Treatment FAQ

what to expect when starting treatment for lyme disease

by Walter Ortiz Published 3 years ago Updated 2 years ago
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What to Expect When Starting Lyme Treatment

  • Depending on how long you’ve been infected—it’s going to be a long road. (It’s not uncommon for it to take years.) So...
  • It’s not just Lyme. More than likely you have co-infections, too. Those are accompanying infections that were also...
  • I’ll just say this bluntly. Treatment sucks. It will get worse before it gets better. I...

Full Answer

What are the early signs and symptoms of Lyme disease?

May 13, 2020 · What to Expect When Starting Lyme Treatment Depending on how long you’ve been infected—it’s going to be a long road. (It’s not uncommon for it to take years.) So... It’s not just Lyme. More than likely you have co-infections, too. Those are accompanying infections that were also... I’ll just say ...

Can Lyme disease come back after being treated?

Mar 01, 2022 · Erythema migrans Neurologic Lyme disease Lyme carditis Lyme arthritis Some patients report persistent symptoms of pain, fatigue, or difficulty thinking even after treatment for Lyme disease. The state of the science relating to persistent symptoms associated with Lyme disease is limited, emerging, and unsettled. Additional research

What are the long term effects of Lyme disease?

If you're just starting treatment, you're probably feeling ambivalent, uncertain and curious as to how your body is going to respond. At the moment, you're probably just experiencing your normal Lyme symptoms, as crippling as they are. After starting an antibiotic regiment, you are either going to experience 1 of 2 things.

What should I expect after a Lyme disease diagnosis?

Most people receive medicine by IV for 2 to 3 weeks. During this time, your doctor will also try to ease some of your symptoms and any pain you’re in. This could involve physical therapy,...

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How long does it take to feel better after starting antibiotics for Lyme disease?

Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment. This condition is called Post-Treatment Lyme Disease Syndrome (PTLDS).

Do Lyme symptoms get worse during treatment?

Some people who catch Lyme disease, and are treated with antibiotics, feel ill for longer than six months. Symptom relapse occurs for some patients. They start to feel better, but then feel worse again either immediately, or some months, after they have finished their course of antibiotics.

How do you know if Lyme disease treatment is working?

As with many infectious diseases, there is no test that can “prove” cure. Tests for Lyme disease detect antibodies produced by the human immune system to fight off the bacteria (Borrelia burgdorferi) that cause Lyme disease. These antibodies can persist long after the infection is gone.

How long do initial Lyme disease symptoms last?

Begins at the site of a tick bite after a delay of 3 to 30 days (average is about 7 days) Expands gradually over several days reaching up to 12 inches or more (30 cm) across. May feel warm to the touch but is rarely itchy or painful. Sometimes clears as it enlarges, resulting in a target or “bull's-eye” appearance.

Is Lyme worse before better?

2 said, “you'll feel much worse before you feel better. When the bacteria die, they release a toxic gas. It's called a Herxheimer reaction. Your symptoms will intensify, and you'll likely have some new ones.Apr 1, 2016

What does a HERX feel like?

Herxheimer or Herx Reactions are a short-term (from days to a few weeks) detoxification reaction in the body. As the body detoxifies, it is not uncommon to experience flu-like symptoms including headache, joint and muscle pain, body aches, sore throat, general malaise, sweating, chills, nausea, or other symptoms.

What does Lyme disease fatigue feel like?

Tiredness, exhaustion, and lack of energy are the most frequent symptoms. The Lyme fatigue can seem different from regular tiredness, where you can point to activity as a cause. This fatigue seems to take over your body and can be severe.

Can Lyme disease flare up after treatment?

In rare cases, you may experience a continuation of Lyme disease symptoms after antibiotic treatment. This is called post-treatment Lyme disease syndrome (PTLDS).

What makes Lyme disease worse?

Triggers for Lyme disease vary by person, but they can include: emotional stress (such as a divorce, death in the family, or accidents) physical stress to the body (i.e., surgery, physical harm, concussion) life stress or stressful events.

How do you know what stage of Lyme disease you have?

Lyme disease diagnosis

Blood tests are most reliable a few weeks after the initial infection, when antibodies are present. A healthcare professional may order the following tests: Enzyme-linked immunosorbent assay (ELISA) is used to detect antibodies against B. burgdorferi.

How do you feel when you have Lyme disease?

Erythema migrans is one of the hallmarks of Lyme disease, although not everyone with Lyme disease develops the rash. Some people develop this rash at more than one place on their bodies. Other symptoms. Fever, chills, fatigue, body aches, headache, neck stiffness and swollen lymph nodes can accompany the rash.Oct 24, 2020

How long does doxycycline take to work for Lyme?

For early Lyme disease, a short course of oral antibiotics, such as doxycycline or amoxicillin, cures the majority of cases. In more complicated cases, Lyme disease can usually be successfully treated with three to four weeks of antibiotic therapy.

How long does it take to recover from lyme disease?

Lyme arthritis. The National Institutes of Health (NIH) has funded several studies on the treatment of Lyme disease that show most people recover within a few weeks of completing a course of oral antibiotics when treated soon after symptom onset.

What is the treatment for lyme disease?

People with other forms of disseminated Lyme disease may require longer courses of antibiotics or intravenous treatment with antibiotics such as ceftriaxone. For more information about treating other forms of Lyme disease, see: Neurologic Lyme disease. Lyme carditis.

How long does a lyme disease last?

In a small percentage of cases, symptoms such as fatigue (being tired) and myalgia (muscle aches) can last for more than 6 months. This condition is known as post-treatment Lyme disease syndrome (PTLDS), although it is also sometimes called chronic Lyme disease.

Can you treat lyme disease with antibiotics?

People treated with appropriate antibiotics in the early stages of Lyme disease usually recover rapidly and completely. Early diagnosis and proper antibiotic treatment of Lyme disease can help prevent late Lyme disease. Treatment regimens listed in the following table are for the erythema migrans rash, the most common manifestation ...

Can you take antibiotics for lyme disease?

Antibiotics are the only proven treatment for Lyme disease. Some people who have unexplained signs and symptoms or chronic disease might believe they have Lyme disease even if it's not been diagnosed. There are a variety of alternative treatments that people with Lyme disease or people who think they have Lyme disease turn to for relief.

What is the test used to detect lyme disease?

Enzyme-linked immunosorbent assay (ELISA) test. The test used most often to detect Lyme disease, ELISA detects antibodies to B. burgdorferi. But because it can sometimes provide false-positive results, it's not used as the sole basis for diagnosis. This test might not be positive during the early stage of Lyme disease, ...

Can ticks spread lyme disease?

Many signs and symptoms of Lyme disease are often found in other conditions, so diagnosis can be difficult. What's more, ticks that transmit Lyme disease can also spread other diseases. If you don't have the characteristic Lyme disease rash, your doctor might ask about your medical history, including whether you've been outdoors in ...

How long after an infection can you test for antibodies?

Lab tests to identify antibodies to the bacteria can help confirm or rule out the diagnosis. These tests are most reliable a few weeks after an infection, after your body has had time to develop antibodies. They include: Enzyme-linked immunosorbent assay (ELISA) test.

Can a Western Blot test be positive for lyme disease?

This test might not be positive during the early stage of Lyme disease, but the rash is distinctive enough to make the diagnosis without further testing in people who live in areas infested with ticks that transmit Lyme disease. Western blot test. If the ELISA test is positive, this test is usually done to confirm the diagnosis.

Can Lyme disease cause autoimmune disease?

Some experts believe that certain people who get Lyme disease are predisposed to develop an autoimmune response that contributes to their symptoms. More research is needed. Request an Appointment at Mayo Clinic.

Is Lyme disease harmful?

Unfortunately, these treatments either haven't been proved effective by scientific evidence or haven't been tested. In many cases, they can be harmful, even deadly.

What happens after you start taking antibiotics?

You are either going to immediately start feeling good with a dissipation of symptoms and then feeling the wrath of die off or you're just going to experience die off right off the bat. Now everyone is going to experience die off at a different time.

How long do bad days last?

Bad days can linger for a few days or all the way up to a couple weeks. During this state, your mental stamina is going to be challenged to the max. It will be a complete state of debilitation and self loathing and in all honesty, you may even reach a point where you feel you must end your life. Hold it!

What is the difference between a good day and a bad day?

The difference between a good day and a bad day is day and night. On a good day, you'll question yourself as to whether you have beaten the disease or if you even ever had it in the first place. Don't get cocky here. Your body is still flooded with the spirochetes and you happen to be experiencing a day when they're in hiding or your body is just ...

How long does it take for a lyme disease to go away?

Sometimes, people go through treatment for Lyme disease but their symptoms (feeling run-down and achy) don’t go away. If this lasts over 6 months , it’s known as chronic Lyme disease or “post-treatment Lyme disease syndrome” (PTLDS). Doctors still aren’t sure why some people get PTLDS.

How long does lyme disease last?

If this lasts over 6 months, it’s known as chronic Lyme disease or “post-treatment Lyme disease syndrome” (PTLDS). Doctors still aren’t sure why some people get PTLDS. Some believe that getting Lyme disease may cause damage to your tissues or immune system.

What antibiotics are used for lyme disease?

If your Lyme disease is found soon after you’ve been infected, your doctor will start you on antibiotics: 1 Doxycycline 2 Amoxicillin 3 Cefuroxime

What is the most common disease that ticks carry?

Some ticks carry a type of bacteria called Borrelia burgdorferi. If you’re bitten by an infected tick, this microbe enters your bloodstream and can make you sick with an illness called Lyme disease. It’s the most common illness carried by ticks in the United States. It can damage any organ of your body.

Can Lyme disease be cured?

Lyme disease can be tough to diagnose. Early symptoms such as headaches and body aches are often mistaken for other health problems. Still, it can be cured.

How to get rid of a bacterial infection?

This could involve physical therapy, antidepressants, changes to your diet or types of stretching like yoga. It’s likely this treatment will get rid of the bacteria that’s making you sick. Still, it could take some time for your symptoms to go away. IV antibiotics also come with side effects.

Can IV antibiotics cause diarrhea?

Still, it could take some time for your symptoms to go away. IV antibiotics also come with side effects. These can include diarrhea and a low white blood cell count, which makes it hard for your body to fight off other infections.

How long does it take to cure lyme disease?

Lyme disease is caused by infection with the bacterium Borrelia burgdorferi. Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment.

How long does it take for lyme disease to go away?

Lyme disease is caused by infection with the bacterium Borrelia burgdorferi. Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment.

How do you know if you have Lyme disease?

The Lyme bacteria have spread throughout the body and many patients develop chronic arthritis as well as an increase in neurological and cardiac symptoms. Symptoms may include: arthritis in joints or near the point of infection. severe headaches or migraines. vertigo, dizziness.

How long does it take for lyme to spread?

Early disseminated Lyme may occur several weeks or months after the tick bite. Bacteria are beginning to spread throughout the body. In addition to flu-like symptoms, this stage is often characterized by increase in symptoms such as: chills. fever.

How many stages of lyme disease are there?

Lyme disease occurs in three stages: early localized, early disseminated and late disseminated. However the stages can overlap and not all patients go through all three. A bulls-eye rash is usually considered one of the first signs of infection, but many people develop a different kind of rash or none at all.

What are the symptoms of a bull's eye?

Symptoms may include: skin rash, which may or may not look like a bull’s eye. flu-like illness, including chills and fever. fatigue. headache and stiff neck. muscle soreness and joint pain. swollen lymph nodes. sore throat.

Is lyme disease a laboratory diagnosis?

Lyme disease is a clinical diagnosis made by a doctor or nurse by examining the patient. Acute Lyme disease is not a laboratory diagnosis; a negative Lyme blood test does not exclude Lyme disease in the first few weeks of the illness. Many with Lyme disease have a flu-like illness and NO rash.

How does lyme disease spread?

The Lyme rash can spread through the bloodstream to other areas of the skin. Sometimes blisters develop in the center of the rash. Tick bite reactions are often confused with the rash of Lyme disease. Tick bite reactions: Are small red bumps, less than 1-2” in size.

Can you get sick from a tick?

Removing the Tick. You can’t get sick from a tick that is crawling on you but has not yet attached. Ticks must bite you to spread their germs. If the tick is attached it will be hard to pull off. Tick attachment time is important. Removing ticks as soon as possible reduces the risk of infection. If you or a loved one is bitten, remove ...

Can you get sick from a tick that is crawling on you but has not yet attached?

You can’t get sick from a tick that is crawling on you but has not yet attached. Ticks must bite you to spread their germs. If the tick is attached it will be hard to pull off. Tick attachment time is important. Removing ticks as soon as possible reduces the risk of infection. If you or a loved one is bitten, remove the tick promptly.

How to remove a tick from a person?

If you or a loved one is bitten, remove the tick promptly. Here’s how: Grasp the tick’s mouthparts against the skin, using pointed tweezers. Be patient; the long mouthpart is covered with barbs, so removing it can be difficult and time consuming.

Can you squeeze a tick?

DO NOT squeeze or crush the body of the tick; this may force infected body fluids from the tick into the skin. DO NOT apply substances such as petroleum jelly, nail polish, or a lighted match to the tick while it is attached. They may agitate the tick and force more infected fluid into the skin.

How to get rid of ticks on hands?

Once you have removed the tick, wash the wound site and your hands with soap and water, and apply rubbing alcohol or antiseptic to the site . If you have found a tick on you, it’s a sign there may be others. Do a careful tick check.

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Treatment

  • The first-line standard of care treatment for adults with Lyme disease is doxycycline, a tetracycline antibiotic. Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the cephalosporin, Ceftin. In children under the age of 12, amoxicillin is used because of the possible side effects of doxyc...
See more on hopkinslyme.org

Side effects

  • Antibiotics, like all medications, have the potential for side effects. Any antibiotic can cause skin rashes and if an itchy red rash develops while on antibiotics, a patient should see their physician. Sometimes symptoms worsen for the first few days on an antibiotic. This is called a Herxheimer reaction and occurs when the antibiotics start to kill the bacteria. In the first 24 to 48 hours, thes…
See more on hopkinslyme.org

Prognosis

  • The prognosis after treatment of Lyme disease is generally very good. The majority of people are treated with antibiotics and return to their normal health. The prognosis is best when Lyme disease is diagnosed and treated early and worsens when diagnosis and treatment is delayed. Most patients with early Lyme disease infection recover with antibiotics and return to their norm…
See more on hopkinslyme.org

Roles

  • The causes of PTLDS are not yet well understood but our Center is investigating the potential roles of:
See more on hopkinslyme.org

Research

  • Our research has validated PTLDS as a serious and impairing condition. However, the causes of PTLDS are not yet well understood or validated. The term PTLDS does not mean post-infection or imply an assumption of underlying biologic mechanisms. The roles of immune dysfunction, autoimmunity, persistent bacterial infection, neural network alteration, and other potential causa…
See more on hopkinslyme.org

Terminology

  • Patients are often referred to the Lyme Disease Research Center for evaluation of chronic Lyme disease, an umbrella term that encompasses many different subsets of illness. Examples of defined Lyme disease subsets are Post Treatment Lyme Disease Syndrome (PTLDS), and Antibiotic Refractory Late Lyme Arthritis. The mechanisms of these Lyme disease conditions ar…
See more on hopkinslyme.org

Diagnosis

  • The symptoms of chronic Lyme disease are similar to and overlap with other conditions involving fatigue, pain, and cognitive symptoms. Therefore, rigorous diagnostic evaluation is necessary to determine if Lyme disease could be the trigger for ongoing disease processes or if some other disease processes are involved.
See more on hopkinslyme.org

Diagnosis

  • Many signs and symptoms of Lyme disease are often found in other conditions, so diagnosis can be difficult. What's more, ticks that transmit Lyme disease can also spread other diseases. If you don't have the characteristic Lyme disease rash, your doctor might ask about your medical history, including whether you've been outdoors in the summer where Lyme disease is common, and do …
See more on mayoclinic.org

Treatment

  • Antibiotics are used to treat Lyme disease. In general, recovery will be quicker and more complete the sooner treatment begins.
See more on mayoclinic.org

Alternative Medicine

  • Antibiotics are the only proven treatment for Lyme disease. Some people who have unexplained signs and symptoms or chronic disease might believe they have Lyme disease even if it's not been diagnosed. There are a variety of alternative treatments that people with Lyme disease or people who think they have Lyme disease turn to for relief. Unfortunately, these treatments either haven'…
See more on mayoclinic.org

Preparing For Your Appointment

  • You're likely to start by seeing your family doctor or a general practitioner who might refer you to a rheumatologist, infectious disease specialist or other specialist. Here's some information to help you get ready for you appointment.
See more on mayoclinic.org

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