Treatment FAQ

treatment what worked exertion intolerance in cfs/me

by Summer Wunsch Published 3 years ago Updated 2 years ago
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Medication

Living with ME/CFS. Therapies, like meditation, gentle massage, deep breathing, or relaxation therapy, might be helpful. Important note: Patients should talk with their doctors about all potential therapies because many treatments that are promoted as cures for ME/CFS are unproven, often costly, and could be dangerous.

Therapy

Rehabilitation specialists or exercise physiologists who know ME/CFS may help patients with adjusting to life with ME/CFS. Patients who have learned to listen to their bodies might benefit from carefully increasing exercise to improve fitness and avoid deconditioning. However, exercise is not a cure for ME/CFS.

Self-care

When present, depression or anxiety should be treated. Although treating depression or anxiety can be helpful, it is not a cure for ME/CFS. Some people with ME/CFS might benefit from antidepressants and anti-anxiety medications. However, doctors should use caution in prescribing these medications.

Nutrition

For people with ME/CFS who have concentration problems, some doctors have prescribed stimulant medications, like those typically used to treat Attention-Deficit / Hyperactivity Disorder (ADHD). While stimulants might help improve concentration for some patients with ME/CFS, they might lead to the ‘push-and-crash’ cycle and worsen symptoms.

What is the best treatment for ME/CFS?

How can exercise help with ME/CFS?

Can depression and anxiety be treated with ME/CFS?

Can I use stimulants for concentration problems with ME/CFS?

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What is the most effective intervention for chronic fatigue syndrome?

Conclusions. In patients with chronic fatigue syndrome, 31 different interventions show mixed results for effectiveness. Cognitive behavioural therapy and graded exercise therapy show the most promise.

How do you reduce post exertional malaise?

Rest may be the best treatment for PEM specifically. Pacing yourself and making lifestyle changes may require some sacrifices, but the pros of doing so will likely outweigh the cons. Stress management may indirectly improve PEM by lowering the severity of your condition.

Are there any new treatments for chronic fatigue syndrome?

There is no cure or approved treatment for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

Which treatment approach for a client with chronic fatigue syndrome is appropriate?

Persons diagnosed with chronic fatigue syndrome should be treated with cognitive behavior therapy, graded exercise therapy, or both. Cognitive behavior therapy and graded exercise therapy have been shown to improve fatigue, work and social adjustment, anxiety, and postexertional malaise.

Can you push through chronic fatigue?

A person with ME/CFS should never be coaxed to push past their limit as it can be dangerous and cause long-term relapse. The goal is to balance rest and activity to avoid decreasing fitness levels from lack of activity and flare-ups of illness due to overexertion.

What conditions causes post-exertional malaise?

Several PEM stressors were reported, especially physical or cognitive exertion [8], emotional distress [9], infections [4, 10], exposure to chemicals [11], physical trauma, and sleep debt [4]. PEM onset is unpredictable since it may occur immediately after stressor or delayed by several hours or days.

How does Abilify work for ME CFS?

"Abilify is a 'dopamine stabilizer. ' When use correctly it tends to stabilize dopamine levels at more optimum levels. In the higher doses used to treat schizophrenia and other disorders Abilify reduces dopamine production. At the lower doses used in ME/CFS, though, it enhances dopamine production [...]

Does gabapentin help chronic fatigue syndrome?

Gabapentin is one of the drugs suggested for use in people with ME/CFS to treat related pain; it is suggested in both the Canadian Consensus Criteria for ME/CFS and the International Consensus Criteria for ME.

Does CFS get worse with age?

It is possible that individuals with CFS may lose vitality over time due to worse physical functioning as it becomes more challenging for them to do functional tasks as the illness progresses.

Do steroids help chronic fatigue syndrome?

Some CFS Patients Benefit From Low-Dose Steroid, But Side Effects Too Risky. Summary: Low doses of the steroid hydrocortisone can cause slight improvement in some chronic fatigue syndrome (CFS) symptoms but at the risk of inducing adrenal suppression.

Does Amitriptyline help with chronic fatigue?

These medications may be particularly helpful for CFS/ME patients. For example, the tricyclic amitriptyline is known to relieve many symptoms, including sleeplessness and low energy levels in CFS/ME.

Do antidepressants help CFS?

Antidepressants do not cure myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). They may relieve symptoms such as fatigue, sleep problems, difficulty concentrating, and pain. But they will not affect the course of the illness or the speed of recovery.

Who is conducting a CPET study in ME/CFS?

Since then, Workwell in California, Betsy Keller at Cornell, Katrina Lien in Norway, David Patrick in British Columbia, Lynette Hodge s in New Zealand and others have been conducting 2-day CPET studies in ME/CFS. Maureen Hanson at Cornell is currently including a 2-day maximal exercise test in her NIH-funded ME/CFS center work.

How many people have ME/CFS?

It’s a major disease that affects around a million people in the U.S. yet gets very little funding. It has no home at the NIH; it doesn’t fit it in any medical specialty (other than its own); patients can get astonishingly, jaw-droppingly ill; their functionality is far lower than in many other serious diseases, and patients often present with weird findings which doctors tell them they’ve never seen before.

What activity is likely to trigger excessive activation of (her) impaired oxidative metabolic pathway?

The exercise scores of the lower functioning patient suggested that any activity more intense than slow walking, standing while washing dishes, or playing a musical instrument was likely to “trigger excessive activation of (her) impaired oxidative metabolic pathway”.

Is exercise good for chronic disease?

Exercise, after all, is almost like a universal medicine. Moderate levels of exercise are recommended for just about every person and every chronic disease. Studies indicate that even “frail and very old adults” can benefit from exercise.

Does ME/CFS disappear?

ME/CFS received a different fate in a review of the cause of the fatigue in Parkinson’s disease and other disorders – it simply disappeard. Fatigue is one of the first symptoms to appear in Parkinson’s disease, and is such an issue in it that Simon Wessely even developed a fatigue scale specifically for it.

Can frail people exercise?

Studies indicate that even “frail and very old adults” can benefit from exercise. Research has demonstrated that virtually all individuals can benefit from regular physical activity, whether they participate in vigorous exercise or some type of moderate health-enhancing physical activity. Even among frail and very old adults, ...

Can MS patients exercise on the second test?

In fact, the active healthy person and the MS and HIV patients all significantly improved their ability to exercise on the second test (their energy consumption at anaerobic threshold increased). Not so with the two ME/CFS patients. Exercise one day whacked their ability to exercise the next day.

What did Systrom suggest about exercise intolerance?

Systrom noted how different the people with idiopathic exercise intolerance are than people with heart failure and other problems, and emphasized that this is not a small group.

How long did Systrom allow patients to rest?

Then he allowed them to rest for two minutes, then they cycled without load for three minutes, and then Systrom turned the screws on again by increasing the resistance of the pedals.

What is the best medicine for viral onset?

He suggests that drugs like pyridostigmine (Mestinon) and midodrine (ProAmatine) will be most helpful, in particular, in people with viral onset or autoimmune issues.

Is lack of effort a cause of exercise intolerance?

Neither deconditioning nor lack of effort is to blame; in fact, people with unexplained exercise intolerance have the opposite findings to those in deconditioned people. Low blood volume contributes to, but is probably not the main cause, of unexplained exercise intolerance.

Does deconditioning cause exercise intolerance?

Not only was deconditioning not the cause of exercise intolerance but the tests results were opposite to those found in deconditioning.

What is the NIH ME/CFS study group?

Because the disease seems to include multiple major disciplines such as neurology, immunology, infectious diseases and more, the NIH has developed a study group termed "Trans-NIH ME/CFS" that include representatives of various disciplines to report and design clinical studies. This group may provide more clarity on the cause and treatment of this disease.

What is non-refreshing sleep?

Share Your Story. Non-refreshing sleep is a symptom of chronic fatigue syndrome (CFS). Chronic fatigue syndrome (CFS) is defined by two major criteria, chronic severe fatigue for at least 6 months not caused by a diagnosable disease or relieved with rest and at least four other specific symptoms that occur at the same time or after ...

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