Treatment FAQ

what can i hope for after treatment is over for interstitial cystitis

by May Feil Published 2 years ago Updated 2 years ago
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Medication

Stimulating these nerves may reduce urinary urgency associated with interstitial cystitis. With sacral nerve stimulation, a thin wire placed near the sacral nerves sends electrical impulses to your bladder, similar to what a pacemaker does for your heart.

Procedures

This is done with a cystoscopy. Prostate fluid culture (in men). Your doctor will need to press on your prostate and milk a sample to test. This is not commonly done. For about half the cases, interstitial cystitis goes away by itself. Among those who need treatment, most find relief and get their lives back to normal.

Therapy

For interstitial cystitis, some basic questions to ask your doctor include: 1 Will my symptoms eventually go away? 2 What kind of tests might I need? 3 Will changing my diet help with my symptoms? 4 Could the medicines I take be aggravating my condition? 5 Are there any medications that would help ease my symptoms? 6 Will I need surgery?

Self-care

The bladder pain people feel with IC can range from a dull ache to piercing pain. Peeing may feel like just a little sting, or it can feel like serious burning. About 5% to 10% of people with the condition get ulcers in their bladder. Who Gets Interstitial Cystitis?

Nutrition

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How do you treat interstitial cystitis?

Can interstitial cystitis go away on its own?

What kind of questions should I ask my doctor about interstitial cystitis?

What does interstitial cystitis (IC) feel like?

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Will I have interstitial cystitis forever?

For about half the cases, interstitial cystitis goes away by itself. Among those who need treatment, most find relief and get their lives back to normal.

How often does IC go into remission?

Symptoms may vary daily or weekly or may be constant and unrelenting for months or years and then resolve spontaneously with or without therapy. Spontaneous remission occurs in as many as 50% of patients at a mean of 8 months. In females, symptoms may fluctuate relative to the ovulatory cycle.

Are there any new treatments for interstitial cystitis?

Dimethylsulfoxide — Dimethylsulfoxide (DMSO) is a liquid medication that has been approved by the US Food and Drug Administration (FDA) to treat interstitial cystitis/bladder pain syndrome (IC/BPS).

How long does it take to recover from interstitial cystitis?

It may take two to four months before you begin to feel pain relief and up to six months to experience a decrease in urinary frequency.

What is end stage interstitial cystitis?

End-stage interstitial cystitis is defined as a hard bladder that triggers intense pain and possesses very low bladder capacity. Many cases of end-stage interstitial cystitis involve Hunner's ulcers. Also known as “end-stage IC”, only about 5% of IC patients develop this severe condition.

Are there stages of interstitial cystitis?

Excessive frequency of urination, urinary urgency, and urethra, bladder or pelvic pain are common symptoms. Treatment is divided into five phases, ranging from lifestyle changes to injections to surgery.

How can I rebuild my bladder lining?

Pentosan polysulfate sodium is the only FDA-approved oral medication for interstitial cystitis. The drug binds to the walls of the bladder, helping replace and repair the lining. Symptom improvement can take up to six months, but several studies have shown moderately positive results.

How long does it take for your bladder to heal?

The urine and blood drain into a collection bag. It usually takes at least 10 days for the bladder to heal.

How do you fix nerve damage in the bladder?

Surgical Treatments If lifestyle or medical treatments do not work, your health care provider may suggest surgery. For patients with overactive bladder symptoms, a surgery called sacral neuromodulation (SNS) is the only surgery available. SNS targets the nerves carrying signals between the spinal cord and the bladder.

Can you live a normal life with interstitial cystitis?

Living with IC can be difficult. Because there is no cure for IC, eating well and managing health is an important way to fend off flare-ups. Planning ahead for travel and other activities can make daily life easier as well. The Interstitial Cystitis Foundation has some tips for eating, exercise and travel.

Can your bladder repair itself?

The bladder is a master at self-repair. When damaged by infection or injury, the organ can mend itself quickly, calling upon specialized cells in its lining to repair tissue and restore a barrier against harmful materials concentrated in urine.

Can interstitial cystitis get worse over time?

The symptoms of IC may stay the same over time or get worse. Some patients may go into remission for extended periods.

What is the best medicine for interstitial cystitis?

Amitriptyline is the medication most commonly prescribed for interstitial cystitis. Elmiron is the only oral drug approved by the FDA specifically for interstitial cystitis. It improves the bladder lining, making it less leaky and therefore less inflamed and painful. The full effect may take three to six months.

How often do you urinate with interstitial cystitis?

Interstitial cystitis is a chronic inflammation of the bladder that causes people to urinate -- sometimes painfully -- as often as 40, 50, or 60 times a day. Their quality of life, research suggests, resembles that of a person on kidney dialysis or suffering from chronic cancer pain.

What is the best medicine for bladder pain?

Antihistamines. Antihistamines such as hydroxyzine (Atarax, Vistaril) interfere with the mast cells' release of histamine, helping to relieve bladder inflammation and pain, urinary frequency, and nighttime voiding. Because antihistamines can cause drowsiness, they are usually best taken at bedtime. Painkillers.

What is the procedure to remove a bladder?

Surgery is usually a last resort and undertaken only when the pain is crippling. The surgical procedure typically involves removal of the bladder and the creation of a new one (a neobladder) using intestinal tissue. Most people need to catheterize the neobladder themselves in order to empty it.

How to reduce urinary frequency?

Some people report that stress reduction, exercise, biofeedback, or warm tub baths improve their symptoms, but no research has evaluated the effectiveness of these strategies. Bladder training -- that is, learning to urinate only at specific times (despite the urge to go) -- can help reduce urinary frequency.

Does DMSO help with bladder lining?

DMSO is sometimes combined with other medications. Hyaluronic acid (Cystistat) Cystistat may help repair the bladder lining. No single treatment alleviates all symptoms, and some may stop working over time, so finding what works is often a matter of trial and error.

Is interstitial cystitis a disability?

Not surprisingly, the condition is officially recognized as a disability. There's no cure for interstitial cystitis, but many treatments offer some relief, either on their own or in combination. Treatment (see chart) is aimed at relieving pain and reducing inflammation.

Medicines

Medicines may be given to decrease symptoms such as pain or the need to urinate urgently or often. Antibiotics may be given for 1 to 5 days to treat a bacterial infection.

Manage your symptoms

Do Physical Therapy exercises as directed. The muscles of the pelvic floor are often tight in patients with IC. Physical therapy sessions can help to restore normal function to the muscles and help to ease pain and and bladder symptoms.

Follow up with your doctor as directed

Write down your questions so you remember to ask them during your visits.

Further information

Always consult your healthcare provider to ensure the information displayed on this page applies to your personal circumstances.

What is interstitial cystitis?

Interstitial Cystitis Treatments. Interstitial cystitis (IC) is a chronic inflammation of the bladder wall. It can cause pain in the pelvic area and bladder, as well as an overactive bladder (urgent or frequent urination). It is often misdiagnosed as a urinary tract infection since, like a UTI, it irritates the bladder and has some ...

What is the best medicine for cystitis?

Pain medication can be used to relieve discomfort in the bladder and pelvic area. This includes over-the-counter drugs like aspirin and ibuprofen, as well as narcotic pain relievers. Tricyclic antidepressants, such as amitriptyline, can relieve pain associated with interstitial cystitis. These drugs prevent the reabsorption ...

How long does it take for bladder instillation to work?

Some patients are even able to administer their own treatment at home. Depending on the medication, it can take anywhere from eight to twelve weeks of treatment before patients experience noticeable results. Bladder instillation can cause pain and irritation due to frequent catheterization.

How to remove CI?

This procedure is done under general anesthesia using a hollow tube inserted into the urethra (cystoscope).

What is bladder distention?

Bladder distention is a procedure in which the bladder is filled to capacity with gas or liquid in order to look for damage in the bladder wall. The treatment is done under general anesthesia. Examining the bladder while it is stretched to capacity allows a physician to better see cracks or tears in the bladder lining.

What does a syringe do to the bladder?

The medications may also relax the bladder, minimizing the intensity of bladder contractions and thereby lessening urination frequency.

Can pelvic pain disappear?

pelvic pain, discomfort during sexual intercourse and urinary tract problems or functions). Symptoms can also disappear suddenly—such as after a change in diet, with treatment or for no reason—only to return weeks or months later.

What to do if IC doesn't work?

Surgery. In very rare cases when nothing else works, this may be an option. This is a complex operation that diverts your urine away from your bladder. Even if IC treatments don’t work for you, pain management using painkillers, acupuncture, or other methods can keep symptoms at bay.

How long does it take for a swollen bladder to calm down?

And it usually takes weeks or months to calm the symptoms. The first stage of treatment is to try to avoid triggers and try lifestyle changes that may help ease symptoms. Retrain your bladder to hold more urine. For example, if you feel the need to pee every 30 minutes, try to stretch it out to 45 minutes.

What is IC in bladder?

IC is a chronic bladder problem. Your bladder holds pee after your kidneys have filtered it but before you pee it out. This condition causes pain and pressure below your belly button. Symptoms can come and go. Or they may be constant. Interstitial cystitis causes urgent, often painful bathroom trips.

How long does IC last?

Because IC has such a wide range of symptoms and severity, most experts think it might be several diseases. If you have urinary pain that lasts for more than 6 weeks and is not caused by other conditions like infection or kidney stones, you may have IC. No matter what it’s called, interstitial cystitis symptoms bring a lot of challenges.

How does IC feel?

The bladder pain people feel with IC can range from a dull ache to piercing pain. Peeing may feel like just a little sting, or it can feel like serious burning. About 5% to 10% of people with the condition get ulcers in their bladder.

How to treat a hunner's lesions?

If it’s helpful, the effect usually lasts less than 6 months. Repeat treatment may help. Steroids. If you have ulcers called Hunner’s lesions on your bladder, a doctor may remove them, burn them, or inject them with steroids.

How many women have IC?

Somewhere between about 3% to 6% of adult women have some form of IC. That’s about 3 million to 8 million American women. About 1.3% of American men also have it. On average, people first start having problems in their 40s.

How does interstitial cystitis affect the quality of life?

Interstitial cystitis can also affect the quality of life of a person, influencing almost all spheres of life of the individual including sleep, social life, exercise, work, married life, etc. There is no single treatment that will remedy all the IC patients but the treatments are based on the symptoms of the individual patients concerned.

What is interstitial cystitis?

Also known as painful bladder syndrome, interstitial cystitis (IC) is a chronic condition that causes inflammation in the muscle layers of the bladder. It is characterized by pain, pressure, and the urge to urinate frequently.

How long does it take for a urinary tract infection to go away?

If you have urinary pain along with other lower urinary tract symptoms for more than 6 weeks without any other cause of infection or symptoms, you may be suffering from interstitial cystitis. This condition affects more than 12 million people in the United States, according to the Interstitial Cystitis Association.

How to stop a spasm in the bladder?

When the pain is from the bladder wall, a hot compress also will help reduce muscle spasms. Wrap a thin cloth around a hot water bag. Apply the compress on the pelvic floor muscles for 5 minutes. Take a break of 5 minutes, then repeat again. Do this for 20 minutes.

How to treat IC in pelvic area?

This treatment can be done 3-4 times for 20 minutes. 2. Baking Soda. Baking soda is a very effective home remedy for IC.

Why is it important to drink water when you have IC?

Sufficient amount of water or fluid intake by IC patients helps flush the bladder, reduce inflammation, lower the acidity of urine and also check urinary infection.

How to get rid of IC pain?

1. Hot Compress . Applying a hot compress on your bladder is a very simple and effective treatment to reduce swelling on the bladder, which is a common symptom of IC. Physicians recommend both cold and hot packs on the cold abdomen to get relief from IC [3] these packs provide relief from both the inflammation and pain.

Why is there no single treatment for IC?

Because IC symptoms vary from patient to patient, there is no single “best” treatment that will work for everyone. IC patients respond to various treatments differently. It sometimes takes a period of “trial and error” before just the right treatment or combination of treatments is found.

What are the ingredients in a bladder solution?

These solutions contain an anesthetic and, often, other added ingredients, such as an alkalinizer, bladder coating agents such as heparin or pentosan polysulfate ( Elmiron ), steroids, and antibiotics.

Is baking soda safe for IC?

Yes, it is safe to take baking soda daily to help de-acidify or alkalize the body. This is good for IC, as it is good for any chronic pain or inflammatory issue. This question was answered in the ICA webinar, IC’s Role in CAPPS, featuring Dr. Robert Echenberg. View the webinar to learn more about this topic.

Is naltrexone good for IC?

Some research also indicates that it may be useful in autoimmune conditions and inflammatory disease. The science isn ’t there yet on whether it is a useful treatment for IC. Some pain management doctors are having IC patients try the therapy; naltrexone has to be compounded to get the low dose.

Can IC patients have a pudendal nerve?

Some IC patients have pudendal nerve dysfunction. The pudendal nerve is probably related to the chronic inflammatory pathways in the pelvis. However, surgery on the pudendal nerve is not the answer for everyone. For many patients with this dysfunction, trigger point injections or CT guided injections can be helpful.

Can a psychiatric nurse practitioner work with an IC?

Some IC healthcare teams include a psychiatric nurse practitioner. Your IC doctor can work on the IC and the psychiatric nurse practitioner on the anxiety. Your situation is not uncommon. Most patients who have long-term health problems combat depression and anxiety.

Is bladder instillation better than another?

There are no studies demonstrating that one bladder instillation is better than another. Your doctor and you need to figure out which instillation works best for you. Some use bupivacaine (Marcaine) and heparin. Heparin is an anti-inflammatory and Marcaine is an anesthetic.

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Diagnosis

Treatment

Alternative Medicine

Coping and Support

Medically reviewed by
Dr. Pawan Katti
Your provider will work with you to develop a care plan that may include one or more of these treatment options.
Treatment mainly includes lifestyle modification and therapy.
Medication

Nonsteroidal anti-inflammatory drugs (NSAIDs): Decreases inflammation and relieve pain.

Ibuprofen . Naproxen sodium


Tricyclic antidepressants: To relax bladder and block pain.

Amitriptyline . Imipramine


Antihistamines: Reduces allergic reaction, urinary urgency and frequency.

Loratadine


Anti irritants: Used to restore the inner surface of the bladder which protects the bladder wall from substances that could irritate it.

Pentosan polysulfate sodium

Procedures

Fulguration: Insertion of instruments through the urethra to burn off ulcers.

Ulcer resection: Insertion of instruments through the urethra to cut around any ulcers.

Bladder augmentation: Increasing the capacity of the bladder by putting a patch of intestine on the bladder.

Therapy

Physical therapy:Restores muscle strength and function through exercise.

Biofeedback therapy:Controlling body heartbeat, brainwaves, breathing and blood pressure by monitoring them with sensors.

Self-care

Always talk to your provider before starting anything.

  • Dietary modification - eliminating or reducing foods that irritate bladder from diet.
  • Relaxation techniques such as meditation to reduce stress.
  • Wearing lose clothing to reduce pressure on the bladder.
  • Low impact exercise such as taking a walk.
  • Bladder training involves timed urination, going to the toilet according to the clock rather than waiting for the need to go.

Nutrition

Foods to eat:

  • Increase intake of complex carbohydrates such as brown bread, brown rice and sweet potatoes
  • Increase intake of fresh green leafy vegetables

Foods to avoid:

  • Acidic citrus fruits like oranges and lemons
  • Food containing high concentrations of vitamin C such as bell peppers, dark leafy greens, kiwi fruits, broccoli and tomatoes
  • Chocolate
  • Caffeinated drinks like coffee and sodas
  • Carbonated drinks
  • Alcohol
  • Spicy foods
  • Artificial sweeteners

Specialist to consult

Urologist
Specializes in the urinary tract disease.
Primary care physician
Specializes in the acute and chronic illnesses and provides preventive care and health.
Urogynecologist
Specializes in diagnosis, and treatment of conditions that affect the muscles and connective tissue of the female pelvic organs.

Preparing For Your Appointment

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Diagnosis of interstitial cystitis might include: 1. Medical history and bladder diary.Your health care provider may ask you to describe your symptoms and to keep a bladder diary, recording the volume of fluids you drink and the volume of urine you pass. 2. Pelvic exam.During a pelvic exam, your provider examines your …
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