Treatment FAQ

what does lymphadema treatment feel like

by Melba Klocko Jr. Published 2 years ago Updated 2 years ago
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Procedures

Swelling of part or all of your arm or leg, including fingers or toes The swelling caused by lymphedema ranges from mild, hardly noticeable changes in the size of your arm or leg to extreme changes that make the limb hard to use. Lymphedema caused by cancer treatment may not occur until months or years after treatment.

Therapy

Pitting does not happen when you press on skin if you have lymphedema. Your doctor may measure the circumference of the affected arm or leg to determine how swollen it is compared to the other one. The doctor will look for signs of infection, including fever, redness, warmth and tenderness.

Self-care

Other symptoms and signs that can accompany the swelling include fever or chills. Lymphedema (known as primary lymphedema) may be present at birth and includes the genetic condition known as Milroy disease. Lymphedema praecox is the most common form of primary lymphedema.

Nutrition

Swelling from lymphedema can look similar to the more common edema caused by leakage from tiny blood vessels under the skin. In most cases of lymphedema, the lymphatic system has been injured so that the flow of lymph is blocked either temporarily or permanently.

What are the symptoms of lymphedema after cancer treatment?

What happens if you press on skin with lymphedema?

What are the symptoms of lymphedema praecox?

What does lymphedema look like under the skin?

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Is lymphedema treatment painful?

Lymphedema Pain Management. "Lymphedema is the most concerning complication of a lymph node dissection,” says Doreen Agnese, MD, associate professor of surgery at the OSUCCC – James. “It's painful and your range of motion becomes limited.

How does lymphedema make you feel?

Common signs and symptoms of lymphedema can include: Swelling in part of the body (such as your breast, chest, shoulder, arm, or leg) Skin feeling tight or hard, changing in texture, looking red, or feeling hot. New aching, tingling, numbness, or other discomfort in the area.

What is the pain like for lymphedema?

Lymphedema can cause swelling of a toe or toes all the way to extreme swelling of one or both legs. Symptoms also include restricted movement and feeling heavy or tight along the whole leg. There can be leg pain and aching.

Is lymphedema painful to touch?

At first, lymphedema in an arm or leg may cause symptoms such as: swelling and a heavy or achy feeling in your arms or legs that may spread to your fingers and toes. a dent when you press on the swollen area. swelling that is soft to the touch and is usually not painful at first.

Can you feel lymphatic drainage?

One sensation that many people feel during a lymph drainage massage is the feeling of fluid flowing under the skin. In some people who have a fast digestive system, the lymphatic drainage massage may make them have to rush to the bathroom either during the massage or right after.

What should you not do with lymphedema?

Avoid trauma or injury to the affected area. Avoid heavy lifting with the affected arm. No new tattoos in the affected area. Do not wear tight clothing, bands, shoes, or jewelry on the affected area.

What is the best painkiller for lymphedema?

Two early-stage clinical trials led by Stanford researchers have shown that ketoprofen can improve skin damage in patients with lymphedema.

Does lymphedema make you tired?

Fatigue and Lymphedema Although swelling in the legs, feet, arms and hands is perhaps the most recognizable symptom of lymphedema, persistent and chronic fatigue is another common symptom, and for some people, it can become so severe, even normal daily activities can become difficult.

What causes lymphedema to flare up?

Lymphedema occurs when the lymph vessels are not able to adequately drain lymph fluid, usually from an arm or leg. The most common causes of lymphedema include: Cancer. If cancer cells block lymph vessels, lymphedema may result.

Does massage help lymphedema?

Lymph drainage massage is a useful technique in treating lymphedema and other health conditions. If you have symptoms of trapped lymph fluid in the body, talk to your doctor about the benefits of this type of massage.

Is heat or ice better for lymphedema?

Don't use ice packs on the treated area. Protect your skin with warm clothing in the winter. Get to or stay at a healthy weight. This can help keep lymphedema from getting worse.

Does lymphedema shorten your life?

As untreated lymphedema prolongs, it can develop into lymphangiosarcoma – a lymph-related cancer that limits a patient's life expectancy from a few months to two years. Untreated or mismanaged lymphedema can also lead to sepsis, a scary, potentially terminable infection that rapidly spreads throughout the entire body.

What is the goal of lymphedema treatment?

The goal is to maintain clean and well-moisturized skin to ward off infection.

How long do you have to wrap your body for lymphatic drainage?

Affected body parts usually need to stay wrapped up 24 hours a day — except during bathing.

What is primary lymphedema?

Primary lymphedema is lymphedema that happens on its own, not caused by another condition or injury. It can occur in children born with impaired or missing lymph nodes. Globally, a common cause of lymphedema is an infection by Wuchereria bancrofti roundworms. This is known as lymphatic filariasis.

Why do my arms swell up after a surgery?

Lymphedema is a condition that causes one or more of your arms or legs to become swollen due to a buildup of lymph fluid. This often occurs in people who’ve had a surgery during which their lymph nodes were damaged or removed.

What is lymphatic drainage?

Manual lymphatic drainage, which is targeted massage or manipulation of soft tissue, can aid in draining lymphatic fluid. Your CDT provider will likely massage you and also show you some techniques that you can perform on yourself to promote drainage.

What is the difference between primary and secondary lymphedema?

For example, up to 40 percent of those who undergo surgery for breast cancer will experience it, as this surgery usually involves a sentinel lymph node biopsy. This type of lymphedema is called secondary lymphedema. Primary lymphedema is lymphedema that happens on its own, not caused by another condition or injury.

How many people have lymphedema?

According to the World Health Organization. Trusted Source. , it’s responsible for causing lymphedema in over 15 million people worldwide. Lymphatic filariasis is one of the world’s leading causes of disability. Trusted Source. . No matter the origin, everyone with lymphedema experiences pain and discomfort.

What are the complications of lymphedema in the arm?

Complications. Lymphedema in your arm or leg can lead to serious complications, such as: Infections . Possible infections that can result from lymphedema include a serious bacterial infection of the skin (cellulitis) and an infection of the lymph vessels (lymphangitis).

What is primary lymphedema?

Primary lymphedema is a rare, inherited condition caused by problems with the development of lymph vessels in your body. Specific causes of primary lymphedema include: Milroy's disease (congenital lymphedema). This disorder begins in infancy and causes lymph nodes to form abnormally.

Why do my arms and legs swell?

Sometimes both arms or both legs swell. Lymphedema is most commonly caused by the removal of or damage to your lymph nodes as a part of cancer treatment. It results from a blockage in your lymphatic system, which is part of your immune system. The blockage prevents lymph fluid from draining well, and the fluid buildup leads to swelling.

What causes lymph nodes to form abnormally?

Specific causes of primary lymphedema include: Milroy's disease (congenital lymphedema). This disorder begins in infancy and causes lymph nodes to form abnormally.

What is the lymphatic system?

Your body's lymphatic system is part of your immune system, which protects you against infection and disease. The lymphatic system includes your spleen, thymus, lymph nodes and lymph channels, as well as your tonsils and adenoids.

What to do if you have swelling in your arm?

Make an appointment with your doctor if you notice persistent swelling in your arm or leg. If you already have the diagnosis of lymphedema of a limb, see your doctor if there is a sudden dramatic increase in the size of the involved limb, as it may suggest a new process is occurring.

How to get rid of cancer on your arm?

For example, shave with an electric razor, wear gloves when you garden or cook, and use a thimble when you sew. If possible, avoid medical procedures, such as blood draws and vaccinations, in your affected limb. Rest your arm or leg while recovering. After cancer treatment, exercise and stretching are encouraged.

What does it feel like to have lymphedema?

Symptoms. Lymphedema causes swelling with a feeling of heaviness, tightness or fullness, usually in an arm or leg . In most cases, only one arm or leg is affected. Swelling in the leg usually begins at the foot, and then moves up if it worsens to include the ankle, calf and knee. Additional symptoms can include:

How to treat lymphedema in legs?

Doing exercises to help reduce swelling. Keeping the affected limb clean and dry and periodically applying lubricating lotions. If lymphedema affects your legs, avoid wearing socks with tight bands across the top.

How long does lymphedema last after surgery?

How long lymphedema lasts depends on its cause. If lymphedema develops immediately after surgery, it can clear up within one week as the swelling goes down and the arm or leg is elevated to allow better drainage. If surgery or radiation therapy produced long-term damage to the lymphatic system, lymphedema can become a long-term or recurring problem.

What causes swelling under the skin?

Lymphatic fluid builds up underneath the skin and causes swelling. Most commonly lymphedema affects the arms or legs. Swelling from lymphedema can look similar to the more common edema caused by leakage from tiny blood vessels under the skin.

What happens when lymph fluid returns to the blood?

After traveling through these small vessels, lymph drains into deeper, wider lymph channels that run through the body. Eventually, lymph fluid returns to the blood. Lymphedema occurs when there is inadequate lymph drainage from the body, usually from a blockage in a lymph channel. Lymphatic fluid builds up underneath the skin and causes swelling.

How long does it take for lymphedema to go away after breast surgery?

Sometimes, lymphedema appears immediately after surgery and goes away quickly. In other cases, lymphedema develops from one month to 15 years after a surgical procedure. Lymphedema occurs quite often in women who have had multiple lymph nodes removed during surgery for breast cancer.

What is the goal of lymphedema surgery?

Some aim to restore lymphatic circulation. In other cases, the goal is to remove excess fat that has been deposited as a result of the lymphedema. People with lymphedema are more prone to infection in the affected arm or leg.

How to treat lymphedema after surgery?

After surgery or radiation involving your lymph nodes, keep the affected arm or leg above your heart. Don't apply ice or heat to it. Skip tight clothing and jewelry. Don't cross your legs while sitting. If swelling starts or you get other symptoms, let your doctor know. Early treatment of lymphedema makes a difference.

How to get rid of lymphedema?

Exercise. Gentle movements that squeeze the muscles in your affected limb can help fluid drain and make it easier to do everyday things. Activities that get your heart pumping and make you breathe a little harder can also bring down the swelling. Talk to a lymphedema specialist about what's best for you.

Why does lymphatic fluid build up?

In a word, swelling. Extra fluid builds up in your tissue when your lymphatic system isn't working well, usually because your lymph nodes were damaged or removed. It's often a side effect of cancer treatment and can show up years later. Swipe to advance. 1 / 14.

What happens when your lymphatic system is damaged?

What Happens. The lymphatic system is part of your immune system. It moves fluid through your body , picking up waste, bacteria , and viruses. Your lymph nodes filter out the waste and flush it from your body. When something goes wrong, the fluid backs up in your tissue. Most often, your lymph nodes got damaged.

What is lymph drainage massage?

We're not talking about your standard spa service. This special, light-handed type of massage is called manual lymph drainage. A trained professional rubs, taps, and strokes your body to try to move fluid away from the swollen area. You can learn to do it yourself, too.

What to do if you have a rash and red skin?

Have shots and blood draws done elsewhere. Those tiny injuries can be entry points for infections. The trapped fluid in your tissue will allow bacteria to grow, and it can quickly become serious. Call your doctor if you get red skin or a rash, you have flu-like symptoms, or the pain or swelling gets worse.

What tests are done to check for lymphatic blockage?

They'll measure the swollen area and compare it with a similar unaffected one. Tests that check for blockages and see how your lymphatic system is working include MRI and lymphoscintigraphy, which follows special dye injected into your body as it ...

How do you know if you have lymphedema?

Symptoms. The most common symptom of lymphedema is swelling in one or both arms or legs. This swelling, which can extend into the fingers or toes, usually develops gradually over time. At first, the swelling is soft and fluid. In time, it can become more dense and fibrous, and it may make your skin look grainy.

What is lymphedema in the legs?

Treatment. Lymphedema is swelling that’s caused by a collection of too much lymph fluid. It usually happens in your arms and legs, but it can happen in other parts of your body, as well. This swelling may cause pain and limit how well the affected area moves. Lymph is a protein -rich fluid that moves throughout your body in lymph vessels.

What is the best way to move fluid from swelling?

Massage: A specially trained professional can do light massage to help move fluid from areas of swelling to other areas where working lymph vessels may carry it away. You can even learn how to use these massage techniques on yourself. Share on Facebook Share on Twitter Share on Pinterest Email Print.

What causes lymphedema in the lymphatic system?

Causes and Types. If your lymphatic system is damaged or a blockage exists, the fluid can build up in the soft tissue beneath your skin. There are two types of lymphedema: Secondary lymphedema is caused by another condition or disease that damages your lymph vessels or nodes. Secondary lymphedema may be caused by:

What is the best way to diagnose a swollen lymph node?

A lymphoscintigraphy is a scan that can detect blockages or missing lymph vessels. It is done by injecting radioactive material. Other tests to investigate the cause of your swelling include MRI, CT scan, and ultrasound.

How to help lymphatic drainage?

Exercise: Gentle exercises may promote lymph drainage and strengthen your affected limb. Bandages: Wrapped in just the right way, these may help push lymph fluid toward the trunk of your body. You may also wear them to help prevent lymph fluid from going back into your affected limb.

Why do lymph nodes filter fluid?

Your lymph nodes then filter the fluid to get the impurities out of your body. You could get lymphedema for any number of reasons. There are treatments to help bring down the swelling so you feel and move better.

What happens when you remove lymph nodes?

When one or more of the lymph nodes are removed, it can cause a problem. Just like an automobile accident disrupts the flow of traffic, missing lymph nodes cause the normal flow of lymphatic fluid to be impeded. When the fluid can't flow freely, it backs up and builds up.

Why are lymph nodes important?

The lymph nodes help move lymphatic fluid along like tiny little vehicles. Those little vehicles are strategically placed throughout the body to insure a complete and healthy removal system for impurities. When one or more of the lymph nodes are removed, it can cause a problem.

Is lymphedema better than cancer?

Hopefully you won't experience the uncomfortable condition of lymphedema but if you do, just remember, lymphedema is better than cancer any day. It is manageable, and you don't necessarily have to perform a chicken dance.

Can lymphedema occur after breast cancer surgery?

Lymphedema may or may not occur immediately following surgery for breast cancer but if lymph nodes are removed, it is a very real possibility. Please pay attention to your arms and upper chest area. If you notice any swelling or feelings of fullness, talk to your doctor. Catching lymphedema early is important.

Why does lymphedema cause swelling?

See additional information. Lymphedema refers to swelling of any part of the body due to poor functioning of the lymphatic channels that drain away excess fluid. It can occur due to damage to the lymph nodes or blockage of the lymphatic channels.

What causes lymphedema in breast cancer?

Other causes include any type of surgical procedure that requires removal of regional lymph nodes or lymph vessels. Damage to lymph nodes and channels that can cause lymphedema also include trauma, burns, radiation, infections, ...

What is the most common form of primary lymphedema?

Lymphedema praecox is the most common form of primary lymphedema. Meige disease or lymphedema tarda is primary lymphedema that becomes evident after 35 years of age. Secondary lymphedema develops when the lymphatic system is blocked or damaged.

What are the symptoms of a swollen arm?

Symptoms include swelling of the affected body part with skin changes that can include thickening, dimpling, scaling, redness, pain, and warmth. The involved extremity (arm or leg) may feel heavy and cause fatigue and limited range of motion. Other symptoms and signs that can accompany the swelling include. fever or chills.

What is the first sign of lymphedema?

The first sign of lymphedema you may notice is a sense of heaviness or tingling in the affected area, Eder says. Naturally, there is also swelling from the fluid not flowing as it should through the lymphatic system, and the surface of the skin can take on a texture similar to that of an orange peel, a condition called peau d’orange.

Why does breast cancer cause lymphedema?

Breast lymphedema occurs because of damage to the lymphatic system. This can stem from a genetic abnormality, or trauma. In the United States, it typically happens as a result of cancer, surgery for cancer or radiation.

What compression tool is used for lymphedema?

Another compression tool is a chip bag, also called a Schneider pack, which can be used in areas of heavy swelling. You may also find lymphedema relief from kinesiotape. “It’s used primarily as an athletic tool to support tissue during healing, but it can also be helpful in supporting lymphatic flow.”.

Can bug bites overload the lymphatic system?

It is a list of things that have been shown over the years to aggravate and put increased stress on the lymphatic system. For instance, there have been documented cases of people going years without any problems and then they get a bug bite, which can overload the lymphatic system.”.

Can breast lymphedema cause back pain?

If left untreated, it can become painful by putting pressure on the nerves. The tissue can harden, which may affect range of motion in the nearest limb as well affecting posture or contributing to upper back pain.

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What Is Lymphedema?

Symptoms

Diagnosis

Expected Duration

Medically reviewed by
Dr. Kabir Sethi
Your provider will work with you to develop a care plan that may include one or more of these treatment options.
There is no cure for lymphedema. Treatments aim at reducing swelling and controlling the pain.
Procedures

Pneumatic compression: An inflatable sleeve puts pressure on the affected limbs to push lymph fluid away from that area.

Lymphedema surgery: Considered in case of severe lymphedema.

Therapy

Physical therapy:Simple exercises to help the movement of affected limbs and cope with everyday activities. Wrapping a bandage around the affected limbs.

Massage therapy:To help the fluid movement out of the limbs. Avoid massage in case of skin infections or blood clots.

Complete decongestive therapy (CDT):Includes a combination of therapies including lifestyle changes.

Self-care

Always talk to your provider before starting anything.

  • Wear compression garments
  • Practice recommended exercises to reduce stress
  • Take care of the cuts or cracks in the skin

Nutrition

Foods to eat:

  • Foods with high protein content like legumes, eggs, tofu and lean meat
  • Increase the intake of fresh fruits and vegetables

Foods to avoid:

  • Foods with high sodium content like canned Foods, cured meat, sauces and fast Foods
  • Processed dairy products like yogurt and ice creams
  • Carbonated beverages like soda
  • Processed grains like oat cereals, popcorn or salty crackers

Specialist to consult

Vascular surgeon
Specializes in the diseases of the vascular system and performs minimally-invasive catheter procedures, surgical reconstruction.

Prevention

Treatment

  • Lymphedema signs and symptoms include: 1. Swelling of part or all of the arm or leg, including fingers or toes 2. A feeling of heaviness or tightness 3. Restricted range of motion 4. Recurring infections 5. Hardening and thickening of the skin (fibrosis) Signs and symptoms can range from mild to severe. Lymphedema caused by cancer treatment may not...
See more on mayoclinic.org

When to Call A Professional

Prognosis

Further Information

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