- Akron Children’s Down Syndrome Program – Akron. The Down Syndrome program uses a multidisciplinary approach to provide medical care and developmental services to children and their families.
- The Jane and Richard Thomas Center for Down Syndrome – Cincinnati. ...
- Rainbow Child Development Center/Down Syndrome Clinic – Cleveland. Our Down Syndrome Clinic focuses on the medical, behavioral and developmental issues which occur with increased frequency in children with Down syndrome.
What type of doctors are experts on Down syndrome?
You’ll likely rely on a team of providers, including your child’s main doctor, and maybe specialists like ear doctors, heart doctors, and others. Your child may also work with physical, occupational, and speech therapists.
What kind of Doctor treats Down syndrome?
- Children with Down syndrome often learn to speak later than their peers. ...
- In many cases, children with Down syndrome understand language and want to communicate before they can speak. ...
- Learning to communicate is an ongoing process, so a person with Down syndrome also may benefit from speech and language therapy in school as well as later in life. ...
How do doctors detect Down syndrome?
Prenatal Diagnostic Testing for Down Syndrome
- Amniocentesis (pronounced am-nee-oh-sen-TEE-sis ). A health care provider takes a sample of amniotic (pronounced am-nee-OT-ik) fluid, which is then tested for the extra chromosome. ...
- Chorionic villus (pronounced KOHR-ee-on-ik VIL-uhs) sampling (CVS). ...
- Percutaneous (pronounced pur-kyoo-TEY-nee-uhs) umbilical blood sampling (PUBS). ...
What kind of doctors specialize in dysautonomia?
You may be at higher risk for dysautonomia if you:
- Are a Jewish person of Eastern European heritage (only for the familial dysautonomia form of the condition).
- Have diabetes, amyloidosis, certain autoimmune diseases and other medical conditions mentioned earlier in article in the question, “who might get dysautonomia?”
- Have a family member with the disorder.
Is there a doctor who has Down syndrome?
Karen Gaffney became the first living person with Down syndrome to receive an honorary doctorate degree when she received an honorary Doctor of Humane Letters degree from the University of Portland on May 5, 2013, for her work in raising awareness regarding the abilities of people who have Down syndrome.
What treatment is available for Down syndrome?
Down syndrome cannot be cured. Early treatment programs can help improve skills. They may include speech, physical, occupational, and/or educational therapy.
What professionals would be involved with Down syndrome?
Medical specialists may be involved if specific medical problems exist. A speech therapist, physiotherapist and occupational therapist may well have a role in the CDC, the family's home and later in the child's school. A social worker may not automatically call, but a visit can be requested.
Is there surgery or medicine for Down syndrome?
Down syndrome (trisomy 21) isn't a disease or condition that can be managed or cured with medication or surgery.
How long do people with Down syndrome live?
Jul 21, 2021. Over 6,000 babies are born with Down syndrome in the United States each year. As recently as 1983, a person with Down syndrome lived to be only 25 years old on average. Today, the average life expectancy of a person with Down syndrome is nearly 60 years and continuing to climb.
Can gene therapy cure Down syndrome?
New Genetic Therapy Could Erase Down Syndrome : NPR. New Genetic Therapy Could Erase Down Syndrome The journal Nature reports that researchers may have found a way to correct the chromosome defect that causes Down syndrome, though it will be years before it could be used as a therapy.
What is the mental age of a person with Down syndrome?
Those with Down syndrome nearly always have physical and intellectual disabilities. As adults, their mental abilities are typically similar to those of an 8- or 9-year-old.
At what age does a child with Down syndrome talk?
Typically, these children have a much harder time learning to talk (expressive language) than with understanding what they hear (receptive language). On average, children with Down syndrome start using words around 16 months of age—about 6 months later than other children.
How do you discipline a child with Down syndrome?
Children with down syndrome tend to respond to positive behavior techniques rather than discipline. So remember, stay positive and use other tools before resorting to discipline.” while there are many things that experts and professionals can help with, simple daily actions you take at home can also have a huge impact.
Is Down syndrome treated with medication?
Medication Summary Drug therapy is not currently a component of the standard of care for Down syndrome. Medications are indicated only for symptomatic treatment of pain.
Can a man with Down syndrome have a baby?
Abstract. Men with Down syndrome are considered as infertile although the causes of infertility are not known in detail yet. Although this constitutes a general rule there are three confirmed cases of parenting by fathers with Down syndrome.
How is Down syndrome managed medically?
There is no cure for Down syndrome. However, some specific symptoms and problems caused by the syndrome can be treated. Doctors can surgically repair some heart and gastrointestinal defects. Doctors give thyroid hormone replacement therapy to people with hypothyroidism.
What is the number to call for Down syndrome?
Regular and/or continuing follow-up care (to be assessed and coordinated with primary care physicians and families based on individual needs) For more information about the services offered through the Center for Down Syndrome, please call (650) 723-6858.
What are the services of a pediatrician?
Each patient will receive the following services: 1 Comprehensive medical and genetics evaluation 2 Comprehensive developmental evaluation 3 Referrals as required to other sub-specialists and ancillary services 4 Coordinated care for each patient managed by our staff 5 Regular and/or continuing follow-up care (to be assessed and coordinated with primary care physicians and families based on individual needs)
What is the National Down Syndrome Congress?
The National Down Syndrome Congress (NDSC) The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. National Down Syndrome Society. Committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down Syndrome.
When is World Down Syndrome Day?
Down Syndrome Awareness: Dispel the Misconceptions. March 21st is World Down Syndrome Day to symbolize the third copy of the 21st chromosome in people with Down syndrome. Specialty.
What is Down syndrome clinic?
The Down Syndrome Clinic at Texas Children's Hospital provides services that help ensure the healthy development of children with Down syndrome and help you nurture your child's best qualities so they can develop their own special gifts. Our clinic supplements your child’s primary-care physician’s routine medical care with assessments and individualized treatments from a variety of experts who specialize in working with the unique needs and abilities of young patients with Down syndrome.
What is the phone number for Down syndrome?
Contact Us. Phone: 832-822-3400. The Down Syndrome Clinic at Texas Children's Hospital provides services that help ensure the healthy development of children with Down syndrome and help you nurture your child's best qualities so they can develop their own special gifts.
Going the extra mile
At Children’s Minnesota, we have treated thousands of kids with Down syndrome over the past 30 years. Here are just a few of the ways we go the extra mile for our patients:
Working together today and tomorrow
At Children’s Minnesota, we know that caring for kids is a team effort. That’s why our Down syndrome professionals work closely with your child’s pediatrician, medical specialists, therapists and other professionals to treat complex conditions.
Behind every strong child is a strong family
We understand that Down syndrome is a family affair. That’s why we consider the needs of the entire family when planning your child’s care. We welcome parents as expert partners and vital members of our team.
GET EDUCATED
At Children’s Minnesota, we know how important reliable information about conditions and illnesses is.
About the Center
The Center is directed by the Division of Genetics and Genomic Medicine, Department of Pediatrics, Washington University School Medicine. Our Center accepts patients of any age through age 21, including prenatally diagnosed cases. We offer specialty care in the following areas:
Why Choose the Down Syndrome Center?
We use a team approach that focuses on your child’s individual development needs and goals. In addition to this comprehensive care, we strive to make visits as convenient and simple for you as possible. We arrange appointments at one location, and in an efficient manner, with all the specialists your child needs to see.
Conditions We Treat
We offer world-class care to children thanks in part to generous gifts from hundreds of people who have joined us in making health care better for all children. This philanthropic support enables us to fulfill our mission to do what's right for kids.
Find adult Down syndrome resources
Find resources such as videos, visual supports, presentations and journal articles for people with Down syndrome, caregivers and health care providers.
What to expect at our center
As a comprehensive medical resource for teens and adults with Down syndrome, we provide patients everything from holistic care and support to education and resources in a compassionate, welcoming environment. We also hold events, participate in community outreach and conduct research.
Schedule an appointment
Call 847-318-2303 to schedule an appointment.* Our patient forms must be filled out prior to an initial visit. You can expect a physical exam to be performed and a complete medical history to be recorded by our experts at your first appointment.