Treatment FAQ

where to find treatment for rare epilepsy

by Freida Aufderhar Published 3 years ago Updated 2 years ago
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What is an epilepsy center?

Epilepsy centers provide you with a team of specialists to help you diagnose your epilepsy and explore treatment options. Their goal is to get you the best seizure control possible. Treatments may include medications, surgery, devices, and dietary therapy .

When should you go to an Epilepsy Center for help?

If you have trouble controlling your seizures, find an epilepsy center and get the specialized care you need. Epilepsy centers have experts in the diagnosis, evaluation, and treatment of epilepsy. What is an Epilepsy Center?

What is epilepsy and how is it treated?

Epilepsy is a medical disorder in which seizures can occur anytime, anywhere. An epileptic seizure is an excessive, uncontrolled burst of electrical activity from nerve cells in the brain – essentially an electrical storm.

Are there alternative treatments for epilepsy?

It’s rare that doctors would recommend only lifestyle changes or complementary/alternative treatments for epilepsy; however, these might work sometimes. I recently had a patient who, after experiencing a single seizure, was diagnosed with a genetic form of epilepsy.

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Where is the best place to treat epilepsy?

Nationally recognized expertise. The National Association of Epilepsy Centers rates Mayo Clinic campuses in Minnesota, Florida and Arizona as Level 4 epilepsy centers, providing the highest level of diagnosis and treatment options for people with epilepsy.

What is considered a rare epilepsy?

Causes of the epilepsies are grouped into 5 categories: genetic, structural, metabolic, immune-related, or infection. Although epilepsy as a diagnosis is not rare, many causes of epilepsy may be rare. When the underlying cause of epilepsy impacts fewer than 200,000, it is considered a rare epilepsy.

Which doctor is best for epilepsy?

neurologistA neurologist, a doctor who specializes in the brain and nervous system, is best able to diagnose and treat epilepsy. Some neurologists take advanced training and become epileptologists, specialists in the diagnosis and treatment of epilepsy.

What is the most severe type of epilepsy?

Tonic-clonic seizures. Tonic-clonic seizures, previously known as grand mal seizures, are the most dramatic type of epileptic seizure. They can cause an abrupt loss of consciousness and body stiffening, twitching and shaking. They sometimes cause loss of bladder control or biting your tongue.

Can surgery cure seizures?

Epilepsy surgery is most effective when seizures always occur in a single location in the brain. Epilepsy surgery is not the first line of treatment but is considered when at least two anti-seizure medications have failed to control seizures.

Does epilepsy get worse with age?

The incidence of any type of seizure increases substantially over the age of 60, commonly due to other neurological conditions such as dementia or stroke.

What is the best hospital for epilepsy?

The National Association of Epilepsy Centers (NAEC) rates all Mayo Clinic campuses as level 4 epilepsy centers, providing the highest level of diagnosis and treatment options for people with epilepsy.

Do all neurologists treat epilepsy?

Your regular doctor will probably refer you to a neurologist or an epileptologist, a doctor with specific training in diagnosing and treating epilepsy. The specialist will typically order more tests to find the cause of your epilepsy, and they will prescribe medicine to prevent more seizures.

What are 3 causes of epilepsy?

Causes of epilepsya stroke.a brain tumour.a severe head injury.drug abuse or alcohol misuse.a brain infection.a lack of oxygen during birth.

Is epilepsy a disability?

Is Epilepsy Considered A Disability? Epilepsy is considered a disability and it has a listing in the Social Security Administration (SSA) Blue Book. For epilepsy to qualify for disability benefits, it must meet the criteria of the Blue Book listing. There are different listings for epilepsy in the Blue Book.

Does epilepsy shorten your life?

Summary: On average, people with epilepsy live 10-12 years fewer than those who do not have the condition. Excess mortality is particularly pronounced among people with epilepsy and mental disorders. On average, people with epilepsy live 10-12 years fewer than those who do not have the condition.

Are you born with epilepsy or does it develop?

It can also happen during birth. You may not get epilepsy until long after your brain injury -- sometimes years later. Brain conditions. Most cases of epilepsy in people older than 35 happen because of brain damage from a stroke or even after brain surgery.

Where is the most common location for epilepsy surgery?

This is called intracranial EEG. The most common location in the brain for epilepsy surgery is the temporal lobe. About 60 percent to 80 percent of patients become seizure-free with this type of surgery. A new technique is laser surgery, which involves destroying the seizure focus with heat rather than removing it.

What is epilepsy MRI?

Epilepsy is a neurologic disorder that causes unexpected and recurrent epileptic seizures. The diagnosis involves conducting a careful neurological history, a 30-minute brain wave study (electroencephalogram or EEG), and imaging of the brain (magnetic resonance imaging or MRI).

What is an epileptic seizure?

An epileptic seizure is an excessive, uncontrolled burst of electrical activity from nerve cells in the brain – essentially an electrical storm. There are many types of seizures that cause symptoms ranging from lightning-fast muscle jerks lasting less than a second ...

How to stop seizures?

Brain surgery. Brain surgery to remove the seizure focus is the most effective method to completely stop seizures. First, we must find the seizure focus and make sure it can be safely removed. This always involves a stay in the epilepsy monitoring unit to record seizures with simultaneous video and EEG.

How long does a seizure last?

There are many types of seizures that cause symptoms ranging from lightning-fast muscle jerks lasting less than a second to full body convulsions lasting two or three minutes. Epilepsy, if not well-controlled, can greatly worsen a person’s quality of life and can cause severe injury or death.

Where are DBS electrodes implanted?

DBS is similar to RNS®, but the electrodes are implanted in a deep brain region called the thalamus. It has been shown effective for focal seizures, which start consistently in one specific area of the brain. Unlike RNS, it stimulates on a regular basis rather than triggering only when a seizure starts. The stimulation is directly within the brain. Also unlike RNS, it is not necessary to localize where the seizure starts. As of May 2018, the FDA has approved DBS for patients with focal epilepsy.

Is Epidiolex safe for Dravet Syndrome?

As of May 2018, there have been two major, scientifically rigorous clinical studies that have shown that Epidiolex, a form of CBD oil pending FDA approval, is relatively safe and effective in Dravet Syndrome and the Lennox-Gastaut Syndrome.

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Diagnosis

Treatment

Clinical Trials

  • Explore Mayo Clinic studiestesting new treatments, interventions and tests as a means to prevent, detect, treat or manage this condition.
See more on mayoclinic.org

Lifestyle and Home Remedies

  • Understanding your condition can help you take better control of it: 1. Take your medication correctly.Don't adjust your dosage before talking to your doctor. If you feel your medication should be changed, discuss it with your doctor. 2. Get enough sleep.Lack of sleep can trigger seizures. Be sure to get adequate rest every night. 3. Wear a medical alert bracelet.This will help emergency …
See more on mayoclinic.org

Coping and Support

  • Uncontrolled seizures and their effects on your life may at times feel overwhelming or lead to depression. It's important not to let epilepsy hold you back. You can still live an active, full life. To help cope: 1. Educate yourself and your friends and familyabout epilepsy so that they understand the condition. 2. Try to ignore negative reactions from people.It helps to learn about epilepsy so …
See more on mayoclinic.org

Preparing For Your Appointment

  • You're likely to start by seeing your family doctor or a general practitioner. However, in some cases when you call to set up an appointment, you may be referred immediately to a specialist, such as a doctor trained in brain and nervous system conditions (neurologist) or a neurologist trained in epilepsy (epileptologist). Because appointments can b...
See more on mayoclinic.org

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