Treatment FAQ

when you get diagnosed with cancer but dont want treatment

by Josefa Jerde Published 2 years ago Updated 2 years ago
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In other cases, a person with a slow-growing tumor may feel the need to "act and treat," even if there is no evidence to support early treatment. This is because the word “cancer” makes the diagnosis feel urgent, and it is hard to feel like one is "doing nothing."

Full Answer

Why do people choose not to have cancer treatment?

Some people choose not to have treatment at all. People with very advanced cancers sometimes find they'd rather treat the pain and other side effects of their cancer so that they can make the best of the time they have remaining. If you choose not to be treated, you can always change your mind.

What should I do if my cancer treatment is unsuccessful?

If your cancer is at a later stage or if previous treatments have been unsuccessful, you might adjust your goal to controlling your cancer. Different treatments may attempt to temporarily shrink your cancer or stop it from growing. If this is your goal, you might not be willing to endure the side effects of harsher treatments. Comfort.

Can cancer be diagnosed early and treated?

But many types of cancers can be diagnosed early, before symptoms form. You have the best chance at survival and a healthy quality of life if your cancer is diagnosed and treated in its early stages.

Do all types of cancer require treatment?

Not every cancer requires treatment. Some cancers have a very long natural history and for people who are older (and I don't mean elderly) treatment may not be necessary, although careful monitoring is. Low grade prostate cancer falls into that group.

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Can a cancer patient refuse treatment?

"Refusenik" patients—as Time dubbed them—are a distinct phenomenon from patients who decline end-of-life care. Instead, these patients typically make the decision to forgo care soon after diagnosis, and the treatments they refuse could cure or control the disease.

What would you do if a cancer patient decided that they did not want treatment?

If you feel your loved one is refusing treatment because of denial, or because of fear of undergoing treatment, talk to the oncologist. You may want to visit a counselor or support group together.

What happens if you have cancer and it goes untreated?

For some people, the cancer can't be controlled anymore and spreads to healthy tissues and organs. Cancer cells take up the needed space and nutrients that the healthy organs would use. As a result, the healthy organs can no longer function. For other people, complications from treatment can cause death.

How Long Can cancer patient live without treatment?

The pooled mean survival for patients without anticancer treatment in cohort studies was 11.94 months (95% CI: 10.07 to 13.8) and 5.03 months (95% CI: 4.17 to 5.89) in RCTs.

How long can cancer untreated?

If you're wondering how long you can have cancer without knowing it, there's no straight answer. Some cancers can be present for months or years before they're detected. Some commonly undetected cancers are slow-growing conditions, which gives doctors a better chance at successful treatment.

Can cancer go away by itself?

It's rare for cancer to go away on its own without treatment; in almost every case, treatment is required to destroy the cancer cells. That's because cancer cells do not function the way normal cells do.

What happens if you don't want chemo?

Can you refuse chemotherapy? Yes. Your doctor presents what he or she feels are the most appropriate treatment options for your specific cancer type and stage while also considering your overall health, but you have the right to make final decisions regarding your care.

Can cancer go into remission without treatment?

Spontaneous. Cancer goes into remission without therapy that's considered adequate to otherwise lead to remission. This is rare and usually happens after a fever or infection.

Why did Joan Crawford refuse treatment?

In the 1960s, film actress Joan Crawford refused treatment for her pancreatic cancer because of her faith as a Christian Scientist.

What is the importance of preparing for the end of your life?

That means getting important documents together, and storing them with a lawyer or in a safe deposit box. That might include insurance records, bank statements, trusts, and a will.

Can cancer be cured?

It’s not the easiest thing in the world to come to grips with, but not all cancer cases can be cured. Sometimes, cancer progresses to a point where it can’t be treated, and sometimes treatment simply stops working. Even when treatment may extend a person’s life, some people find that the side effects of that treatment makes life unbearable.

Is refusing cancer treatment a medical decision?

That’s why it’s important to recognize that refusing cancer treatment is not only a medical decision, but a personal decision, as well.

How many women refused breast cancer surgery?

It compared patients who refused breast cancer with those that those that accepted surgery. Only 1.3% of women (70) refused surgery. Of that group, 37 had no treatment, 25 had hormone-therapy only, and 8 had other types of treatments.

How long does breast cancer last?

(An old study of untreated breast cancer suggest the 5 year survival rates are 18% at 5 years and 3.6% at 10 years.)

Is CAM a substitute for medicine?

Surveys suggest the vast majority of consumers with medical conditions use CAM in addition to, rather than as a substitute for medicine – that is, it is truly “complementary”. But there is a smaller population that uses CAM as a true “alternative” to medicine.

Can you opt out of follow up on cancer?

Most patients who decide to opt-out of cancer treatment, also opt-out of any follow-up evaluation. So tracking down patients, and their outcomes, is essential. The effects of treatment refusals and delay, and the effectiveness of CAM as a substitute, has been evaluated in several groups of patients with breast cancer.

Is it reasonable to say no to palliative care?

Saying “ no” may also be reasonable where the benefits from treatment are expected to be modest, yet the adverse effects from treatments are substantial. These scenarios are not uncommon in the palliative care setting.

Is treatment without risk?

No treatment is without some sort of risk. And a decision to decline treatment has its own risks. One of the challenges that I confront regularly as a pharmacist is helping patients understand a medication’s expected long-term benefits against the risks and side effects of treatment.

Is breast cancer curable?

Breast cancer is well studied, frequently diagnosed, and if detected early, potentially curable. Conventional treatment for early (localized) breast cancer is surgical resection of the tumor, followed by radiation and chemotherapy to reduce the risk of disease recurrence, by killing any residual cancer cells that remain.

What is low grade prostate cancer?

Low grade prostate cancer falls into that group. With small volume Gleason 6 or less, active surveillance with monitoring of PSA and periodic biopsies to establish stability have similar survival rates as surgery or radiation without the well known side effects.

Does prostate cancer require treatment?

Not every cancer requires treatment. Some cancers have a very long natural history and for people who are older (and I don't mean elderly) treatment may not be necessary, although careful monitoring is. Low grade prostate cancer falls into that group.

How to make a reasonable treatment decision?

To make a reasonable treatment decision, keep in mind the type of cancer you have, its stage, what treatment options are available and how likely these treatments are to work under these circumstances. Talk to your doctor about trustworthy websites, books and patient education materials to supplement your discussions.

What to do if you don't feel supported?

If you don't feel supported in your decision-making, contact advocacy groups such as the American Cancer Society, which can put you in touch with cancer survivors who may be able to help you through this process. It might help to write down your expectations and preferences before you meet with your doctor.

How to make sure you're getting the information you need to make an informed decision?

Effective communication with your doctor is the best way to make sure you're getting the information you need to make an informed decision. To make communicating with your doctor easier, try to: Speak up when you don't understand. If you need further explanation or clarification, tell your doctor.

Can you endure the side effects of harsher treatments?

If this is your goal, you might not be willing to endure the side effects of harsher treatments. Comfort. If you have an advanced stage of cancer or a cancer that hasn't responded to treatments, you might decide that comfort is most important to you.

Can you cure cancer?

When you're first diagnosed, it's likely you'll be interested in treatments that cure cancer. When a cure is possible, you may be willing to endure more short-term side effects in return for the chance at a cure. Ask your doctor about your chances for a cure to help you understand more about your situation. Control.

Why do people decline chemotherapy?

Many patients decline chemotherapy for low odds of benefit especially if they have gotten very weak or have other symptoms that make their quality of life very poor. This question originally appeared on Quora - the place to gain and share knowledge, empowering people to learn from others and better understand the world.

What happens when you die from cancer?

The most frequent outcome when cancer patients die is that whatever pain they have is controlled with narcotics and or sedatives. There often comes a point in poorly treatable cancer situations that the treatment is as bad or worse than the disease.

Can cancer be treated with radiation?

Cancers metastatic to bone are often painful but in some cases the discomfort is mild or more severe pain can be relieved with radiation therapy. There are specialists who assist in managing ...

Is pancreatic cancer bad for you?

Some cancers are more associated with pain than others. Pancreatic cancer can be particularly bad when it grows into nerves near the back of the pancreas. But I’ve had many patients with pancreatic cancer where pain wasn’t a problem. Instead, like many other patients with advanced cancers, they became weaker and more frail as their cancer worsened, ...

Why don't people want to have antibiotics?

Some people feel so tired and weak that they don’t want to have medicines that could extend their life. For example, someone who gets a severe infection could choose not to have antibiotics, even if they know that without them they will die very soon.

What is it called when you can't restart your heart?

Trying to restart them is called cardiopulmonary resuscitation (CPR). Of course, it might be very upsetting for you and your family to hear this.

Can you refuse treatment at the end of life?

Deciding to refuse treatment. Towards the end of life you might want to make some decisions about your care, including any instructions for refusing treatment. It can sometimes be very difficult to know what care and treatment to have when you are near the end of life.

Can you change your mind later?

You can change your mind later if you want to. In the UK, as an adult you can refuse medical care and treatment if you don't want to have it. Doctors can only give you treatment and medicines with your permission.

Can family accept you don't want further treatment?

It can sometimes be very hard for your family and friends to accept that you don’t want any further treatment. You could ask your doctor or nurse to talk to your family and explain how you feel, if this is a problem for you.

Can you refuse CPR?

You also have the right to refuse CPR. You can discuss your views about CPR with your healthcare team. You can tell them whether or not you want them to try it. The doctors take your wishes into account, but you can’t insist on having CPR. Your healthcare team can decide not to try it if they think it won’t work.

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Who Uses Cam Instead of Medicine?

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Surveys suggest the vast majority of consumers with medical conditions use CAM in addition to, rather than as a substitute for medicine – that is, it is truly “complementary”. But there is a smaller population that uses CAM as a true “alternative” to medicine. A study by Nahin et al in 2010 looked at data from the 2…
See more on sciencebasedmedicine.org

Effectiveness Evaluations

  • The data show that avoiding or delaying conventional cancer care is associated with negative outcomes, and CAM used does not seem to modify this risk. But have any specific CAM interventions shown any benefit? Probably the most comprehensive single review is asystematic review by Gerber et al, published in Breast Cancer Research and Treatment in 2006, which looke…
See more on sciencebasedmedicine.org

Conclusion: Alternative Medicine Isn’T Real Medicine

  • Despite widespread claims, there is no evidence to support the use of any CAM treatment as a replacement for conventional cancer care. As the studies in breast cancer show, delaying treatment or substituting CAM for conventional cancer care dramatically worsens outcomes.The results of these studies will hopefully provide patients and health provide...
See more on sciencebasedmedicine.org

References

  • 1. Verkooijen HM, Fioretta GM, Rapiti E, Bonnefoi H, Vlastos G, Kurtz J, Schaefer P, Sappino AP, Schubert H, & Bouchardy C (2005). Patients’ refusal of surgery strongly impairs breast cancer survival. Annals of surgery, 242 (2), 276-80 PMID: 16041219 2. Chang EY, Glissmeyer M, Tonnes S, Hudson T, & Johnson N (2006). Outcomes of breast cancer in patients who use alternative thera…
See more on sciencebasedmedicine.org

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