Difficulty swallowing pills is a significant barrier to adherence in young children with CF. In a survey of patients from general pediatric practices, 26% of children had difficulty swallowing pills (Anderson et al., 1995). In a study of barriers to adherence for CF, “difficulty swallowing pills” was listed by the child as the second most important reason for missing enzymes or oral medications (after “forgetting”; Modi & Quittner, 2006). Learning to swallow pills is important for children who must regularly take oral medications. Swallowing pills without difficulty increases adherence, convenience for parents, and the efficacy of enzymes.
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How can barriers to adherence to cystic fibrosis treatment be identified?
Objectives: The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence. Methods: Participants included 73 children with CF or asthma and their parents. The mean age of the sample was 9.9 years, and …
Do barriers to treatment adherence exist in adolescents?
CiteSeerX - Document Details (Isaac Councill, Lee Giles, Pradeep Teregowda): Objectives The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence. Methods Participants included 73 children with CF or asthma and …
What are the challenges of intervention design for cystic fibrosis?
Jan 09, 2006 · Results indicated that barriers were quite similar by illness and informant (e.g., parent and child) for the same treatments, but unique barriers were identified for disease-specific treatments. Frequently mentioned barriers across diseases included forgetting, oppositional behaviors, and difficulties with time management.
What is the role of exercise in the treatment of cystic fibrosis?
Sep 30, 2006 · The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the ...
What are the common barriers to inclusion or full participation within society for cystic fibrosis?
People with cystic fibrosis (CF) experience many barriers that limit their participation in physical activity, ranging from a lack of energy to low motivation to self-consciousness, a recent study highlights.Apr 30, 2021
What are the possible ways to treat CF patients?
Possible treatments include:antibiotics to prevent and treat chest infections.medicines to make the mucus in the lungs thinner and easier to cough up.medicines to widen the airways and reduce inflammation.special techniques and devices to help clear mucus from the lungs.medicines that help the person absorb food better.More items...•Oct 28, 2021
How do you manage cystic fibrosis in children?
How Is Cystic Fibrosis Treated?get regular exercise.use an inhaler or nebulizer.do breathing exercises and cough on purpose.wear a therapy vest that shakes the chest.have chest physical therapy (when a parent or trained person bangs gently on the chest or back)
What are the expectations for a child with cystic fibrosis?
Parenting a Child With CF: What To Expect Most people with cystic fibrosis live a normal daily life, with the challenge of incorporating daily medications, airway clearance techniques, and other treatments and medications.
How does mutation cause cystic fibrosis?
Summary. Cystic fibrosis is caused by mutations in the gene that produces the cystic fibrosis transmembrane conductance regulator (CFTR) protein. In people with CF, mutations in the CFTR gene can disrupt the normal production or functioning of the CFTR protein found in the cells of the lungs and other parts of the body ...
What treatments or care plans need to be in place when caring for a child with cystic fibrosis?
Treatments can include lung therapy, medicines, exercise, and diet changes. Some people who have this condition need to take enzymes and vitamins.
What are some of the complications associated with cystic fibrosis?
Possible ComplicationsBowel problems, such as gallstones, intestinal blockage, and rectal prolapse.Coughing up blood.Chronic respiratory failure.Diabetes.Infertility.Liver disease or liver failure, pancreatitis, biliary cirrhosis.Malnutrition.Nasal polyps and sinusitis.More items...•Jan 1, 2020
What is the main cause of cystic fibrosis?
Cystic Fibrosis Causes Cystic fibrosis is caused by a change, or mutation, in a gene called CFTR (cystic fibrosis transmembrane conductance regulator). This gene controls the flow of salt and fluids in and out of your cells. If the CFTR gene doesn't work the way it should, a sticky mucus builds up in your body.Dec 12, 2019