Treatment FAQ

what can i do about lyme disease pain after treatment

by Kole Brakus Published 2 years ago Updated 2 years ago
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What are the problems with Lyme disease?

  • Follicular conjunctivitis
  • Periorbital edema and mild photophobia
  • Bell’s palsy, cranial nerve palsies and Horner syndrome
  • Argyll Robertson pupil
  • Keratitis
  • Optic neuritis, papilledema, papillitis and neuroretinitis
  • Myositis of extraocular muscles and dacryoadenitis
  • Episcleritis, anterior and posterior scleritis

More items...

What is the initial treatment for Lyme disease?

What is the treatment for Lyme disease? The first-line standard of care treatment for adults with Lyme disease is doxycycline, a tetracycline antibiotic. Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the second generation cephalosporin, Ceftin.

What is the cure for Lyme disease?

“Under the HSE it says that Lyme disease can be treated with a course of antibiotics and that’s it, for the people like myself that it doesn’t work for due to late diagnosis, we are just left stranded because chronic Lyme disease is not recognised by the state.”

How to diagnose and treat Lyme disease?

STOWE, Vt. (WCAX) - In 2019, more than 700 Vermonters were diagnosed with Lyme disease. A family in Stowe say they’re successfully managing the tick-born sickness with a strict diet. “It was this thing where we all kept getting it, so it was scary,” said 11-year-old Julie Glowac of Stowe.

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How do you get rid of Lyme disease pain?

TreatmentOral antibiotics. These are the standard treatment for early-stage Lyme disease. ... Intravenous antibiotics. If the disease involves the central nervous system, your doctor might recommend treatment with an intravenous antibiotic for 14 to 28 days.

Can you still have symptoms of Lyme disease after treatment?

Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment. This condition is called Post-Treatment Lyme Disease Syndrome (PTLDS).

How Long Does joint pain last after Lyme disease?

About 60% of people who are infected with Lyme develop arthritis unless they receive antibiotics. In most, Lyme arthritis resolves after 30 days of treatment with an oral antibiotic, such as doxycycline or amoxicillin.

Can Lyme disease cause severe pain?

Approximately 15 percent of patients with Lyme disease develop debilitating and painful symptoms. Inflammation caused by the infection may play a role in the development of pain in the nerves, joints, and muscles.

Can Lyme disease flare up after treatment?

In rare cases, you may experience a continuation of Lyme disease symptoms after antibiotic treatment. This is called post-treatment Lyme disease syndrome (PTLDS).

What are the long term side effects of Lyme disease?

Chronic symptoms of Lyme are a much longer list and may include vertigo, ringing in the ears, short-term memory loss, light and sound sensitivity, mood swings, anxiety, depression, heart palpitations, and serious cardiac problems.

Does Lyme arthritis go away?

Both Lyme disease and RA can become debilitating if not treated. When treated, Lyme arthritis symptoms usually go away. On the other hand, treatment for RA can slow the progression of the disease, but not cure it.

Does Lyme disease make your legs hurt?

BODY ACHE. If you've contracted Lyme disease, you may experience muscle soreness or joint pain. Your knees are most likely to be affected, and joint pain can get more severe as the disease progresses.

What type of arthritis does Lyme disease cause?

In comparison, Lyme disease tends to affect one knee joint, resulting in swelling and discomfort. According to 2015 research , Lyme disease rarely causes symmetrical arthritis. However, in rheumatoid arthritis, the condition usually affects a person's joints equally on both sides of the body.

Does Lyme disease cause bone pain?

Musculoskeletal involvement, particularly arthritis, is a common feature of Lyme disease. Early in the illness, patients may experience migratory musculoskeletal pain in joints, bursae, tendons, muscle, or bone in one or a few locations at a time, frequently lasting only hours or days in a given location.

Is lymes disease a disability?

To qualify for short-term or long-term disability benefits, you must prove that you are unable to work due to your Lyme disease and other medical conditions. It is possible to get disability benefits for Lyme disease and post-treatment Lyme disease syndrome.

How long does it take for LDN to work?

LDN. This is useful for ongoing myalgia pain, nerve pain, and inflammation pain. But be aware it can take 3 or more months to work. This is a slower approach. LDN is made by a compounding pharmacist. Start at 1.5mg a day and work up to 4.5mg a day. See full prescribing information and side effect issues in Low Dose Naltrexone (LDN) & Lyme .

How to lower cytokines in Lyme disease?

So one strategy to lower pain in Lyme disease is to take herbs and supplements that may support lowering cytokines. These include curcumin and liposomal glutathione. Low dose naltrexone (LDN), a prescription medicine, can also lower cytokines.

Why does Lyme cause nerve pain?

These qualities of pain occur when Lyme germs directly injure nerves. Or it occurs as a result of inflammation of those nerves from cytokines. There is a second type of nerve pain known to occur in people with fibromyalgia and MS, that likely occurs in people with Lyme disease.

How to stop microglia from turning on?

For nerve pain due to microglia activation in the brain, one strategy is to block the Toll-like receptors to stop the microglia from turning on. LDN helps with this. Another strategy is to decrease the inflammation of nerves. LDN , anti-cytokine herbs, and medical marijuana/cbd oil may help with this.

What is the center of a pain control strategy in Lyme disease?

The center of a pain control strategy in Lyme disease is sleep. Sleep helps in two ways.

How many types of pain are there in chronic lyme disease?

There are three types of pain occuring in chronic Lyme disease. They are

How many mitochondria are there in a cell?

Mitochondria are the energy factories found in every cell. By some estimates there are 300 to 400 mitochondria in a cell. Chronic infection can damage the mitochondria. There is a growing body of science showing damaged mitochondria leads to chronic pain.

What is the term for a type of pain that is caused by something that shouldn't normally cause pain?

For instance, allodynia is a type of pain that is caused by something that shouldn’t normally cause pain (eg. wind or light touch may feel like rubbing sandpaper on a sunburn.) Menstrual pain, bladder pain, testicular pain, bone pain, and widespread nerve pain are common in chronic Lyme patients.

How long does chronic pain last?

Chronic pain–defined as ongoing pain that continues for longer than six months –is a common complaint of patients with persistent Lyme disease. The CDC estimates that 20% of Americans currently live with chronic pain. Estimates range from 10% to 36% of Lyme patients who are diagnosed and treated early are left with chronic symptoms.

What does it mean when your cup is full?

Once your cup is full, you are essentially at a 10 out of 10 on your individual pain scale. You may have a constant headache filling your cup 1/2 way (or 5:10 on your pain scale), and then your knee starts hurting pushing you up to a 7:10, and then your lower back spasms, and BOOM–your cup is full!

What is the IASP in medical terms?

Recently, with the help of researchers at Johns Hopkins Medicine, the International Association for the Study of Pain (IASP) has made a subtle but important change to the medical definition of pain.

How to reduce pain in diaphragm?

The key to diaphragmatic breathing is to focus on deep relaxation and making the exhale portion of your breath twice as long as the inhale. Meditation and mindfulness can help reduce stress and physiological responses to stress, which in turn, can help reduce pain.

What is the cup theory?

Depending on your age, your brain, and your body, everyone has a different size cup—or a different capacity—for pain. We are each only capable of handling a certain amount of pain.

How to reduce fatigue when sick?

When you are sick you must be very conservative with energy expenditure. Modifying or changing your activities so they do not aggravate your symptoms is extremely important. Restricting, reducing, or spacing out your activities can help reduce pain and fatigue.

What is the treatment for Lyme disease?

The first-line standard of care treatment for adults with Lyme disease is doxycycline, a tetracycline antibiotic. Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the second generation cephalosporin, Ceftin. The mainstay of treatment is with oral (pill) antibiotics, but intravenous antibiotics are sometimes indicated for more difficult to treat cases of neurologic-Lyme disease, such as meningitis, and cases of late Lyme arthritis.

How common is PTLD after lyme disease?

The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher.

What is a PTLD?

Post Treatment Lyme Disease (PTLD) represents a research subset of patients who remain significantly ill 6 months or more following standard antibiotic therapy for Lyme disease. PTLD is characterized by a constellation of symptoms that includes severe fatigue, musculoskeletal pain, sleep disturbance, depression, and cognitive problems such as difficulty with short-term memory, speed of thinking, or multi-tasking. In the absence of a direct diagnostic biomarker blood test, PTLD has been difficult to define by physicians, and its existence has been controversial. However, our clinical research shows that meticulous patient evaluation when used alongside appropriate diagnostic testing can reliably identify patients with a history of previously treated Lyme disease who display the typical symptom patterns of PTLD.

How many signs and symptoms are there in PTLD?

In our study, participants with Post Treatment Lyme Disease (PTLD) & controls were asked about presence and severity of 36 signs/symptoms over the past 2 weeks. Displayed are the 25 signs/symptoms with a statistically significant difference in severity by group (P<0.05) ordered by frequency within the PTLD group. The nine signs/symptoms with a statistically significant difference at the p<0.001 level are indicated with an asterisk*.

What is PTLD in medical terms?

For research studies, a defined subset of this condition is called Post Treatment Lyme Disease (PTLD). This research definition is being used to investigate the potential causes of persistent symptoms in Lyme disease.

What is lyme disease?

Lyme disease encompasses a range of biologic processes and disease manifestations. Patients are often referred to the Lyme Disease Research Center for evaluation of chronic Lyme disease, an umbrella term that encompasses many heterogeneous subsets of illness. Examples of defined Lyme disease subsets include Post Treatment Lyme Disease (PTLD), ...

How high is the risk of Lyme disease after treatment?

The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher. Other risk factors being investigated are genetic predispositions and immunologic variables.

What is Lyme arthritis?

Lyme arthritis occurs when Lyme disease bacteria enter joint tissue and cause inflammation. If left untreated, permanent damage to the joint can occur. Lyme arthritis accounts for approximately one out of every four Lyme disease cases reported to CDC. Because of reporting practices, this statistic may overstate the frequency of arthritis among patients seen in routine clinical practice.

Is Lyme arthritis permanent?

People who do not receive prompt treatment for Lyme arthritis are at risk of developing permanent joint damage.

How is it treated?

An initial episode of Lyme arthritis should be treated with a 4-week course of oral antibiotics. Patients with persistent joint inflammation and pain after the first course of antibiotics may require a second course (see tables below). In some cases, joint swelling and pain can persist or recur after two courses of antibiotics. The cause of persistent arthritis is unknown but is thought to be driven by immunologic factors. Additional antibiotics have not been shown to improve these symptoms, and patient referral to a rheumatologist should be considered.

How long does it take for lyme arthritis to develop?

Lyme arthritis typically develops within one to a few months after infection .

How many cases of lyme disease are reported to the CDC?

Lyme arthritis accounts for approximately one out of every four Lyme disease cases reported to CDC. Because of reporting practices, this statistic may overstate the frequency of arthritis among patients seen in routine clinical practice.

What are the symptoms of lyme arthritis?

What are the symptoms? The main feature of Lyme arthritis is obvious swelling of one or a few joints. While the knees are affected most often, other large joints such as the shoulder, ankle, elbow, jaw, wrist, and hip can also be involved. The joint may feel warm to the touch or cause pain during movement.

Can lyme arthritis be mistaken for septic arthritis?

Lyme arthritis can be mistaken for septic arthritis, especially in children. Whereas septic arthritis may require surgical intervention, Lyme arthritis generally does not. Talk to patients about tick bite prevention.

What causes chronic lyme disease?

No one knows what causes chronic Lyme disease. One theory is the infection damages tissues or alters the immune system.

What is the best medicine for brain fog?

Chinese medicine. Herbs may be used to tame reactions that trigger inflammation, and help symptoms such as joint pain and “ brain fog.”

Can a tick bite cause lyme disease?

A bite from a bacteria-infected tick causes Lyme disease. If you get the disease, you might have lingering symptoms. Some people have ongoing pain and fatigue, says Afton Hassett, PsyD, principal investigator at the Chronic Pain and Fatigue Research Center at University of Michigan.

Can stopping a prescription cause symptoms?

Some experts believe stopping the drugs before your prescription ends may cause symptoms to linger. Do find experts who can help your symptoms. Ask your doctor if it would be worth your while to visit naturopaths, traditional Chinese medicine doctors, psychologists, or other experts.

What is the best treatment for arthritis pain?

But we also offer advanced treatments, including arthroscopy, for stubborn arthritis joint pain that just won’t quit. Learn more about treating joint problems.

What happens if you get a tick bite?

If an infected tick bites you, bacteria in the saliva enters your bloodstream, increasing your risk of Lyme disease. When there is a delay in treatment, the bacteria may settle into the joints, leading to a special type of arthritis. In fact, six out of 10 people who do not receive timely treatment for Lyme disease develop arthritis.

Can you heal from antibiotics?

Most people can make a full recovery after simple treatments, like antibiotics. But if your body needs help to heal, we offer treatments like physical therapy and minimally invasive surgery if others don’t work.

What is the disease of the nervous system?

Lyme, The Nervous System, and Neuropathy. Unfortunately, once the infection begins to spread throughout the body, many people will develop Lyme neuroborreliosis (LNB). This is neurological Lyme disease, which affects and inflames the central and peripheral nervous systems. Research suggests the neurologic manifestations ...

How to diagnose neuropathy?

For most people, a diagnosis of neuropathy may be based upon a person’s medical history, physical exam, lab work, and neurologic evaluation. The following tests can be useful to identify the condition, as well as rule out potential causes and contributing factors.

How does neuropathy feel?

Pins-and-needles tingling sensations, most often felt in the hands and feet. Numbness or a reduced ability to feel sensation. Severe sensitivity to touch.

What is the debilitating symptom of LNB?

One debilitating symptom that may be present among those with LNB is peripheral neuropathy (also referred to as neuropathy). This is a disease process that impacts the nerves located outside of the brain and spinal cord. Neuropathy occurs when there is damage or dysfunction of neurons (nerve cells) in one or more nerves.

How to tell if you have neuropathy?

Neuropathy begins gradually and worsens with time. The symptoms may include: 1 Pain that could be described as “sharp,” “burning,” or “throbbing” 2 Pins-and-needles tingling sensations, most often felt in the hands and feet 3 Numbness or a reduced ability to feel sensation 4 Severe sensitivity to touch 5 Worsening pain during nighttime 6 Muscle weakness 7 Loss of coordination in hands and feet

How does lyme disease spread?

But as the disease advances, the bacteria associated with Lyme, Borrelia burgdorferi, spreads via the bloodstream to other parts of the body, a process known as dissemination. This occurs in the days and weeks following infection, referred to as early disseminated Lyme disease.

What is the term for the damage to neurons in the brain?

Neuropathy occurs when there is damage or dysfunction of neurons (nerve cells) in one or more nerves. The damage results in interference among the neurons, and they begin to have difficulty communicating with each other and the brain.

How to help lyme disease?

6. Low Impact Exercises. Joint pain and arthritis symptoms caused by Lyme disease can take a significant toll on your life. However, a small amount of extra flexibility in your joints may make daily life just that little bit easier. Low impact exercises, such as swimming, yoga, or aerobics, may be able to help build up joint flexibility over time.

How long does lyme pain last?

Among the most common of these is joint pain, which can last for months after the appropriate treatment for Lyme disease has been administered. If you are suffering from Lyme disease-related joint pain, several care options can be worth considering. 1. Natural Remedies.

What is the most common symptom of lyme disease?

While an expanding rash is often the most common symptom, several others may present themselves when the disease is not diagnosed and treated early on. Among the most common of these is joint pain, which can last for months after the appropriate treatment ...

What is the best treatment for joint stiffness?

For short-term relief from pain, inflammation, and swelling, hot and cold treatments may be able to assist. Hot treatments may effectively combat joint stiffness, while cold therapies may help with swelling, pain, and inflammation.

Can you take oxycodone for joint pain?

Some of the most popular options include oxycodone, codeine, and hydrocodone. However, these are not recommended for long-term use, even if they help your joint pain. This is because they can become addictive when not managed carefully.

Can you use a hot and cold for joint pain?

However, these are not recommended for long-term use, even if they help your joint pain. This is because they can become addictive when not managed carefully. 5. Hot and Cold Treatments. For short-term relief from pain, inflammation, and swelling, hot and cold treatments may be able to assist.

Is Cumanda good for lyme disease?

While antibiotics are the primary treatment option for Lyme disease, Cumanda may be something else worth trying. Cumanda doesn’t necessarily focus on joint pain, but it has been regarded as a powerful anti-Lyme treatment for its anti-fungal, anti-viral, and antiparasitic properties.

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Treatment

  • The first-line standard of care treatment for adults with Lyme disease is doxycycline, a tetracycline antibiotic. Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the cephalosporin, Ceftin. In children under the age of 12, amoxicillin is used because of the possible side effects of doxyc...
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Side effects

  • Antibiotics, like all medications, have the potential for side effects. Any antibiotic can cause skin rashes and if an itchy red rash develops while on antibiotics, a patient should see their physician. Sometimes symptoms worsen for the first few days on an antibiotic. This is called a Herxheimer reaction and occurs when the antibiotics start to kill the bacteria. In the first 24 to 48 hours, thes…
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Prognosis

  • The prognosis after treatment of Lyme disease is generally very good. The majority of people are treated with antibiotics and return to their normal health. The prognosis is best when Lyme disease is diagnosed and treated early and worsens when diagnosis and treatment is delayed. Most patients with early Lyme disease infection recover with antibiotics and return to their norm…
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Roles

  • The causes of PTLDS are not yet well understood but our Center is investigating the potential roles of:
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Research

  • Our research has validated PTLDS as a serious and impairing condition. However, the causes of PTLDS are not yet well understood or validated. The term PTLDS does not mean post-infection or imply an assumption of underlying biologic mechanisms. The roles of immune dysfunction, autoimmunity, persistent bacterial infection, neural network alteration, and other potential causa…
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Terminology

  • Patients are often referred to the Lyme Disease Research Center for evaluation of chronic Lyme disease, an umbrella term that encompasses many different subsets of illness. Examples of defined Lyme disease subsets are Post Treatment Lyme Disease Syndrome (PTLDS), and Antibiotic Refractory Late Lyme Arthritis. The mechanisms of these Lyme disease conditions ar…
See more on hopkinslyme.org

Diagnosis

  • The symptoms of chronic Lyme disease are similar to and overlap with other conditions involving fatigue, pain, and cognitive symptoms. Therefore, rigorous diagnostic evaluation is necessary to determine if Lyme disease could be the trigger for ongoing disease processes or if some other disease processes are involved.
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