
No Benefit: If the patient or loved one has been on the medication for quite some time and now her dementia has progressed to the late stages, physicians and pharmacists will sometimes recommend discontinuing the medication if there is no observed benefit.
How do you decide when to treat a person with dementia?
You may have to make a treatment decision based on the person’s comfort at one end of the spectrum and extending life or maintaining abilities for a little longer at the other. With dementia, a person’s body may continue to be physically healthy while his or her thinking and memory are deteriorating.
When is it safe to discontinue medication for dementia?
No Benefit: If the patient or loved one has been on the medication for quite some time and now her dementia has progressed to the late stages, physicians and pharmacists will sometimes recommend discontinuing the medication if there is no observed benefit.
What happens when a person is diagnosed with dementia?
Someone newly diagnosed with dementia might not be able to imagine the later stages of the disease. But when a person is first diagnosed with Alzheimer’s or another dementia, it’s important to make plans for the end of life before the person with the disease can no longer complete advance directives and other important legal documents.
What questions should I ask the doctor if I have dementia?
Even in the early stages of dementia, it's good to take a family member, friend or caregiver along to help you remember the information you're given. For dementia, basic questions to ask the doctor include: What is likely causing my symptoms? Are there other possible causes for my symptoms?

When should dementia medication be stopped?
These medications should be stopped if the desired effects—stabilizing cognitive and functional status—are not perceived within a reasonable time, such as 12 weeks. In some cases, stopping cholinesterase inhibitor therapy may cause negative effects on cognition and neuropsychiatric symptoms.
How do you know the end-stage of dementia?
Signs of late-stage dementiaspeech limited to single words or phrases that may not make sense.having a limited understanding of what is being said to them.needing help with most everyday activities.eating less and having difficulties swallowing.bowel and bladder incontinence.More items...•
What happens if you stop taking dementia medicine?
Terminating treatment, especially abruptly, is not without consequences for the patient. It has been reported that intense hallucinations can occur after sudden donepezil withdrawal [2]. One published study has suggested that discontinuation of treatment with donepezil may bring withdrawal symptoms [3].
Do dementia patients have the right to refuse medication?
PERSON'S WISHES A person with dementia has the legal right to limit, refuse or stop medical treatments.
How long does end stage dementia last?
However, end-stage dementia may last from one to three years. As the disease advances, your loved one's abilities become severely limited and their needs increase. Typically, they: have trouble eating and swallowing.
Can dementia get worse suddenly?
Rapidly progressive dementias or RPDs are extremely rare, but can cause dementia to worsen over weeks and months. RPDs can be caused by complex medical conditions such as Autoimmune conditions, cancer, and neurodegenerative diseases – i.e diseases that damage the body's nervous systems.
Can dementia medication make dementia worse?
Common prescription and over-the-counter medications called anticholinergics (anti-col-in-er-jik; hear it) have side effects that can worsen existing Alzheimer's or dementia symptoms.
What happens when you stop taking medication?
Discontinuing a medication abruptly can often be associated with unpleasant side effects and worsening of symptoms based on your drug treatment, its chemistry profile, and how your drug is broken down (metabolized) and excreted from your body.
How long should you stay on donepezil?
Long term efficacy data suggest that improvements in cognition, global function or ADL are maintained for about 21 to 81 weeks with donepezil (10 mg/day in most patients). Donepezil is generally well tolerated with the majority of adverse events being mild and transient.
What if a person with dementia refuses help?
If a parent with dementia is refusing to receive care for urgent medical issues, try asking them why they don't want to see the doctor. Next, you can address those concerns with compassion and understanding to help your loved one feel better about the appointment.
What do you do when a loved one refuses treatment?
What to Do if Your Loved One Refuses to See a DoctorBe transparent and direct. ... Convince them that it's their idea. ... Make it a "double-checkup" ... Make the rest of the day as enjoyable as possible. ... Get someone who is an authority figure to help.
What should you do if a patient refuses medication?
Refusal of Prescribed MedicationTry to find out the reason why e.g. unpleasant side effects? ... Explain calmly the consequences of not taking their prescribed medication.If no reason given, wait a while and ask again.If the medication is still refused, record on the MAR chart using the correct code.More items...
What happens if you stop taking a drug?
Stopping and restarting. If someone stops taking their prescribed drug, their condition may get worse more quickly. If someone has stopped and thinks they should start their medication again, they should talk to their doctor as soon as possible.
Should dementia patients stop taking medication?
If the person with dementia decides to stop taking a drug, they should speak to the doctor first if possible, or as soon as they can after stopping treatment.
Can cholinesterase inhibitors help Alzheimer's?
There is now good evidence that cholinesterase inhibitors continue to help even when someone’s Alzheimer’s is severe. Many doctors therefore continue to prescribe a cholinesterase inhibitor for late-stage Alzheimer’s until the person’s side effects become too severe or they become unable to take the medications in the way prescribed. In the last days of a person’s life, doctors will often review their medication. After discussion with someone who knows the person well, the doctor may then decide to stop anti-dementia drugs.
Why is quality of life important for people with dementia?
For example, medicines are available that may delay or keep symptoms from becoming worse for a little while. Medicines also may help control some behavioral symptoms in people with mild-to-moderate Alzheimer’s disease.
How can hospice help with dementia?
Palliative care or hospice can be helpful in many ways to families of people with dementia. Sensory connections—targeting someone’s senses, like hearing, touch, or sight—can bring comfort. Being touched or massaged can be soothing. Listening to music, white noise, or sounds from nature seem to relax some people and lessen their agitation.
Why is end of life care more complicated?
End-of-life care decisions are more complicated for caregivers if the dying person has not expressed the kind of care he or she would prefer. Someone newly diagnosed with Alzheimer’s disease might not be able to imagine the later stages of the disease.
Why is it so difficult to make end of life decisions?
Making Difficult End-of-Life Decisions for a Person with Dementia. Dementia causes the gradual loss of thinking, remembering, and reasoning abilities, making it difficult for those who want to provide supportive care at the end of life to know what is needed. Because people with advanced dementia can no longer communicate clearly, ...
Why was Alma forgetful?
Alma had been forgetful for years, but even after her family knew that Alzheimer’s disease was the cause of her forgetfulness, they never talked about what the future would bring. As time passed and the disease eroded Alma’s memory and ability to think and speak, she became less and less able to share her concerns and wishes with those close to her.
Can dementia affect memory?
You may have to make a treatment decision based on the person’s comfort at one end of the spectrum and extending life or maintaining abilities for a little longer at the other. With dementia, a person’s body may continue to be physically healthy while his or her thinking and memory are deteriorating. This means that caregivers and family members ...
Is dementia unpredictable?
Dementia’s Unpredictable Progression. Support for Dementia Caregivers at the End of Life. As they reach the end of life, people suffering from dementia can present special challenges for caregivers. People can live with diseases such as Alzheimer’s or Parkinson’s dementia for years, so it can be hard to think of these as terminal diseases.
What is the best medication for Alzheimer's?
Exelon (rivastigmine): Approved for mild to moderate Alzheimer's 5. Razadyne (galantamine): Approved for mild to moderate Alzheimer's 6. N-Methyl D-Aspartate (NMDA) Antagonists 7. Namenda (memantine) is another medication that is used to try to slow down the progression of dementia and is approved for use in moderate to severe Alzheimer's disease.
What are the behavioral challenges of discontinuing a medication?
The researchers found that those whose medications were discontinued experienced more behavioral challenges such as repetitive questioning and frequent health concerns. This group also participated less in activities compared to those who were still on their medication.
What is the only drug approved for Alzheimer's?
Amyloid Beta-Directed Antibody. Aduhelm (aducanumab) is the only drug approved for Alzheimer's that is directed at reducing amyloid beta plaques in the brain—the underlying cause of the disease. 9.
Do medications help dementia?
Benefits of Medications. Medications are prescribed for people with dementia with the hope of slowing down the progression or even improving the cognitive functioning for a time. 2 Research has shown that there is often some benefit from these medications, although they don't cure the disease.
Can you discontinue a medication for dementia?
No Benefit: If the patient or loved one has been on the medication for quite some time and now her dementia has progressed to the late stages, physicians and pharmacists will sometimes recommend discontinuing the medication if there is no observed benefit.
Does the Mind diet help with Alzheimer's?
When it comes to Alzheimer's, the MIND diet has shown promise in reducing risk and promoting brain health. Sign up for our Alzheimer’s and Dementia Newsletter and get your free recipe guide today.
Can you restart a medication after discontinuing it?
If a notable decline in functioning develops after discontinuation, restarting the medication sooner rather than later may increase the likelihood of the person returning close to his previous (prior to stopping the medicine) level of functioning.
How to slow the progression of Alzheimer's disease?
Some research also shows that physical activity might slow the progression of impaired thinking in people with Alzheimer's disease, and it can lessen symptoms of depression. Engage in activity. Plan activities the person with dementia enjoys and can do.
How to help dementia patients with confusion?
Simplifying tasks. Break tasks into easier steps and focus on success, not failure. Structure and routine also help reduce confusion in people with dementia.
How to help a loved one remember upcoming events?
Keep a calendar . A calendar might help your loved one remember upcoming events, daily activities and medication schedules. Consider sharing a calendar with your loved one. Plan for the future. Develop a plan with your loved one while he or she is able to participate that identifies goals for future care.
What tests can be done to determine if a person has a degenerative disease?
Laboratory tests. Simple blood tests can detect physical problems that can affect brain function, such as vitamin B-12 deficiency or an underactive thyroid gland. Sometimes the spinal fluid is examined for infection, inflammation or markers of some degenerative diseases.
What scans show Alzheimer's disease?
CT or MRI. These scans can check for evidence of stroke or bleeding or tumor or hydrocephalus. PET scans. These can show patterns of brain activity and whether the amyloid or tau protein, hallmarks of Alzheimer's disease, have been deposited in the brain.
What does a doctor do for a physical?
Your doctor will review your medical history and symptoms and conduct a physical examination. He or she will likely ask someone close to you about your symptoms as well.
Can dementia be cured?
Most types of dementia can't be cured, but there are ways to manage your symptoms.
When treatment over a patient's objection would be appropriate?
KP: A simple example of when treatment over a patient’s objection would be appropriate is if a psychotic patient who had a life-threatening, easily treatable infection was refusing antibiotics for irrational reasons. Treatment would save the patient’s life without posing significant risk to the patient.
What are the first few questions in a treatment plan?
The first few questions consider the imminence and severity of the harm expected to occur by doing nothing as well as the risks, benefits, and likelihood of a successful outcome with the proposed intervention. Other questions consider the psychosocial aspects of this decision—how will the patient feel about being coerced into treatment? What is the patient’s reason for refusing treatment? The last question concerns the logistics of treating over objection: Will the patient be able to comply with treatment, such as taking multiple medications on a daily basis or undergoing frequent kidney dialysis?
Is there anything out there to help health care professionals approach the problem of delivering medical treatment against the wishes of patients?
And there are fairly clear policies and laws concerning the ethics and legality of delivering psychiatric care to patients who refuse it. But there is nothing out there to help health care professionals approach the problem of delivering medical treatment against the wishes of patients who lack decisional capacity.
Can you force dialysis on a patient who resists?
As Dr. Rubin stated, one cannot force three times weekly dialysis sessions on a resistant patient even if it means that the patient will die without the treatment.
Why should dementia patients not be told the truth?
They experience their illness and deserve an explanation of what is happening to them. Moreover, cognitive deficits do not remove their right to know the truth—they only make it more difficult for the physician to provide understandable information to the patient. Lying and deceiving seem to deny them due respect and degrade their dignity. As in any other group of disorders, patients with dementia require affirmation because they are persons, not just because they have been examined and found rational and competent. The truth may be neither fully understood nor remembered by the patient and difficult for the physician, but neither of these problems should remove the obligation to be honest and truthful.
What did participants with dementia want to know?
Ten wanted to know their diagnoses, 5 were interested in the possibility of improvement, and 1 wished to know more about the causes of the disorder. Sometimes they could not specify what exactly they would like to know (4 participants), but some of their questions might have been difficult to answer, for example: “Why me?” or “How long will I suffer?”
What is dementia in medical terms?
Dementia is a syndrome, usually of a chronic and progressive nature, in which there is decline of cognitive functions, accompanied by deterioration in emotional control, language skills, and social behavior. It occurs in Alzheimer disease, cerebrovascular disorders, and other conditions primarily or secondarily affecting the brain. Although dementia may begin at any age, most frequently it affects elderly persons, particularly after age 75 years. In most cases, its course is irreversible; despite significant progress, no effective treatment is currently available. Trying to help people with dementia is not only a challenge to physicians' professional skills but also confronts us with difficult questions about the limits of individual autonomy and medical paternalism, the dignity of persons, and their best interests.
What should a psychiatrist inform the patient about?
The psychiatrist should inform the patient of the nature of the condition, therapeutic procedures, including possible alternatives, and of the possible outcome. This information must be offered in a considerate way, and the patient must be given the opportunity to choose between appropriate and available methods.
Do psychiatric consultants always tell patients about dementia?
In this article, I address an apparently simple problem concerning the giving of diagnostic information to people with dementia. A recent survey of old age psychiatry consultants showed that most of them “rarely” or only “sometimes” informed their patients about the diagnosis and almost never about the prognosis. Providing information seemed to depend on the level of impairment. In all, 38% of consultants “nearly always” informed patients with mild dementia, but in those with moderate and severe dementia, only 13% and 6%, respectively, discussed the diagnosis with their patients. However, 98% of the respondents “nearly always” informed patients' families and carers about the diagnosis and prognosis.1Similar practice has been observed among geriatricians, although they tend to tell their patients with mild dementia more and their carers less than psychiatrists do.22
Do patients with dementia have to enter social contracts?
However, many patients with dementia arguably are not able to enter any social contract simply as a direct result of their cognitive impairment, and the primary obligation of their physicians remains the principle “not to harm.” It has also been claimed that physicians, like everyone else, have a duty not to lie but are not duty-bound to avoid deception.24
Who should give information about a patient's illness?
Where the participants specified whom they would wish to give them information about their illnesses, most (8/12) preferred that it should be their physician. Only rarely did patients feel that they should receive the information from other persons such as family members (2 participants) or anybody with adequate knowledge (2 participants).
