Treatment FAQ

lyme disease treatment how long to feel better

by Kimberly Crist Published 3 years ago Updated 3 years ago
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Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment. This condition is called Post-Treatment Lyme Disease Syndrome (PTLDS).

Full Answer

How long does it take to recover from Lyme disease?

The National Institutes of Health (NIH) has funded several studies on the treatment of Lyme disease that show most people recover within a few weeks of completing a course of oral antibiotics when treated soon after symptom onset.

How do you feel after starting treatment for Lyme disease?

If you're just starting treatment, you're probably feeling ambivalent, uncertain and curious as to how your body is going to respond. At the moment, you're probably just experiencing your normal Lyme symptoms, as crippling as they are. After starting an antibiotic regiment, you are either going to experience 1 of 2 things.

Is there a treatment for persistent symptoms in Lyme disease?

Currently there are no FDA approved treatments for the persistent symptoms in Lyme disease. Therefore, treatments must be individualized by addressing specific findings, symptoms, and circumstances for each individual.

How long do antibiotics take to work for Lyme disease?

If your Lyme disease is found soon after you’ve been infected, your doctor will start you on antibiotics: Which drug you’re prescribed will depend on your age. Your doctor will also take into account if you’re pregnant or nursing. You’ll need to take this medicine for 10 to 21 days. The earlier Lyme disease is found, the better.

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How long does it take for antibiotics to help Lyme disease?

For early Lyme disease, a short course of oral antibiotics, such as doxycycline or amoxicillin, cures the majority of cases. In more complicated cases, Lyme disease can usually be successfully treated with three to four weeks of antibiotic therapy.

How long does Lyme disease pain last?

It is not uncommon for patients treated for Lyme disease with a recommended 2 to 4 week course of antibiotics to have lingering symptoms of fatigue, pain, or joint and muscle aches at the time they finish treatment. In a small percentage of cases, these symptoms can last for more than 6 months.

How do you feel better with Lyme disease?

Living with Lyme diseaseEat a healthy diet and limit your sugar intake.Get plenty of rest.Exercise at least three times a week for at least 30 minutes each day.Reduce stress.Use anti-inflammatory medication when necessary.

How long does it take for Lyme to work?

Within 1 to 4 weeks of being bitten, most people have some Lyme disease symptoms. A circular rash called erythema migrans develops at the site of the bite in about 70% to 80% of cases.

How long do Lyme flare ups last?

They may last up to six months or longer. These symptoms can interfere with a person's normal activities and may cause emotional distress as a result. However, most people's symptoms improve after six months to a year. It's not known why some people develop post-treatment Lyme disease syndrome and others don't.

What does Lyme disease fatigue feel like?

Tiredness, exhaustion, and lack of energy are the most frequent symptoms. The Lyme fatigue can seem different from regular tiredness, where you can point to activity as a cause. This fatigue seems to take over your body and can be severe.

How quickly does doxycycline work for Lyme disease?

You'll need to take this medicine for 10 to 21 days. The earlier Lyme disease is found, the better. Most people who start treatment in this stage improve quickly. If not, your doctor may need to prescribe another course of antibiotics.

Is Lyme worse before better?

2 said, “you'll feel much worse before you feel better. When the bacteria die, they release a toxic gas. It's called a Herxheimer reaction. Your symptoms will intensify, and you'll likely have some new ones.

Should you exercise with Lyme disease?

For those being treated for active, early-stage Lyme disease, light to moderate exercise—as much as can be tolerated—is recommended to help alleviate joint and muscle stiffness. Exercising isn't recommended if the patient has any fever or flulike symptoms.

Does Lyme disease go away after antibiotics?

Most people who develop Lyme disease recover fully following a course of antibiotics. In rare cases, Lyme disease symptoms may persist for weeks, months, or even years after antibiotic treatment.

Can antibiotics make Lyme symptoms worse?

Any antibiotic can cause skin rashes, and if an itchy red rash develops while on antibiotics, a patient should see their physician. Sometimes symptoms worsen for the first few days on an antibiotic. This is called a Herxheimer reaction and occurs when the antibiotics start to kill the bacteria.

Is 10 days of doxycycline for Lyme?

The guidelines have consistently recommended a 10-day course of doxycycline for uncomplicated early Lyme disease.

How long does it take to recover from lyme disease?

Lyme arthritis. The National Institutes of Health (NIH) has funded several studies on the treatment of Lyme disease that show most people recover within a few weeks of completing a course of oral antibiotics when treated soon after symptom onset.

How long does a lyme disease last?

In a small percentage of cases, symptoms such as fatigue (being tired) and myalgia (muscle aches) can last for more than 6 months. This condition is known as post-treatment Lyme disease syndrome (PTLDS), although it is also sometimes called chronic Lyme disease.

What is the most common manifestation of Lyme disease?

Treatment regimens listed in the following table are for the erythema migrans rash, the most common manifestation of early Lyme disease. These regimens may need to be adjusted depending on a person’s age, medical history, underlying health conditions, pregnancy status, or allergies. Consult an infectious disease specialist regarding individual patient treatment decisions.

What is the treatment for lyme disease?

People with other forms of disseminated Lyme disease may require longer courses of antibiotics or intravenous treatment with antibiotics such as ceftriaxone. For more information about treating other forms of Lyme disease, see: Neurologic Lyme disease. Lyme carditis.

Can you get Lyme disease with antibiotics?

People treated with appropriate antibiotics in the early stages of Lyme disease usually recover rapidly and completely. Early diagnosis and proper antibiotic treatment of Lyme disease can help prevent late Lyme disease.

What is the treatment for Lyme disease?

The first-line standard of care treatment for adults with Lyme disease is doxycycline, a tetracycline antibiotic. Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the second generation cephalosporin, Ceftin. The mainstay of treatment is with oral (pill) antibiotics, but intravenous antibiotics are sometimes indicated for more difficult to treat cases of neurologic-Lyme disease, such as meningitis, and cases of late Lyme arthritis.

What is a PTLD?

Post Treatment Lyme Disease (PTLD) represents a research subset of patients who remain significantly ill 6 months or more following standard antibiotic therapy for Lyme disease. PTLD is characterized by a constellation of symptoms that includes severe fatigue, musculoskeletal pain, sleep disturbance, depression, and cognitive problems such as difficulty with short-term memory, speed of thinking, or multi-tasking. In the absence of a direct diagnostic biomarker blood test, PTLD has been difficult to define by physicians, and its existence has been controversial. However, our clinical research shows that meticulous patient evaluation when used alongside appropriate diagnostic testing can reliably identify patients with a history of previously treated Lyme disease who display the typical symptom patterns of PTLD.

How common is PTLD after lyme disease?

The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher.

How many signs and symptoms are there in PTLD?

In our study, participants with Post Treatment Lyme Disease (PTLD) & controls were asked about presence and severity of 36 signs/symptoms over the past 2 weeks. Displayed are the 25 signs/symptoms with a statistically significant difference in severity by group (P<0.05) ordered by frequency within the PTLD group. The nine signs/symptoms with a statistically significant difference at the p<0.001 level are indicated with an asterisk*.

What is lyme disease?

Lyme disease encompasses a range of biologic processes and disease manifestations. Patients are often referred to the Lyme Disease Research Center for evaluation of chronic Lyme disease, an umbrella term that encompasses many heterogeneous subsets of illness. Examples of defined Lyme disease subsets include Post Treatment Lyme Disease (PTLD), ...

How high is the risk of Lyme disease after treatment?

The rates of Post Treatment Lyme Disease after neurologic involvement may be as high as 20% or even higher. Other risk factors being investigated are genetic predispositions and immunologic variables.

Can lyme disease be recurrent?

However, some patients suffer from ongoing or recurrent symptoms related to Lyme disease despite standard of care antibiotic therapy. The persistent symptoms in Lyme disease can have a large negative impact on an individual’s health and quality of life.

Can you be successful in eliminating one illness only to find that you are still sick from another that was not suspected?

You may be successful in eliminating one illness only to find that you are still sick from another that was not suspected.

Does Herxheimer's disease always advance?

The intensity of the herxheimer reactions gradually diminished, but after years of suffering. I could quit therapy and feel better, but the disease would always advance when I did that.

Does herx start over again?

Cons is once you start back up the herx will likely start up all over again and sometimes worse. This also prolongs treatment and ability to get better as quickly. Treatment is almost always longer when you pulse. That said it’s a pers

Can Lyme disease be treated without co-infection?

When treating Lyme disease , be aware that it seldom comes without co-infections. The arthropods that transmit the disease are often loaded with microbes of many kinds. The combination of symptoms from several different simultaneous infections can make diagnosis and treatment very confusing.

Can bartonella be eliminated with antibiotics?

I have since learned more about bartonella. It is mostly an intracellular infection, and cannot be eliminated with antibiotics alone, and the herbal method I outlined in a comment below some time back brought me only a partial success. It can become asymptomatic after enough treatment, and I believe this is what happened. It was still there.

Can the immune system kill borrelia?

I believe now that our immune systems are capable of eradicating borrelia infections, except for whatever it is that borrelia does to protect itself from our immunity.

Is pulse good for herx?

Pros is it gives you some relief from all the herx related symptoms you’re experiencing especially if you work or have commitments you need to deal with! Many doctors have people pulse their treatments anyway so the bacteria doesn’t become resistant to it and so you don’t develop candida or other related issues. It also gives your body/organs a chance to recover.

How long does it take for a lyme disease to get better?

Patients with PTLDS usually get better over time, but it can take many months to feel completely well. If you have been treated for Lyme disease and still feel unwell, see your healthcare provider to discuss additional options for managing your symptoms. If you are considering long-term antibiotic treatment for ongoing symptoms associated with a Lyme disease infection, please talk to your healthcare provider about the possible risks of such treatment.

How long does it take to cure lyme disease?

Lyme disease is caused by infection with the bacterium Borrelia burgdorferi. Although most cases of Lyme disease can be cured with a 2- to 4-week course of oral antibiotics, patients can sometimes have symptoms of pain, fatigue, or difficulty thinking that lasts for more than 6 months after they finish treatment.

Why do some people experience PTLDS?

Why some patients experience PTLDS is not known. Some experts believe that Borrelia burgdorferi can trigger an “auto-immune” response causing symptoms that last well after the infection itself is gone. Auto–immune responses are known to occur following other infections, including campylobacter (Guillain-Barré syndrome), chlamydia (Reiter’s syndrome), and strep throat (rheumatic heart disease). Other experts hypothesize that PTLDS results from a persistent but difficult to detect infection. Finally, some believe that the symptoms of PTLDS are due to other causes unrelated to the patient’s Borrelia burgdorferi infection .

What are the auto immune responses?

Auto–immune responses are known to occur following other infections, including campylobacter ( Guillain-Barré syndrome), chlamydia (Reiter’s syndrome), and strep throat (rheumatic heart disease). Other experts hypothesize that PTLDS results from a persistent but difficult to detect infection.

Is there a cure for Borrelia burgdorferi?

Unfortunately, there is no proven treatment for PTLDS. Although short-term antibiotic treatment is a proven treatment for early Lyme disease, studies. external icon.

What happens when you start Lyme disease treatment?

If you're just starting treatment, you're probably feeling ambivalent, uncertain and curious as to how your body is going to respond. At the moment, you're probably just experiencing your normal Lyme symptoms, as crippling as they are. After starting an antibiotic regiment, you are either going to experience 1 of 2 things.

How long does it take to get rid of a herx?

So most people usually reduce their dosage of antibiotics or just back off completely for about 2 - 3 days.

What happens after you start taking antibiotics?

You are either going to immediately start feeling good with a dissipation of symptoms and then feeling the wrath of die off or you're just going to experience die off right off the bat. Now everyone is going to experience die off at a different time.

How long do bad days last?

Bad days can linger for a few days or all the way up to a couple weeks. During this state, your mental stamina is going to be challenged to the max. It will be a complete state of debilitation and self loathing and in all honesty, you may even reach a point where you feel you must end your life. Hold it!

Is it necessary to lose your expectation of antibiotics?

It is an imperative! Lose any expectation of ingesting antibiotics as your only duty. Your body is going to require the right foods, detoxing, and most importantly, patience and persistence. It is going to be a long haul and will truly test your patience to the limit but you must remain persistent.

Can you be deceived by Lyme disease?

Throughout treatment you will be deceived by your own body. There will be days where you will feel as if you've never even had Lyme Disease. You'll be symptom free, full of energy and ready to carry on with life but this is biggest deception you could fall for because soon enough you'll be hit with a bad day.

Is it worth it to remember bad days?

There is one important thing to remember with bad days and that is they're worth it . It may be hard to see when you're in such a debilitated stage of recovery but you're actually killing off spirochetes. These little guys don't go without a fight and they make that very clear on your worst days.

How long does it take to recover from lyme disease?

This is an average, and some respond more quickly than others. For example, some may recover in 6 months while some may require 3 or more years.

How to get rid of lyme disease?

get sleep, lower inflammatory cytokines, use an adaptogen to help the immune system deal with stress, correct hormonal imbalances, take essential micronutrients and vitamins, treat yeast overgrowth in the intestines, detox, and . kill Lyme germs and the coinfections.

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Treatment

  • The first-line standard of care treatment for adults with Lyme disease is doxycycline, a tetracycline antibiotic. Other antibiotics that have activity against borrelia include the penicillin-like antibiotic, amoxicillin, and the cephalosporin, Ceftin. In children under the age of 12, amoxicillin is used because of the possible side effects of doxycycline in small children. The mainstay of treat…
See more on hopkinslyme.org

Side effects

  • Antibiotics, like all medications, have the potential for side effects. Any antibiotic can cause skin rashes and if an itchy red rash develops while on antibiotics, a patient should see their physician. Sometimes symptoms worsen for the first few days on an antibiotic. This is called a Herxheimer reaction and occurs when the antibiotics start to kill the bacteria. In the first 24 to 48 hours, thes…
See more on hopkinslyme.org

Prognosis

  • The prognosis after treatment of Lyme disease is generally very good. The majority of people are treated with antibiotics and return to their normal health. The prognosis is best when Lyme disease is diagnosed and treated early and worsens when diagnosis and treatment is delayed. Most patients with early Lyme disease infection recover with antibiot...
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Roles

  • The causes of PTLDS are not yet well understood but our Center is investigating the potential roles of:
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Research

  • Our research has validated PTLDS as a serious and impairing condition. However, the causes of PTLDS are not yet well understood or validated. The term PTLDS does not mean post-infection or imply an assumption of underlying biologic mechanisms. The roles of immune dysfunction, autoimmunity, persistent bacterial infection, neural network alteration, and other potential causa…
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Terminology

  • Patients are often referred to the Lyme Disease Research Center for evaluation of chronic Lyme disease, an umbrella term that encompasses many different subsets of illness. Examples of defined Lyme disease subsets are Post Treatment Lyme Disease Syndrome (PTLDS), and Antibiotic Refractory Late Lyme Arthritis. The mechanisms of these Lyme disease conditions ar…
See more on hopkinslyme.org

Diagnosis

  • The symptoms of chronic Lyme disease are similar to and overlap with other conditions involving fatigue, pain, and cognitive symptoms. Therefore, rigorous diagnostic evaluation is necessary to determine if Lyme disease could be the trigger for ongoing disease processes or if some other disease processes are involved.
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