Treatment FAQ

what are the treatment options for pseudotumor cerebri

by Prof. Neha Cormier Jr. Published 2 years ago Updated 2 years ago
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Pseudotumor Cerebri Treatment
  • Weight loss.
  • Limiting fluids or salt in the diet.
  • Medications, such as diuretics, which help the body to get rid of extra fluid.
  • A spinal tap to remove fluid and reduce pressure.
  • Surgical placement of shunt, or special tube, to redirect fluid from the brain and ease pressure.

Medication

Treatment of pseudotumor cerebri is necessary to improve symptoms and prevent worsening of eyesight, which is the main complication of the condition. Treatment involves mediations, lifestyle modifications and, in some cases, surgery.

Procedures

What is Pseudotumor Cerebri? Pseudotumor cerebri (PTC) is a life-threatening medical disorder that occurs when excessive levels of cerebrospinal fluid put pressure on the brain. PTC is also known as idiopathic intracranial hypertension (IIH) or benign intracranial hypertension (BIH). Yaz and Pseudotumor Cerebri

Self-care

The meaning of PSEUDOTUMOR is an abnormality (as a temporary swelling) that resembles a tumor.

Nutrition

The condition is characterized by headaches, which is also the first symptom of pseudotumor cerebri. Pseudotumor cerebri headaches usually feel like a headache that occurs at the back of the head or behind the eyes. The pain starts as a dull, aching pain that worsens at night or in the morning. They may be associated with vomiting as well.

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Does pseudotumor cerebri need to be treated?

Is pseudotumor cerebri life threatening?

What is a pseudo tumor?

What does a pseudotumor cerebri headache feel like?

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How can pseudotumor cerebri be cured?

Medicine and surgery are the main treatments for pseudotumor cerebri. They reduce the pressure in your skull. A few medicines are used to treat this condition: Acetazolamide (Diamox) is a glaucoma drug that lowers the amount of cerebrospinal fluid your body makes.

How do you reverse pseudotumor cerebri?

Currently, there are no treatments to reverse the permanent injury to the optic nerves caused by Pseudotumor Cerebri. Treatment of this disease is focused on halting visual loss that has already occurred.

Can a pseudotumor be removed?

8 In most of the cases, a pseudotumor requires a surgical excision and complicates revision procedures. Removing these lesions can be hazardous: a complete excision may jeopardize bones, neurovascular structures, and tendons.

Is pseudotumor cerebri curable?

The name means “false brain tumor” because its symptoms are similar to those caused by brain tumors. It's also known as idiopathic intracranial hypertension. This condition is treatable, but it can return in some cases.

Is pseudotumor cerebri serious?

Pseudotumor cerebri can cause serious and permanent complications if left untreated. It can cause progressive and permanent loss of vision. Thus, people with pseudotumor cerebri must go for regular eye exams and checkups so that eye problems are diagnosed and treated before they progress.

What is the most common presenting symptom of pseudotumor cerebri?

Pseudotumor cerebri signs and symptoms might include: Often severe headaches that might originate behind your eyes. A whooshing sound in your head that pulses with your heartbeat. Nausea, vomiting or dizziness.

What medications should be avoided with pseudotumor cerebri?

Medications that are known to precipitate Pseudotumor CEREBRI (PTC) and should be AVOIDED:Tetracycline, Doxycycline, Minocycline (usually prescribed for treatment of Acne and Rosacea)Vitamin A and related compounds: ... Growth Hormone (rHGH, synthetic)More items...

Does pseudotumor cerebri qualify for disability?

If pseudotumor cerebri causes your eyesight to be 20/200 or worse, you will medically qualify for disability benefits. If you don't meet the specific criteria for a condition in the Blue Book, you can still win your disability claim by using the medical-vocational allowance.

Is pseudotumor cerebri an emergency?

Pseudotumor cerebri is a medical emergency since it can cause blindness. Treatment usually is effective, and most people have no or minimal vision loss. Pseudotumor cerebri can return after treatment, but keeping a healthy weight may help to prevent this.

What are the four stages of increased intracranial pressure?

Intracranial hypertension is classified in four forms based on the etiopathogenesis: parenchymatous intracranial hypertension with an intrinsic cerebral cause, vascular intracranial hypertension, which has its etiology in disorders of the cerebral blood circulation, meningeal intracranial hypertension and idiopathic ...

What does a pseudotumor cerebri headache feel like?

Pseudotumor cerebri headaches usually feel like a headache that occurs at the back of the head or behind the eyes. The pain starts as a dull, aching pain that worsens at night or in the morning. They may be associated with vomiting as well.

What activities increase intracranial pressure?

A head injury may cause increased ICP. Some examples of how a person can reduce their risk of head injury include: avoiding extreme sports or dangerous activities. always wearing a helmet for activities such as riding a bike.

How to reduce the risk of pseudotumor cerebri?

Even in women who aren't obese, a moderate amount of weight gain can increase the risk. Losing extra pounds and maintaining a healthy weight might help reduce your chances of developing this potentially sight-stealing disorder.

What does a doctor look for in a pseudotumor?

If pseudotumor cerebri is suspected, a doctor trained in eye conditions (ophthalmologist) will look for a distinctive type of swelling affecting the optic nerve in the back of your eye. You'll also undergo a visual field test to see if there are any blind spots in your vision besides your so-called normal blind spot in each eye where ...

What is the procedure to reduce intracranial pressure?

If your vision worsens, surgery to reduce the pressure around your optic nerve or to decrease the intracranial pressure might be necessary. Optic nerve sheath fenestration. In this procedure, a surgeon cuts a window into the membrane that surrounds the optic nerve to allow excess cerebrospinal fluid to escape.

What tests can be ordered for brain tumors?

Your doctor is likely to order an MRI or CT scan. These tests can rule out other problems that can cause similar symptoms, such as brain tumors and blood clots.

How to treat pseudotumor cerebri?

Medicine and surgery are the main treatments for pseudotumor cerebri. They reduce the pressure in your skull. A few medicines are used to treat this condition: Acetazolamide ( Diamox) is a glaucoma drug that lowers the amount of cerebrospinal fluid your body makes.

What are the most common causes of pseudotumor cerebri?

Other conditions that can raise your risk include: Addison's disease. Anemia. Behcet's syndrome. Blood vessel or blood clotting problems. Lupus. Lyme disease.

Why does my pseudotumor hurt?

It's caused by increased pressure around the brain. It can be hard to tell a pseudotumor from a real tumor. So you should see your doctor to have your symptoms checked out. The symptoms of pseudotumor cerebri can get worse and hurt your vision. Getting treated quickly can help save your sight.

How does a surgeon drain fluid from the brain?

The surgeon inserts a long, thin tube called a shunt into your brain or spine to drain extra fluid. Optic nerve sheath fenestration. The surgeon makes a cut in the tissue around the optic nerve to allow fluid to drain. With treatment, the pressure in your brain will go down.

Can pseudotumor cerebri come back?

Most people completely recover, but a few will have permanent vision loss. Because pseudotumor cerebri can come back, see your doctor for follow-up visits and get regular eye checkups. Tell the doctor right away if you notice any new symptoms.

What medications can cause pseudotumor cerebri?

Certain medications: Use of lithium, tetracyclines, certain steroids and vitamin A derivatives may predispose people to pseudotumor cerebri. Blood vessel irregularities: Some people are born with a narrowing of the vein that drains blood and CSF from the brain, resulting in increased pressure. Sleep apnea: Sleep apnea is an increasingly common ...

Where does pseudotumor cerebri occur?

Headaches associated with this disorder may vary from person to person. Often, pseudotumor cerebri headaches often occur at the back of the head and start as a dull pain, which tends to be worse at night or first thing in the morning.

How many times more likely is pseudotumor cerebri in women than men?

Although experts don't know why this condition develops, here are other conditions that are commonly seen in people with the disorder: Female sex: Women are nine times more likely to have pseudotumor cerebri than men. The role of hormones is not understood.

What is PTC in medical terms?

Pseudotumor cerebri (PTC), also known as idiopathic intracranial hypertension, is a problem caused by elevated cerebrospinal fluid pressure in the brain. Because this condition causes symptoms of elevated pressure in the head – which is also seen with large brain tumors – but have normal scans, the condition has been called pseudotumor cerebri, ...

How to get rid of extra fluid?

Medications, such as diuretics, which help the body to get rid of extra fluid. A spinal tap to remove fluid and reduce pressure. Surgical placement of shunt, or special tube, to redirect fluid from the brain and ease pressure. Surgery to decompress increased CSF around the optic nerve.

Can pseudotumor cerebri cause vision loss?

Pseudotumor cerebri symptoms include headache and blurred vision, which can increase over time. Prompt diagnosis and treatment of pseudotumor cerebri is important since it may lead to progressive (and possibly permanent) loss of vision.

What tests are done for pseudotumor cerebri?

Since the first symptoms of pseudotumor cerebri are often headache and vision changes, a doctor may first perform vision tests to look for signs of swelling or a tumor. Brain imaging tests, including magnetic resonance imaging (MRI) or computed tomography (CT) scans, may be performed, also in search of tumor or other cause of the headaches.

What is pseudotumor cerebri?

Pseudotumor cerebri is largely a diagnosis of exclusion if a patient has high intracranial pressure and testing does not reveal any cause, the diagnosis will be idiopathic intracranial hypertension (IIH), also known as pseudotumor cerebri.

How to treat CSF in the brain?

Traditional Surgery. Traditional surgical treatments include placement of a shunt in the brain to drain excess CSF and relieve the pressure, or a surgery around the optic nerve (“fenestration”) to relieve pressure around the optic nerve and protect the vision.

What is the best treatment for headaches?

Achieving a healthy weight may help alleviate headache and other symptoms. Medical Therapy. There are medications that can help reduce intracranial pressure, including diuretics (which reduce fluids in body tissue) and migraine drugs.

What is the best medicine for pseudotumor cerebri?

Examples include: Acetazolamide: The first-line treatment for pseudotumor cerebri, acetazolamide works by reducing the production of cerebrospinal fluid.

Why is surgery needed for pseudotumor cerebri?

Surgery is needed to quickly reduce the pressure around the optic nerve and can also allow fluid to escape, reducing the pressure in the skull. Options include:

What is pseudotumor cerebri?

Pseudotumor cerebri occurs when the pressure of the cerebrospinal fluid (CSF) inside of your skull increases with no apparent cause. This cerebrospinal fluid covers the brain and spinal cord, protecting and cushioning them from injury. It is important to understand that pseudotumor literally means "false tumor," as it is a condition ...

Which is more common, pseudotumor cerebri or overweight?

Women: The disease occurs more frequently in women, who are eight times more likely than men to develop pseudotumor cerebri. Overweight individuals: The disease is characteristically most common in overweight to obese women of childbearing age (more than 90 percent).

Can pseudotumor cerebri cause headaches?

Headaches: Headaches occur in nearly all (90 to 94 percent) people with pseudotumor cerebri. These headaches are often moderate to severe in intensity, throbbing, pressure-like, and non-stop. You may feel the headaches the most behind your eyes and moving your eyes may exacerbate your pain.

Is pseudotumor cerebri a diagnosis of exclusion?

It is important to understand that pseudotumor cerebri is a diagnosis of exclusion — meaning that it is usually a diagnosis your physicians will consider for increased intracranial pressure (ICP) after all examinations and tests are completed and other diagnoses are ruled out.

Is pseudotumor cerebri treatable?

Fortunately, pseudotumor cerebri is treatable and there are many options for treatment ...

What is pseudotumor cerebri?

Pseudotumor cerebri syndrome can sometimes be caused by medication use, such as excessive intake of vitamin A, tetracycline antibiotics, human growth hormone supplementation, or withdrawal from steroids. When no cause for pseudotumor cerebri is found, the condition is referred to as idiopathic intracranial hypertension (IIH).

What doctor should I see for pseudotumor cerebri?

If diagnosed with pseudotumor cerebri symptoms, be sure to have regular follow-up visits with a neurologist and an ophthalmologist or a neuro-ophthalmologist.

Why do we have a lumbar puncture?

Finally, a lumbar puncture (spinal tap) will show high pressure in the cerebrospinal fluid with normal spinal fluid contents. Because headaches are common in young women—and the headaches ...

Is pseudotumor cerebri a disease?

Pseudotumor cerebri without optic nerve swelling may be a different disease process than pseudotumor cerebri with optic nerve swelling. For example, patients who experience typical symptoms of the condition, such as chronic headaches, but without swelling of the optic nerves at the time of diagnosis frequently do not improve with ...

Can pseudotumor cerebri cause headaches?

Over 90 percent of patients with a diagnosis of pseudotumor cerebri syndrome have severe headaches that occur daily or near-daily. Some patients have prominent neck or back pain as well. Other common symptoms include episodes of visual loss in one or both eyes lasting several seconds and hearing one's pulse or a whooshing in the ear.

Does pseudotumor cerebri cause visual loss?

Most individuals with pseudotumor cerebri syndrome do improve, although a small percentage of patients may experience severe and irreversible visual loss. When visual loss occurs, it generally does so at the beginning of the illness.

An update on treatment options

Correspondence to: Prem S Subramanian, Wilmer Eye Institute, Johns Hopkins Hospital, 600 N. Wolfe St., Baltimore, MD 21287, USA. E-mail: [email protected]

Abstract

The aim was to identify Pseudotumor cerebri treatment options and assess their efficacy.

Treatment Approaches

Treatment of PTC ranges from observation to emergent surgery. A team approach amongst the patient's neurologist, ophthalmologist, primary care physician, and neurosurgeon is essential.

Medical Management

Medical treatment is indicated in the setting of good vision when a patient's primary symptom is headache. Carbonic anhydrase inhibitors (CAI) are the treatment of choice, although no prospective data confirm their effectiveness. [ 12] A pilot trial by Ball et al.

Surgical Management

Initial surgical treatment of PTC is indicated when there is severe optic neuropathy, either acute or rapidly progressive, or medical treatment failure.

Venous Sinus Stenting

Focal stenosis of the distal transverse sinus may be seen in the majority of PTC patients and is absent in obese controls.

Pseudotumor Cerebri in Pregnancy

Pseudotumor cerebri may be unrecognized before pregnancy or associated with excessive weight gain; worsening of existing PTC in pregnancy has been described. [ 30] Acetazolamide is rated as class C by the US FDA and is typically used if needed after 20 weeks gestation.

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Diagnosis

Treatment

Clinical Trials

Lifestyle and Home Remedies

Medically reviewed by
Dr. Karthikeya T M
Your provider will work with you to develop a care plan that may include one or more of these treatment options.
Treatment includes medication, lumbar puncture or surgery.
Medication

Diuretics: Increases urine production to get rid of excess salt and water.

Acetazolamide


Analgesics: To control the headaches.

Paracetamol

Procedures

Lumbar puncture: Drainage of cerebrospinal fluid to reduce the pressure.

Optic nerve sheath decompression and fenestration: An incision is made in the connective tissue lining of the optic nerve in its portion behind the eye to lower the pressure.

Shunting: A conduit through which CSF from the inner brain cavities called ventricles can be drained into another body cavity is created.

Bariatric surgery: Weight loss surgery resolves the condition in obese people.

Self-care

Always talk to your provider before starting anything.

Weight loss program:

A sustainable weight loss program that includes a healthy diet, less intake of salt and regular exercise can resolve symptoms in obese patients.

Nutrition

Foods to eat:

  • Plenty of fruits such as kiwi fruit, apples, melons, etc.
  • Low fat dairy products
  • Intake of lean meat such as poultry, fish
  • Oats and whole grain cereals

Foods to avoid:

  • High fat content meat such as beef, lamb, veal
  • Fatty foods such as fried chicken, potatoes
  • Salty foods such as fast food, olives, pickles, salsa
  • Intake of vitamin A rich foods such as beer, liver, tomatoes, green leafy vegetables
  • Caffeine
  • Alcohol

Specialist to consult

Neurologist
Specializes in treating diseases of the nervous system, which includes the brain, the spinal cord, and the nerves.
Ophthalmologist
Specializes in the medical and surgical care of the eyes.
Primary care physician
Specializes in the acute and chronic illnesses and provides preventive care and health.

Preparing For Your Appointment

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