What kind of doctor manages Ehlers-Danlos syndrome?
Successful treatment of this complex syndrome requires a team with extensive knowledge of genetics, orthopedics, pediatrics, neurology, neuroradiology, neuropsychology, and neuroendocrinology, in addition to skilled surgeons who specialize in neurosurgery and cerebrovascular surgery.
Can you be misdiagnosed with Ehlers-Danlos syndrome?
Ehlers-Danlos Syndrome: Not Rare, Just Rarely Diagnosed Misdiagnosis and a lack of EDS awareness among medical professionals often results in patients experiencing years of suffering without proper diagnosis and treatment.
Is EDS Type 3 an autoimmune disease?
Unlike the diseases noted above, Ehlers-Danlos syndrome is not an autoimmune condition, it's an inherited disorder.
What mimics Ehlers-Danlos syndrome?
Tnxb-/- mice showed progressive skin hyperextensibility, similar to individuals with Ehlers-Danlos syndrome. Biomechanical testing confirmed increased deformability and reduced tensile strength of their skin.
How often is EDS misdiagnosed?
“A misdiagnosis was given to 56% of patients [resulting in] inappropriate treatment in 70% of the patients….
Does collagen Powder help EDS?
Bottom Line: No established research or clinical experience has proven that collagen supplementation is helpful for persons with EDS! Theoretically, a diet adequate in glycine, proline, lysine, and vitamin C (or supplementation) would support collagen biosynthesis.
How common is Ehlers-Danlos type 3?
Video: Hypermobility EDS – an update Vascular Ehlers Danlos syndrome (vEDS) is a rare disorder, estimated to affect between 1 in 50,000 and 1 in 200,000 people.
Does Michael Phelps have Ehler Danlos?
About 10% of all people have loose joints that don't cause any problems; Michael Phelps is one example. Others with hypermobile joints may develop potentially serious health concerns and complications and thus are considered to have a medical disorder, such as Ehlers-Danlos syndrome (EDS).
Do Rheumatologists treat Ehlers-Danlos?
The rheumatologist can play an important role in the diagnosis of EDS and is central to the ongoing management of many EDS patients.
Does EDS cause mental illness?
What mental health problems are common in EDS? Research has shown that anxiety, depression, and other mood disorders are common in EDS patient populations. Somatoform disorders, where patients experience pain and fatigue without a known cause, are also common in patients with EDS.
How does Ehlers-Danlos affect hair?
The defects of the collagen previously reported in EDS account for the increased extensibility of the skin (1, 2). It is possible that the altered skin structure results in increased pliability of the skin which may allow the hair follicles to expand.
How does Ehlers-Danlos affect the eyes?
Changes in the cornea can cause dry eyes and light sensitivity, as well as a blurry vision — symptoms that many EDS patients report. In rare cases, the sclera (the white part of the eye) may turn slightly blue in EDS patients.