blockers may be continued for a few days after surgery and then may be tapered or stopped.

What supplements should I take before thyroid surgery?

Ensure you are taking your anti-thyroid medications, and any beta blockers as prescribed to provide optimal control of your thyroid hormone levels before surgery. Your surgeon may talk to you about starting a calcium supplement leading up to surgery, and a vitamin D supplement if you are deficient.

Can thyroid surgery cause fluid build up?

The risk of infection is exceedingly low. Swelling or fluid build-up (seroma) may occur at the surgical site after surgery. Patients will require lifelong thyroid hormone replacement. During surgery, the handling of the thyroid gland can cause release of additional thyroid hormone.

Where are parathyroid glands located after surgery?

This is multifactorial for patients with GD. At the time of surgery, your parathyroid glands, which typically are located in the back part of the thyroid, must be carefully preserved but may require a period of recovery after surgery.

Can thyroid surgery cause thyroid storm?

If you are well controlled prior surgery, your body should be protected from the effects of this extra hormone; however, if your hormones are not well controlled, this could lead to a dangerous condition of thyroid storm.

Is Graves' risk higher than other patients?

However due to the increased blood flow to the thyroid gland in GD, this risk is higher for Graves’ patients than patients undergoing thyroid surgery for other reasons. The risk of infection is exceedingly low. Swelling or fluid build-up (called seroma) may occur at the surgical site after surgery.

What are Graves antibodies?

Second, you may still be dealing with Graves’ antibodies, which is a separate issue from not having any thyroid hormone production. The Graves’ antibodies are responsible for conditions like thyroid eye disease (TED) and disfiguring skin conditions (pretibial myxedema, acropachy).

What is Graves disease?

Graves’ disease is an autoimmune disease that leads to overactivity of the thyroid gland (hyperthyroidism). I have Hypothyroid Mom readers struggling with hypothyroidism now since treatment for their Graves’ with radioactive iodine (RAI) or thyroidectomy. I welcome Barbara Lougheed, author of the book Tired Thyroid: From Hyper to Hypo ...

How long does it take for antibodies to increase after RAI?

However, antibodies usually increase significantly during the first three months after RAI, then slowly decrease, but levels can still remain above the reference range even after five years. [3] . In some patients, as the antibodies regress, their Thyroid Stimulating Hormone (TSH) returns. [4] .

Does destroying the thyroid cause antibodies?

Destroying the thyroid gland may have no effect on the Graves’ antibodies, since white blood cells produce the antibodies, not the thyroid gland. In a few unfortunate patients, RAI may actually increase the antibodies and worsen or induce thyroid eye disease, which can be painful and disfiguring. [2] .

What is Graves disease?

Graves’ disease is a common cause of an overactive thyroid gland (hyperthyroidism). Studies have shown that having Graves’ disease may have negative impact on patient’s quality of life. Graves’ disease is usually treated with antithyroid drugs, radioactive iodine therapy, or surgery.

What is radioactive iodine used for?

Radioactive iodine: this plays a valuable role in diagnosing and treating thyroid problems since it is taken up only by the thyroid gland. I-131 is the destructive form used to destroy thyroid tissue in the treatment of thyroid cancer and with an overactive thyroid.

Is radioactive iodine therapy less desirable?

If these findings are confirmed in other studies in other countries, it would suggest that radioactive iodine therapy may be less desirable in the long term as compared to antithyroid drugs or surgery. — Sun Y. Lee, MD.

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