How often do hemophiliacs need treatment?
Typically, replacement therapy is given at home two or three times a week. This preventive therapy usually is started in patients at a young age and may need to continue for life.
What is the usual way for hemophilia to be treated?
The best way to treat hemophilia is to replace the missing blood clotting factor so that the blood can clot properly. This is typically done by injecting treatment products, called clotting factor concentrates, into a person's vein.
How much does treatment for hemophilia cost?
Treatment for hemophilia is extremely expensive. This is a lifetime expense. The average cost is $40,000 to $50,000 a year. Complications from hemophilia can bring further expenses, which may be over $100,000.
Is hemophilia treatment lifelong?
Lifelong treatment is necessary for people with hemophilia A to replace the missing clotting factor in their blood. Lifelong treatment is necessary for people with hemophilia A to replace the missing clotting factor in their blood.
How serious is hemophilia?
Hemophilia can result in: Bleeding within joints that can lead to chronic joint disease and pain. Bleeding in the head and sometimes in the brain which can cause long term problems, such as seizures and paralysis. Death can occur if the bleeding cannot be stopped or if it occurs in a vital organ such as the brain.
How is hemophilia diagnosed and treated?
Diagnosis includes screening tests and clotting factor tests. Screening tests are blood tests that show if the blood is clotting properly. Clotting factor tests, also called factor assays, are required to diagnose a bleeding disorder. This blood test shows the type of hemophilia and the severity.
Why is hemophilia medication expensive?
Not only do prices rise steadily as each new product comes on the market, demand is growing — and pushing costs upward — as more and more clotting factor is used to prevent bleeding episodes, not just to treat them.
How much does factor 9 cost?
See above for information about the drug. The per patient cost for this drug was $366,496 in 2014. This Coagulation Factor IX drug is used to control and prevent bleeding in patients with hemophilia B. The cost per patient in 2014 was $302,364.
How does haemophilia affect you emotionally?
Results: People with haemophilia revealing higher anxiety and depression symptoms were more likely to have had, in the previous year, more urgent hospital visits due to haemophilia, more bleeding episodes, more affected joints and pain, as well as worst levels of perceived functionality and quality of life.
Can you get rid of hemophilia?
There is currently no cure for hemophilia, a rare bleeding disorder.
Can hemophilia go away?
It lasts all of your life and it will not go away. Hemophilia occurs mainly in males but females can carry the gene that causes it and may or may not have bleeding problems. Some children with hemophilia have no family history of the disorder.
How much does factor 7 cost?
This is a costly medication (retail price is approximately $2000) that is currently only given to a minority of patients [1,2].