Treatment FAQ

what is treatment burden in patient perspective

by Kennedi Altenwerth Published 2 years ago Updated 1 year ago
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Burden of treatment is the workload of health care and its impact on patient functioning and well-being. 1 “Workload” consists of the demands placed on a patient by treatment for condition (s) and any associated self-care (eg, health monitoring, diet, exercise).

Full Answer

What is the burden of treatment?

Burden of treatment refers to the workload of health care and its impact on patient functioning and well-being. There are a number of patient-reported measures that assess burden of treatment in single diseases or in specific treatment contexts.

What factors influence treatment burden in addiction treatment?

Factors that patients reported as increasing treatment burden included too many medications and appointments, barriers to accessing services, fragmented and poorly organized care, lack of continuity, and inadequate communication between health professionals.

Can clear information on treatment burden in guidelines improve decision making?

Correspondence to: C C Dobler [email protected] Claudia Dobler and colleagues argue that clear information on treatment burden in guidelines could improve decision making Implementation of medical treatment regimens demands a lot of time and effort and can result in substantial burden for patients with chronic conditions.

Is there a qualitative literature on treatment burden in stroke?

The aim of this systematic review is to examine the qualitative literature on treatment burden in stroke from the patient perspective. The search strategy centred on: stroke, treatment burden, patient experience, and qualitative methods. We searched: Scopus, CINAHL, Embase, Medline, and PsycINFO. We tracked references, footnotes, and citations.

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What does treatment burden mean?

Treatment burden refers to the impact on patient functioning and well-being imposed by the demands on a patient and their caregiver's time and energy by both treatments and aspects of self-care such as health monitoring, diet and exercise [3].

What does patient perspective mean?

“Patient perspective” is the patient's experience of PH and its impact on him/her and caregivers, including symptomatic, intellectual, psychosocial, spiritual and goal-oriented dimensions of the disease and its treatment.

What does it mean to treat the whole patient?

Whole-person care is the patient-centered optimal use of diverse healthcare resources to deliver the physical, behavioral, emotional, and social services required to improve care coordination, well-being, and health outcomes while respecting patients' treatment choices.

Why is understanding patient perspective important?

Identifying patients' standpoints on their health condition and treatments offers an opportunity for critical discussion of differences of opinions and promotes communication exchange and agreement about the appropriate course of action.

Why are different perspectives important in healthcare?

Understanding how to leverage and coordinate different perspectives will help to cut down on miscommunications and improve patient care. Errors can be avoided — and lives saved — by reducing the common tendency to view complex clinical issues through just one lens.

How do you elicit patient perspective?

Tips for Clinicians: Eliciting the Patient's PerspectiveWhat do you think is wrong?What do you think has caused the problem?What are you afraid this might be?What have you done to relieve the problem? ... Have you seen other health care professionals?What do you think would help you?More items...

Why is it important to treat patients as individuals?

Patients often lose their independence when they enter care, which puts their dignity at risk. Person-centred care enables you to maintain that dignity by respecting their wishes and treating them with compassion and empathy.

How do you treat a patient as a whole?

What is a “whole person understanding” of a patient? To succeed in providing health services centered around a patient, providers must meet patients where they are: functionally, emotionally, and socially. They must understand the values their patients hold, based on their makeup as a whole.

How do you treat patient care?

Best practices for taking better care of patientsShow respect. ... Express gratitude. ... Enable access to care. ... Involve patients' family members and friends. ... Coordinate patient care with other providers. ... Provide emotional support. ... Engage patients in their care plan. ... Address your patients' physical needs.More items...•

What is a healthcare perspective?

The perspective is the point of view adopted when deciding which types of costs and health benefits are to be included in an economic evaluation. Typical viewpoints are those of the patient, hospital/clinic, healthcare system or society.

What is the importance of understanding our patient's perception or concept of health and illness?

Acquiring a better awareness of a patient's health beliefs may help healthcare providers identify gaps between their own and the patient's understanding of his or her health situation. Consequently, this may lead to treatment choices more acceptable to the patient's expectations and needs.

Why we need to understand the patient experience better?

Thus, a clearer understanding of the patient experience will assist clinicians in improving that experience at the point of care, guide further research into the topic, and provide clear directions for quality improvement efforts and health-care policies.

What makes a good doctor a qualitative study of patient perspectives?

The most frequently mentioned qualities used to describe what makes a good doctor included 'caring', 'compassionate', 'trustworthy' and 'knowledgeable'. Conclusion: Our studyied elucidated that patient satisfaction is heavily influenced by physician communication and 'thoroughness' of care.

What are key elements of the physician/patient relationship?

Trust, knowledge, regard, and loyalty are the 4 elements that form the doctor-patient relationship, and the nature of this relationship has an impact on patient outcomes.

What is the role of a manager in a hospital?

Hospital managers oversee the general administration of hospitals and other provider facilities. Their central goals are to prioritize patient safety, as well as to ensure the financial and operational sustainability of the sites they manage.

What is the integrative health model?

Integrative health is an individualized, client-centered model of promoting optimal health and wellness, combining a whole person approach with evidence-based strategies to reduce disease risk by turning around lifestyle behaviors.

What are the components of treatment burden?

Treatment burden in chronic heart failure includes the work of developing an understanding of treatments, interacting with others to organize care, attending appointments, taking medications, enacting lifestyle measures, and appraising treatments. Factors that patients reported as increasing treatment burden included too many medications and appointments, barriers to accessing services, fragmented and poorly organized care, lack of continuity, and inadequate communication between health professionals. Patient “work” that fell outside of the coding frame was exclusively emotional or spiritual in nature.

What is normalization process theory?

We hypothesized that this theory would be a useful conceptual tool because it provides a robust analytic framework for understanding the organization and operationalization of tasks (their implementation), of making them routine elements of daily life (their embedding), and of sustaining embedded practices in their social contexts (their integration).24 NPT was developed through rigorous qualitative research24–26and has been successfully used to understand the “work” involved in sickness careers.27It explains how the work of enacting an ensemble of practices (here, the components of treatment burden) is accomplished through the operation of 4 mechanisms (Table 1▶): coherence (sense-making work), cognitive participation (relationship work), collective action (enacting work), and reflexive monitoring (appraisal work).24We aimed to use NPT to identify, describe, and understand the components of treatment burden experienced by patients with chronic heart failure.

Is nonadherence a problem for chronic disease?

Unsurprisingly, patients with chronic illness who perceive their management plans as more demanding are less likely to adhere to treatments.16,18Nonadherence is a common problem for patients with chronic disease, with only 50% of them adhering to prescribed medication.14,19Increasing treatment burden therefore has the potential to induce nonadherence, wasted resources, and poor outcomes, especially in those with complex comorbidities,15thus making it an area worthy of further investigation.

What is burden of treatment?

Burden of treatment is the workload of healthcare and its effect on patient functioning and wellbeing. 1 The cumulative treatment workload for patients with chronic conditions when enacting all recommendations in disease specific guidelines can be overwhelming. 2

What information is needed for treatment burden?

Information on treatment burden could include information on foods that should be avoided, extra time spent on grocery shopping and cooking, challenges when eating out, the typical number of consultations with a dietitian, transport requirements to see a dietitian, time spent documenting the diet, and required intensity of blood tests to monitor electrolytes.

What does Claudia Dobler argue about treatment burden?

Claudia Dobler and colleagues argue that clear information on treatment burden in guidelines could improve decision making

How long does pulmonary rehabilitation last?

If the treatment burden was made explicit, the guideline could include a statement like this: “A typical effective pulmonary rehabilitation programme lasts 8 to12 weeks with two to three sessions a week, lasting one hour each. Many pulmonary rehabilitation programmes are fully or partially conducted at hospitals, therefore travel time to exercise classes may be added to the treatment burden. Although exercise is beneficial, more strenuous exercise is likely to be associated with (temporary) discomfort from shortness of breath.”

What should be the future guidelines for treatment decisions?

If future guidelines are to help clinicians and patients to make treatment decisions taking into account patients’ values and preferences, they should explicitly state the treatment burden associated with enacting different recommendations (the quantifiable workload as well as the potential effect on a patient’s life).

What is a guideline recommendation?

Guideline recommendations, however, are traditionally made from a perspective that places the highest value on achieving certain clinical outcomes (such as reducing shortness of breath or increasing survival).

Why should clinicians discuss values and preferences with patients?

Clinical practice guidelines should also explicitly recommend that clinicians discuss values and preferences with patients, especially for treatments associated with a high workload. This would help clinicians to understand how individual patients prioritise different outcomes and treatment burden and would help patients to understand what components of their treatment are the essentials, even on a bad day, so that they can prioritise treatments appropriately.

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